Thursday, June 30, 2005

Barry goes for 3rd chemo

Will be leaving shortly for Barry's 3rd chemo. More to follow.

Happy Anniversary to one of my bloggin' buddies. 14 years from what I remember. Keep em coming.

We were at the Cancer Center from 8:30 a.m. until 3:30 p.m. A long day for both of us. When I got home I couldn't wait to get into my jammies. Barry on the other hand went to work like a real man should! I don't know how he does it. And tonight he will not sleep due to the steroid. He'll be "speed man" or the energizer bunny. Tomorrow he'll go for his neulasta shot. By Saturday the aches will set in.

Yes, it was the 3rd treatment. Probably won't be the last one. In 3 weeks he will repeat the scans that he had done in April. This will determine if the tumor has changed in size. All our prayers are focused on positive outcome of these tests.

Wednesday, June 29, 2005

Dr.'s Visit today

Will post more later this p.m.

I didn't go to work today. Instead I saw the oncologist for him to look at my arm.
The main vein that was used for the first 2 chemos is irritated, that's why I'm having the pain. It may get worse before it gets better. Need to take anti inflammtory pills. I also had him check out a cough that I seemed to have inherited yesterday. He has prescribed a 5 day antibiotic for me. It's very easy for someone to get sick from others when their own immune systems are out of whack due to chemo.
I need to be in top shape for my vacation next week. So once again, I took control of the situation and went to see doctor. Also mentioned that I didn't get period this month, you guessed it: chemo and the fact that I'm so tired by noontime: chemo. Said to take naps during the day to rest up. Will be this way for a few weeks. At least I know what to expect. Did take 2 naps during the day, and was actually able to dream during one of them. That's a good sign of a good sleep.

I spoke to my friend Michele who had breast surgery yesterday. She is listening to my words of wisdom and taking her percocet like a good girl! I also shared a secret that someone told me: wear shirts inside out for comfort where incision took place. And she is doing that too. Would have liked to visit with her today but need to focus on myself right now.

Tim went to band rehearsal and was brought home by another friend of ours BJ. She offered to have Tim go to their house tomorrow while we are at the Cancer Center. So this will work out quite fine. Will send him with swimsuit in case the town pool calls for him. He does enjoy swimming.

Am using a sling for my arm. That is making it easier for me. Keeps it in a good position. Still hurts but as they say: doable.

Barry's chemo is in a.m. so I won't be online until evening. Asking for positive vibes and strong veins as he "tries" to catch up to me on my 3rd round of chemo.

Tuesday, June 28, 2005

A friend follows in my steps today

Michele R. is having surgery this a.m. for her breast cancer. Am asking everyone to pray for her as she goes through a similar experience that I've been through. She's a positive person like me, so I know she'll do just fine! Will stop by her house after work today to check her out.

Headache has returned. Time for excedrin.

Barry has tooth extracted today. Also keep him in your prayers.

This cycle seems to be wearing me down more than the others. But probably doesn't help that my counts were low, and that procrit doesn't kick in for about a month. Just very tired, mentally and physically. I seem to cry very easily. Heck, could it be the stress?! Boy, I can not wait for next week when I get away to visit the family in Cape Cod. A dream come true.

My right arm is very tender/sore. It was a bit sore last week and that's why they used the other arm for chemo. It's the side that my lymph nodes were removed from so I'm a bit concerned. It hurts at the bend. No swelling in fingers. I did what I never thought I would ever do. I actually called my oncologist who is my neighbor just to ask him about this. You have to worry about lymphedemia (not sure of spelling) when you've had surgery I had. He said just what Maureen had said. As long as no swelling/numbness, just take percocet and if still sore in a.m. call for an appt. I felt bad calling him at home but it was something I needed to do. A very nice and comforting man to talk to.

I spoke to Michele R. this evening. She had a very long day with her procedures today. She was also ready with her pain killer. I know somewhat of the pain she is experiencing. It's not a fun thing to go through. I dropped off a book for her that has daily inspirational readings in it, along with an angel medalion called HOPE. This was the same medalion that someone gave me when I started my journey. It is with me always to keep me going.

Monday, June 27, 2005

A new week

Still have remnants of headache, but hopefully that will go away soon. From past experience, it will linger throughtout the day.

I'm headed to work. Short work week since I'm off Thursday for Barry's 3rd chemo.

I've been asked when my last chemo is. It is July 14th if all goes well. Have heard from a "bosum buddy" of mine, who has been through this, that by the time that day comes you are so tired it's even hard to imagine doing that last treatment. And from the way I am feeling now, I know what she means. I had the headache up until about lunch time. Am glad it's history now. These past days are so mentally tiring. But tomorrow is another day.

Sunday, June 26, 2005

A neulasta day

As they say, better late than never. Finally am posting something for the day.

I did accomplish this: changed bed sheets this weekend for all!

Took all my energy to go to grocery store with Tim to get some much needed items. Have been drinking lots of OJ and we decided to buy some ice cream to save trips to Dutch Isle in this heat. As we were coming out of Giant Eagle, there was a stand set up for Par for the Cure, a fundraiser for cancer. The woman came up to me, and of course just by looking at me, knew what I was going through. Bald head and little energy today made me an easy target today. She hugged me and gave me a bracelet for the cause. Again, more tears were shed. I'm so glad that I have only one more of these chemo treatments to go through. The weekend following the treatment is no barrel of laughs. But I do know that tomorrow will be a brand new day.

Even in this heat, Tim played some soccer with his buddies and went to a strawberry social at a friend's church afterwards. It was not the kind of day for me to go outside. I was out just long enough to water my hanging flower bags. Oh yes, some kind of critters eat and try to destroy them during the night. Wish I could catch them in the act.

Almost 9 p.m., and the headache is slightly there. Been a long weekend.

Saturday, June 25, 2005

Day 3 following Chemo #3

Slept through until 5 a.m. for bathroom break, and then back to bed until 9ish. Just a mild headache that I'm going to attack with some excedrin and pepsi.

It's already 76 outside. So you know where I'll be most of the day. Inside where I have nice central a/c. Too hot for me.

I've just received an email from Julie who I met yesterday at the Relay. That is a blessing as she told me she was not a computer/email kind of person. A true new bosom buddy.

After picking Tim up from his sleepover, I finished cutting the lawn down by the creek. And then I could feel the neulasta kicking in. Tim heated up some pizza for me and I hit the bed. I rested for a couple of hours. It's hard to explain how my body is feeling. It's like having the flu, when your bones ache. Takes a lot of energy just to get up. The headache returned today and doesn't want to go away.
When I woke up, the only thing I had on my mind to do was to get some ice cream at Dutch Isle down the road. I grabbed Tim to ride with me. We also brought a cone home for Barry. It took all my strength just to stand at the counter to order the cone. But it sure did taste good. After eating the cone, I went back to bed until about 5ish.

I defrosted the spaghetti sauce and meatballs that Meg had made us awhile back. And that was our dinner tonight. Sure did come in handy on a down day for me. Very tasty. Thanks Meg.

I telephoned Michelle who goes to my church and is also going through treatment for breast cancer. I always see her in church (met her at a Relay walk a few weeks ago) and admire her strength, and how pretty she looks in her scarves! I need her to give me lessons. She has 2 young children and I'm sure it's quite difficult for her during these times. I'm lucky that Tim is a teenager. Her husband told me that she was resting. She just had her last chemo on Tuesday. I totally can understand that she is resting. Will try to reach her another time.

Friday, June 24, 2005

Day after Round 3 Jane

Am not surprised to wake up with headache this morning. Didn't sleep that well last night, probably due to caffeine in excedrin and pepsi. The arm I had IV in seemed heavy to me, so I rested it on pillow as I attempted to sleep.

Headache has improved but is still in back of eyes. Am not working today because I need to pamper this headache, not get any more stress. I've already gone for my two shots: neulasta (white blood cells) and procrit (red blood cells). It takes about 4 weeks for procrit to kick me up a notch as Emeril would say. I'll get procrit shots weekly for awhile.

Temps and humidity are going to be high today. Expecting to spend some quality rest time in my bed today. Just enjoy the air conditioner and feel better.

Went to lunch with Barry and Tim. Continued to drink my pepsi to be on the theme that caffeine will help with headache. Came home and slept for about 3 hrs. Yes, slept. Felt so good. Woke up at 5 p.m. and had on my mind that there was another Relay for Life Cancer Walk in nearby town. Got my butt in truck and got there 15 mins. before showtime. This will make my 4th survivor walk, and every one gives me more angels in my life. Am so truly blessed. A woman came up to me and asked if I had anyone to walk with. Said no and she offered to walk with me. She was 14 months breast cancer survivor, Julie from Ohio. And do you know that when I was getting my shots at center this a.m. I got to talking with a woman getting chemo. Julie knows that woman who is also from Ohio. Such a small world. Incredible coincidence. While at the walk I noticed people wearing a shirt that said "Angels walk among us" by the American Cancer Relay for Life. I was able to track down 1 of these shirts which will fit Tim. And the Chairperson of this event gave me local ACS telephone # to call for another shirt for myself. This is how I feel. Angels are around me constantly.

Tim was able to enjoy the town pool while Barry and I rested. He is now sleeping over at a friend's house.

All in all, a great day. No complaints on my end.

Neulasta should kick in sometime tomorrow. Temporary pain/discomfort that I can live with.

Hope everyone else also had a good day.

Thursday, June 23, 2005

Round 3 of Chemo done for Jane: 75% done!

And as my sister Maureen wrote last night, our computer was down and I felt so lost without it. There was a problem with the modem, outdated and so Adelphia replaced it for us this a.m.

I went to chemo this morning by myself. You see, I am a big girl.

Will post all about it later. Right now I have headache but wanted everyone to know that I'm OK. One more chemo to go. Just need to lie down and rest my brain. Lots of things going on in my head right now.

Today has been a very emotional day for me. Have shed some tears. Perhaps combination of PMS and just going through this whole chemo experience. Very tiring process.

My appointment with Dr. Garrow went very well. He is so comforting to talk to. Due to my hemoglobin and hermatocrit levels in my blood work, I will be getting Procrit shots weekly for awhile. This will boost them up. This medicine does not work quickly. This is probably the reason I've been tired lately. Yesterday at work I was yawning as I was talking to someone on the line. Now I know why. I did mention to the Dr. that my right lower arm was a bit sore (the IV arm for past 2 treatments) so today I used the other arm for IV. You can not fool around with veins with any chemo treatment. The medicines used are so powerful that the veins have to be just as powerful. We also decided to stick with same anti nausea drugs, even though one of them may be the cause of my headaches. I did not want to gamble, and risk getting sick from the chemo. I also asked if I should be following up with my gynecoligist for pap smear/mammogram. He said not to at this time as the chemo would not show accurate results on pap smear. Wait until this is over. After my appt., I had to wait almost 2 hrs. for the chemo treatment to begin. This was a very tiring and stressful time for me. Just the wait and anticipation produced a headache before I even had the chemo. And the headache has continued to now.

After the chemo, I went home. Of course, I couldn't wait to pee. And of course, it was the usual red pee. Good old adriamycin (chemo). Barry, Tim and I went to local restaurant Mugsies and used a gift certificate we had received from Michelle S. a friend of ours. It was nice to enjoy the lunch together as a family. I already have the chemo mouth taste, so dry. Took some excedrin with Moutain Dew and rested for awhile. With all this caffeine I didn't sleep. Another friend Michelle (recently diagnosed with breast cancer) stopped by with a gift from a woman I met at her house last night, Sonya. She sent me a Christian CD from Michael Smith. Sonya told her that I inspired her from our brief conversation last night. Incredible friends.

Tim went to movies with some friends. I did a shopping errand and cut the back lawn while he was gone. He had already done the front yard. Stopped for some take out food on the way home.

It's now 10 p.m. and time to put my head to rest. I am so glad I have this way to vent my bad and good days. Today is a combination of both, bad emotional time but good in knowing that I have only 1 chemo to go and many friends right beside me.

Wednesday, June 22, 2005

Blood test today for chemo #3

As Barry told me before his last blood test: I really studied hard for the test and know I will pass! I'll go before lunch today for the test.

Tuesday, June 21, 2005

Angels

Blood test tomorrow in preparation for 3rd chemo on Thursday. And then I only have 1 treatment left. Yeah.

A much better day at work today. Even though we were one person short, for some reason it was a better day for me. One thing that truly made my day was when the woman in charge of our center stopped by my desk and gave me a beautiful plant. It was a ceramic angel with a pot attached to it with all kinds of green plants in it.
Quite heavy also. She was given it by two other ladies, and thought it would make a nice gift for me considering all that I'm going through. Boy, what a nice lady. She's a pleasure to work for. I have so many angels in my life.

Tim and I went to pick up a couple of items at grocery store this evening. I was approached by a woman I did not know who quietly said to me "It grows back." I was bald as can be, no head covering. Of course, she was talking about my hair. She had cancer eight years ago and had gone through chemo. She knew what I was going through. I thanked her for her nice comment and for taking the time to even talk to me. Another angel put in my life.

Barry's tooth is less painful today. He will be on antibiotics until it is pulled next week. He will be having blood work done beforehand just to make sure his counts are OK for his turn at chemo next week. Just a necessary precaution.

Been a little over a week, and my pimples on my head are disappearing. No pustuoles are showing, and where there were some they are drying up nicely. Am very thankful for that.

So with all this happening to me today, my life is pretty good!

Monday, June 20, 2005

Barry finally got dentist appt. for late this afternoon. End result: has to have the tooth extracted by oral surgeon next Tuesday. Was given antibiotic. Infection under the crown, where at one time a root canal was done. Doesn't need this added discomfort. And infection probably came due to chemo and immunity system not working as well as normal. Has to wait this long due to being on chemo and need for antibiotics to work beforehand. All in coordination with chemo.

Another busy date at work. What else is new? I guess that's job security. All I do is fix other people's errors most of the day. How exciting.

Tim was able to spend the afternoon at the pool. Got some nice color on his face. That was only place he didn't lotion up. Gone for a bike ride into town now.

I had a new dining creation this evening. Lisa made us ham loaf. I had never heard of that dish. And I must say it was delicious. All our angel meals have been so tasty and deeply appreciated.

I've been given permission to share my friend's name on my blog. It is Michelle R. (David P's mom.) She lives in same town as us. Have only known her since moving to Pennsylvania but can tell from recent conversations that I've had with her that she's going to do just fine. She also has a son the same age as my son. A lot for a kid to go through but these boys will be stronger in the long run. She will be having surgery soon. And now I can be there for her as others were there for me.

Sunday, June 19, 2005

Happy Father's Day!

We got up and went to 8 a.m. mass. This past week I wrote a letter to the church and explained our current health conditions. I told the priest that we are on so many prayer lists, but had never contacted our own church. I asked that we be put on our own list. We were very pleased to see that in the bulletin that our names were mentioned. Afterwards, Barry whined for some bacon and eggs. And since it is Father's Day, I gave in to him and cooked some for the family.
Don't want to see a grown man cry.

Again, nothing planned for the day. I love Sundays because I love my afternoon naps. It is of course a day of rest.

Barry's had a bad tooth ache since Friday. Been in a lot of pain since then. Hopefully will get in to see dentist first thing Monday morning. With everything going on in our lives we don't need that pain.

This past week I learned that a friend of mine has also just been diagnosed with breast cancer. Every day someone new is touched with this dreaded disease. And since it seems to be so common, it's almost not even a shock anymore. And this is sad. This woman, who I will not mention by name for her privacy, will be starting her journey next week when she consults with a surgeon. I have told her that the waiting for results of pathology reports is very difficult. But I have also told her that I'm right here for her, just a step or two ahead of her. I know in my heart that she will do fine and beat it, and that's because I know she has the faith that is needed to do so. I've been where she is but it will get better.

As planned, I took a mini nap today. Took Tim to local mall to buy new video game for our vacation. Later on in the day, Tim went to the town pool for a couple of hours. He and his friend's family closed it up at 8 p.m. A bit cool but he still enjoyed himself.

Saturday, June 18, 2005

Ahhh, it's Saturday

Barry's working this morning and I just rolled out of bed at 9:30 a.m. Felt good just to stay in bed. Slept better last night. Still have the end of the pimples, but do think they are disappearing. Not getting worse at least.

I have nothing planned for the day but to rest. Can't believe my 3rd treatment is less than a week away.

It was a quiet but nice day. Took a nap in afternoon. Went to bed with headache and woke up with one. Not a bad one though. For relief I had some caffeine soda with excedrin. Seemed to work. The boys continued to do lawn work as I cooked spare ribs on the grill.

Friday, June 17, 2005

Another week closer to the end of chemo

Tossed and turned again last night but will go to work. At least I know I have a script for another antibiotic on hand. Hopefully by end of day I'll see improvement, right now I don't see any.

After work I got the oral antibiotic script filled and took one of the pills. I do think the pimples have improved. Not as many pustuoles. I think that's the correct word. Not as red either. Am thankful for that.

We went out to the Chinese buffet for dinner. Pretty good food. Really enjoyed the butter shrimp they had. And then we all did lawn work.

I got my new vacuum today. I'll just tell Barry on Sunday that it's his Father's Day present! Our old one was quite old and needed to be replaced. This one sure does suck. Should see all the debris. Eileen and Maureen, you would be proud of me.
Actually doing some housework.

Can you believe that Bill Clinton took time away from Monica to post on my blog today. That's truly a good friend. I never know who will post next. Keeps me guessing and on my toes.

When I go to the Cape next month, I'm planning on a trip to Nantucket with my sister. This will give me a chance to see my friend Mary Lou who I've known for an eternity. She's another one of my bloggin' friends. This will give us a chance to see the old island. Haven't been there in years. They have a hi-speed ferry which is quite nice to take over.

Thursday, June 16, 2005

Not working today- AKA Pimple Head

I was up at 3 a.m. with such a sore head from the pimples. I ended up taking a percocet and figured then that I would probably not go to work today. I thought it best to see the doctor again today as a follow up to my appointment the other day. I want an opinion from an expert on the condition/status of these pimples. I can be sitting and at the same time I am aware of the pain in the area that they are clustered. Almost as if they were alive. Strange.

My appointment is this afternoon. And since I'm not at work, I truly can do the best thing and just expose my head to fresh air rather than cover it. Considering everything I'm going through, I haven't used much time since going through chemo.
Days of chemo and days following chemo. Not bad. And if I get different drug next time for anti nausea, that may take the head aches away so I can work the following day.

Saw nurse practitioner this p.m. Said this is not a common side effect. Inflammation/irritation of hair follicles. If it's not better in couple of days, she has written up a prescription for an oral antibiotic for me.

Tim went and saw Batman movie today with his buddies. Said it was a good movie. 2 hrs. long.

Our dinner tonight was brought over by Sally, Tim's English teacher. She used to watch over Tim during her class after she knew what we were going through. A guardian angel. The dessert was provided by Tawnee, a mother of one of Tim's classmates/fellow bandmember. Everyone's generosity is truly amazing and deeply appreciated. It's hard to express in words exactly how I feel.

Wednesday, June 15, 2005

Just call me zit head

Didn't sleep well last night due to sore head from pimples. But at least am on medication cream for first whole day today. Not an attractive site on top of my head.

Wore my bandana like yesterday, 1/2 the day. Felt it was more important to allow fresh air to it than to worry about how I looked. Somehow, God gives you the strength that you never knew you had.

When I got home, Tim told me that someone was stopping by with some dinner for us. An unexpected surprise. It was one of our neighbors who had heard about us. Every day I meet an angel of some kind. It amazes me to the point of just shedding some tears in appreciation of their kindness. They are not bad tears, but tears of love.

Thanks.

Tuesday, June 14, 2005

Had my alarm set for p.m. instead of a.m. so am running a bit late. Will post more after work. Must have been sleeping good to not be looking at clock like I usually do.

The pimples seemed to be growing wild on my head so I called the cancer center. They eventually had me go in to see the nurse practitioner Debbie in the afternoon. She examined my head and prescribed bactriban as an anibiotic. Also agreed that not covering it is good medicine. And I did take the bandana that I was wearing to work off at lunchtime. Thank goodness I'm not vain and need to be perfect in the looks dept.! The way I look at it, it's not my chosing to look the way I am and I'm not going to be embarassed about it.


While I was talking to Debbie, I mentioned the headaches that I had after treatment. She said that one of the anti nausea meds, kytrol, can cause headaches. She said that at the next treatment I could be given another equivalent drug. I just said that it better be as good because I have not been sick yet. She also had some blood drawn to do a CBC since I'm mid-cycle for this treatment. By the time I left the center, she had consulted with Dr. Garrow about my headaches. He has made notes about it for the next cycle.

Monday, June 13, 2005

Another week

Barry will be going strawberry picking with Tim this morning. Their annual trip to the Amish farm. Can't wait to see how good they are this year.

I've started to get the pimples back on my scalp. Last time I thought they were the sign that hair was coming out. Now I've heard it's just because of chemo.

Off to work.

Barry and Tim picked 6 quarts of strawberries in what Tim tells me was 15 minutes! And they are beauties. Smashed some, froze some and the rest I dipped in chocolate.
So good.

Tim got his own pool membership today. After we ate our delicious meatloaf, he went for a couple of hours to the pool. I think that's one of our better investments for the summer. He met a few of his friends down there and really enjoyed himself.

And my scalp is sore from the pimples. Mostly on the part where my cowlick would be.
Going to call doctor in a.m. to see if I can put anything beside cortisone on it. Am thinking that it's perhaps better not to cover it, but then it's not that attractive. I may just say the heck with it and go hatless for a while at work tomorrow.

Sunday, June 12, 2005

Barry's turn with Neulasta

The neulasta is right on schedule. Barry's in bed now feeling the many aches in his body from the shot on Friday. Only thing you have to think is this: it's doing what it's supposed to be, and tomorrow it will be history. A couple of years ago this drug wasn't even used. I think his aches are much stronger than mine. Worst thing for me was the headache, but I'm ready now. I have bought excedrin since it has caffeine in it which people say is what you need.

Another nice day here. Spent most of it inside. Was able to take a small nap.
Then Tim went to play soccer with some of his friends. All in all, a day of rest for me. And why not, it is Sunday a day of rest.

Saw sign this weekend that strawberries are ready to be picked. That means Barry and Tim will be picking lots of berries this week. Mmmmmm. They were running about 3 weeks late we heard.

And Maureen, had I gone topless for real... I think I would have definitely been banned from the pool! Or else scared everyone and had the pool to myself. Geez, that's an idea..

Cooked both days on the grill this weekend. Steak yesterday and chicken today. And dad, I cooked it just right. A little burnt around the edges. Made some homemade potato salad to go with it. I also want to thank my food angels this week: Kelly, Jan and Carol a neighbor of mine. We certainly have wonderful people in our lives. Thanks.

Saturday, June 11, 2005

A pretty nice day in Pennsyvlania

Barry got up earlier than me, I stayed in bed until 9. Going to try to get my scooter inspected today and then head over to another Relay for Life walk that the Bank is participating in. Just going to walk a few laps for the cause.

I walked for about 1/2 hr. at the Reley, came home and washed my scooter (which I couldn't get inspected) and my truck. Now Tim and I are headed to town pool. I might even go topless! (bald) Very hot and humid today.

Well, Tim and I did spend a couple of hours at the pool. And with Tim's support he told me to go topless, shed the hat and go in the pool for nice cool dip. So, of course I listened to my smart kid. And afterwards, I did some sunning (with suntan lotion. I didn't burn so I must have used just the right amount of lotion. It felt so good just being there and getting cooled down. A perfect time.

We had ice cream at Dutch Isle today. Even Barry had a cone in the evening.

All in all, a pretty nice day in Pennsylvania.

PS. Just got off web cam with Donna C. from Long Island. The wonders of technology!
Pretty cool invention.

Friday, June 10, 2005

TGIF

Don't think Barry slept at all last night. Effects of one of the anti nausea drugs. will be pooped later today. Tim's last day of school and I have early meeting this a.m. Talk later.

When I got up this morning at 6, Barry was vacuuming kitchen floor in preparation for cleaning it. Hadn't slept a wink. And by the time I got home today, the cleaning had continued throughout the house. The effects of the drug just keep on going. Now I truly know how bad a cleaner I am! Anyone want to rent him after his next chemo? Does a great job. It's now 10 p.m. and he basically hasn't slept since waking yesterday morning. But am definitely sure this weekend he will catch some z's. He did go for his neulasta shot this p.m. to build up his white blood cells.

Can't believe how fast this week went. Pufff and it's Friday. Pufff and the school year has ended and Tim's in high school. Time goes by too fast.

Thursday, June 09, 2005

Round 2 of chemo for Barry

Barry has an early appt. this morning for Round 2. I'm going to join him for lunch and bring him a Panera sandwich. Am taking an extra 1/2 hr. for lunch. I went with him for his first chemo but it really took a lot out of me mentally due to being so close to my own treatment. I'm only a phone call away from him. I won't be there physically but will be there in spirit like all our bloggin' family and friends.

I did eat Panera with Barry today. It truly is not the best place to have lunch, but I thought it was important to spend that time with him. He was there a long 6 1/2 hours for treatment today. That is a long time for him. So much longer than my couple of hours. He said he didn't rest as much as when I was there on his first treatment. He did enjoy the time I spent with him and of course the sandwich. I think next treatment I will go with him. It's one of those things that I don't know if there is a right answer. I didn't go with him and I was double guessing myself while I wasn't there. Will have to talk it over with him.

He met with his doctor before the chemo. He will have a scan done after the 3rd chemo to see if nodules/cancer area have changed in size. If smaller, he will continue on with more chemo. If larger, a more aggressive chemo drug will be given to him. So we are praying for a positive scan at that time. Going through chemo is something that no one should have to go through.

Barry, you did great today!

Wednesday, June 08, 2005

Barry's blood work

Barry goes for his blood test today in preparation for his 2nd chemo treatment tomorrow morning. I'm not going with him as it was very tiring for me last time. Plus he sleeps which makes the time go fast for him, but not for me. If he should need anything, I'm just down the road. Will visit him at lunch time.

Barry did his blood test and results are perfect for Round 2 of chemo tomorrow.

Tuesday, June 07, 2005

Each day does get better

Slept a little better last night. Had trouble early on since I felt like I was getting a cold, nasal drip and such. Got up and took some sudafed and it doesn't appear to be a problem today. Will keep an eye on it as I don't need to get sick.

It was a much better day today, just not having a headache is a blessing.

And you can tell by my short blog, that life is OK right now.

Tim went to town pool again today. I think it's time for him to get his own membership. He really enjoys swimming.

I'm pretty excited that I will be able to go to the Cape in July for a short but well needed vacation. Barry and Tim will also be going. I will fly there and they will take the camper there. We'll be going at different times, but overlapping on the weekend. This was unexpected. This way we can see both families in between chemo treatments. I can't wait! I'll be returning just in time for my LAST treatment.

Monday, June 06, 2005

A new week

I have just a smidge of a headache left right now. Was up and down most of the night, but that could mean a good night's sleep tonight.

The headache is finally gone. Shhhhhh. Don't want it to come back.

Just a short blog today. A tiring day for me. But I do know that it will get better in a couple of days.

Thanks for all your nice comments.

Sunday, June 05, 2005

Neulasta kicks in

Am going through growing pains now. Started during the night. Barry tells me to get out of my cave (bedroom) but that's where I'm most comfortable. Nice and dark.
Temps in high 80s outside so I'm not going there. Back to bed now. Not going to accomplish much today but that's OK. Just wish I could get rid of headache that I've had past couple of days.

I want to thank Jody for bringing over a casserole dish. It at least got me dressed and out of my room. And it was tasty. She came when I most needed a hug. She's been through what I am going through. This weekend is just one of those sucky weekends. No other way to describe it. Just have to get over the next couple of days and it will get better.

Saturday, June 04, 2005

Day 3 following Chemo

Slept better last night. We both were in bed by 9 p.m. Still have the mild headache that I am babying because I don't want it to get worse. No effects of neulasta, but am anticipating it.

Tim has some kind of band outing today. Think Barry will bring him to school for that, I intend to stay put but that could change. Hard to plan on doing something when you know what could be coming as far as possible aches.

No energy today. Did manage to make scalloped potato with ham just now. (box mix) My contribution for the day. Headache continues.

It's now 8 p.m. and I still have headache in back of head. There all day. No signs of neulasta, not that I'm complaining. Just wondering if and when it's going to come. Spent most of the day in bed, not sleeping at all, just with eyes shut to relax.

Nite all.

Friday, June 03, 2005


These pictures are taken by our son Tim, who continues to be our daily inspiration. Posted by Hello

Biker Dude Barry (no moustache) Posted by Hello

We are Survivors! Jane and Barry. Jane's second day of round 2 of chemo. Posted by Hello

Day after Round 2 Jane

Am not going to work today. Still have headache and was unable to sleep AT ALL last night. That's side effect of the anti-nausea drug decadron. Literally watched each hour go by on my clock. Got Tim on the bus and heading back to bed with new meds.

Have an appt. at cancer center this a.m. and will also get my neulasta shot. And this will cause the flu-like symptoms throughout the weekend. At least I know what to expect. Even though I don't feel up to par now I do realize I have a lot of friends looking out for me and wanting to know how I feel. That's why I post anyway.

Continue to have slight headache during the day. Am trying to not have it get any worse. Am taking percocet for it. This morning Barry asked me to cut his hair. Wasn't on my to do list but I did it. Went very short but ended up shaving it all off due to blotchy areas that had already come out. He shaved the moustache first.
Had never seen him without one. So, Tim: we are officially coneheads. And the pictures that follow will prove it. Just not taken on couch like you spoke of.

Afterwards, we stopped by Barry's job to show his boss anc co-workers and then we went to the cancer center for appointment and for my neulasta shot.

Got home, ate a little lunch and got into bed for about 3 hours. Got up so I could see Tim's reaction to Barry's new "do". He said he looks like his father. Most other people say he looks younger. Either way, he even may consider keeping it like this after treatment. Could be like the St. Laurent boys in Az.! There was a reason we went to see them in February I guess.

Had nice visits with some Angels this week: Julie, Sue, Michelle and David. Again, thanks for being there.

Thursday, June 02, 2005

Round 2 of chemo DONE: 50% complete

I continued to sleep well last night. Am thankful for that. My appt. is in 3 hours and 1 hour before I take my anti nausea drug Emend. I meet with oncologist before the actual chemo to go over my blood tests and to review how I'm doing. Barry is taking me to the appointment. Already it's 57 sunny degrees. After Tim gets on bus I may even sneek back into bed for a few minutes.

PS. Never did go back to bed.

I met with Dr. Garrow before my chemo. He did explain that the headache(s) that I had last cycle are chemo related and I should just take the strong stuff like percocet for relief. Tylenol doesn't cut it. All my other blood tests (liver, etc.) also came back perfect. Good news. I then went to my 2nd round of chemo. The adriamycin takes about 15 minutes for Kendra the nurse to manually syringe it into the IV on my arm. Then the second drug is administered by IV drip for about 40 minutes. It's relatively a short period of time compared to Barry's treatment but is mentally draining for me. On the pillow beside my arm with the IV is my HOPE charm that Linda gave me. HOPE goes with me everywhere. While sitting with me, Barry was feeling his moustache and guess what: the hairs are coming out. This had been questionable as to whether he would or wouldn't lose it. He's had moustache since he's been about 18/19 years old. Will probably shave it tomorrow. Wanted to give the guys at work one last look at it! My good friend Jody told me this: "that every single hair gone signifies cancer cells GONE too!!!" A direct quote from her last night. As Barry and I left the center, we noticed our names on two Relay for Life tribute forms. Cindy C. was so kind to apparently donate monies for another ACS walk that is coming up. Thank you twice for both Barry and I. It did not go unnoticed.


After the chemo, we went to get some items at grocery store and then we went to a new Chinese buffet nearby. The food was delicious and inexpensive. I really enjoyed going out to lunch since we didn't do that the first time. A much needed treat. The only effect I was feeling after chemo was when I was shopping I started to sweat (under scarf). And now when I sweat, it's visible on top of my shiny head. Not hidden under any hair. Noticed that last night when I used hot tub for first time in awhile. On way home, the scarf was taken off quickly. I had wore a long sleeve shirt for treatment since room is often cool. I think being hot and the situation just worked against me to the point of making me feel like I was going to pass out. My sister attributed this to the drugs and not having any real food since early morning. Couldn't wait to go to bathroom (I tell it like it is, I'm truthful) where the urine comes out red (chemo drug) along with diarrhea. I immediately went to bed to crash. It was about 3 p.m.

Rested for a couple of hours and then cut up some ham for Tim's dinner. Boy, was I once again thankful for Angels on earth. I heated up some homemade chicken soup for the soul. The headache has started and I've already taken some percocet. Going to fight right back. My jammies feel so good and will head back to bed soon.

I go back to cancer center tomorrow for my neulasta shot in morning.

As I was resting, Sue who works with Barry stopped by to deliver a delicious jello creation made with whipped cream/pineapple/nuts. As they say, there is always room for jello and that was the perfect time. Heard her at the door and got up to say hi to her. Just another Angel in our lives. Headache continues but if that's all, can't really complain.

Wednesday, June 01, 2005

Blood work today

Am hoping today is calmer day at work. Enough stuff on my head as it is (or actually there isn't! bald you know!) I'm going for blood work at Cancer Center in preparation for round 2 of chemo tomorrow morning. For about 2 weeks I've been feeling practically normal and now I have to go through this again. A bit depressing to be truthful, but on the bright side I will be 1/2 way done chemo. It's just human nature I guess.

Have taken brush and hairdryer out of my bathroom. Now Tim has so much room in there. Don't need those items for awhile.

Just a quick update. I had blood work this a.m. and my white blood cells are PERFECT. That is good news. On to round 2 tomorrow.

I hope you all realize how much you mean to me. I've received so many well wishes lately that it truly warms my heart. Wishes from people that I've never even met but are now part of my life. I still don't understand, and I will not try to, how you can spend time with people on a daily basis and they don't all wish you good luck especially when going through chemo. I've never been that way so it's puzzling. But I guess that's the way some people are.

I wear my hats and new earrings to work daily. Love them both. When I get hot, I take the hat off and go au naturel. Doesn't bother me a bit. It's not my doing that I am this way so I will continue to shine (physically and mentally) in their presence.

Signing off for today. Already miss American Idol on TV.