Sunday, April 30, 2006

A nice weekend

Looking back it was a pretty nice weekend. Yesterday Tim and I did yark work. It looks great. I would rather do outside work than house work! And with the high price of gas, $3.00 gallon, I took my scooter out a couple of times to do store errands. It was a nice sunny weekend for a change. Tim was a referee for a soccer game.

Saturday afternoon I served as eucharistic minister for the first time at my church. I was "captain" and was not nervous for a bit. I think it's because God was on my side. It felt so good giving to the church. I think I'm doing as well as I am because of my faith.

Today Tim had a soccer game. It was so sunny that he ended up with a nice sun burn. I do enjoy going to see him play, but have to admit I enjoy the social aspect even more. It's a chance to talk with good friends.

I was able to even take a nap this afternoon. Tim went to his confirmation rehearsal this evening. He makes his confirmation this Thursday. Where does the time go? A friend of ours is going to be his sponsor. He's been a good friend to us. Wish they had allowed parents to be one, but that's not allowed. Would have asked his Godmother or Godfather, but both live out of state. And with the ceremony on a weekday that wouldn't have been convenient.

As for Barry, he's been feeling what I think are the aches of neulasta. I had him stay home from game today so he could rest. More important than going to a game. He never complains, just keeps on going. Even cooked dinner on the grill yesterday for us.

A nice weekend

Looking back it was a pretty nice weekend. Yesterday Tim and I did yark work. It looks great. I would rather do outside work than house work! And with the high price of gas, $3.00 gallon, I took my scooter out a couple of times to do store errands. It was a nice sunny weekend for a change. Tim was a referee for a soccer game.

Saturday afternoon I served as eucharistic minister for the first time at my church. I was "captain" and was not nervous for a bit. I think it's because God was on my side. It felt so good giving to the church. I think I'm doing as well as I am because of my faith.

Today Tim had a soccer game. It was so sunny that he ended up with a nice sun burn. I do enjoy going to see him play, but have to admit I enjoy the social aspect even more. It's a chance to talk with good friends.

I was able to even take a nap this afternoon. Tim went to his confirmation rehearsal this evening. He makes his confirmation this Thursday. Where does the time go? A friend of ours is going to be his sponsor. He's been a good friend to us. Wish they had allowed parents to be one, but that's not allowed. Would have asked his Godmother or Godfather, but both live out of state. And with the ceremony on a weekday that wouldn't have been convenient.

As for Barry, he's been feeling what I think are the aches of neulasta. I had him stay home from game today so he could rest. More important than going to a game. He never complains, just keeps on going. Even cooked dinner on the grill yesterday for us.

Thursday, April 27, 2006

MUGA scan for Jane

I was told by my primary doctor that my echocardiogram results indicate a need for further testing, done via MUGA scan. This will be done next Wednesday. It's a known fact that adriamycin, the chemo drug that I was on last year (and Barry is presently on) can cause damage to your heart. This test has been scheduled by a new cardiologist I've been told to see. It's a non invasive test with excellent results, better than echocardiogram. And since I had one of those done before chemo, I'm looking forward to actually seeing what damage if any there is with my heart.

Barry continues to do well. I don't even think he napped at all today. As usual his face is bright red/flushed from steroid. Always happens the first few days. He had blood work and neulasta shot today. Neulasta is the $5,200 shot in the arm! Good stuff. Don't know how the medical field can price these items so high.

Rather than cooking, we went out to dinner. Now we all have leftovers. So much food.

Wednesday, April 26, 2006

Barry comes home

I just looked back at my blog from 8 weeks ago when Barry had his first treatment in Pittsburgh. Most of the things remained the same today: traffic into the city, able to walk to truck and good ole naps in the afternoon. He's doing very well considering what he is going through. He's enjoying his own couch and bed, taking it easy.

I just remembered that I never wrote of Tim's trip to Disney. Unfortunately, it rained on their parade. But they still had fun. I asked Tim what the best part of the trip was, and his answer was the fireworks at night. One night he stayed at the park until it closed at midnight just because he was able to do so. I sent him with a disposable camera and it never left his bag! He did take a few pictures using his cell phone camera that I was able to see. If anyone sends me a good picture of him, I will certainly post it. It was very hot when he was there.

Tuesday, April 25, 2006

#2 Chemoembolization

Tim arrived home last night at 10:30 p.m. after a 23 hr. bus trip. He'll be staying home today since he's not feeling himself.

Left at 4:30 a.m. this morning to go to Pittsburgh for Barry's second chemoembolization procedure. We were told to be at the hospital at 6 a.m.

It was a very long wait for the procedure. We got there at 6 a.m. and the actual chemo treatment didn't start until 1 p.m. From 6 a.m. until 11 a.m. we were in one unit with the IV's connected, and then moved to the radiation/m.r.i. department for another two hours. This delay did not happen last cycle, and hopefully won't happen again. The good thing was Barry napped a lot during this time.

As soon as he was taken for the procedure, I went to the cafeteria for lunch and to get a sandwich to go for Barry in the evening. When I found out the room Barry was going to be placed in, I went there and waited for him. He was brought there at about 4 p.m. From the time he arrived and until the time I left at about 7:30 p.m., he never asked for a painkiller like last cycle. He slept most of the time which to me is a blessing. Once again, a patient nearby was told by their doctor that they have cancer. There's just too much of this disease out there.

Barry's doctor, Dr. G. stopped by before I left. As I've previously posted, he has read my blog. He may not be posting any comments, but he is a reader. Actually made a comment to me about how I write so much in my blog, not leaving out anything. Said I would probably post which parking garage I was parked in. Well, he's wrong about that! I'm not going to tell you. He agreed that Barry did wonderful today. And is pleased with his chemo treatment today.

As I drove home from the hospital so many things went through my head. And they were good things today. So pleased that Barry did so well today. As Beckster has said, he's such an ox. A very strong person. In all that time we waited, he never complained.

And above all, I know Who is to thank.

Friday, April 21, 2006

Turkey talk

I wish you could hear what I'm listening to right now. There are literally 2 turkeys outside my window gobblin' away. I talk to them and tell them how beautiful they sound, and they gobble right back to me with their feathers out full. They are gorgeous. Have never heard such talking. They better beware, turkey season starts tomorrow for young hunters only. The adults start later.

Thursday, April 20, 2006

On the road to Disney

I brought Tim to the school at 6 AM. The bueses should be arriving at Disney tomorrow at about 7 AM.

After I got home from work today, I decided to cut the lawn for the first time this year. And of all times, it was when Tim made his first call to me. Unfortunately, I missed his call. He had made it to S. Carolina.

I did call Jody who is a chaperone on the trip. They had stopped for a bite to eat at about 8:30 p.m. She said that the kids were talkative for about the first 1/2 hr. and then the bus became quiet. A lot of tired kids. The trip has been good and she said the time has actually gone by at a good speed. She told me that Tim and his friend are sitting in the last row on the bus, directly beside the bathroom. One plus she said was that they have extra leg room. Knowing Tim, I'm sure he doesn't mind the location of the seats.

Well, it's 10 p.m. and he hasn't called me. Had hoped that he would but know he's in good hands.

Wednesday, April 19, 2006

Band A Rama concert

This afternoon I went for an echocardiogram of my heart since my EKG last week was abnormal. Not sure when I will get the results. Actually I can't wait to see the results, as compared to a year ago before I started chemo and radiation. Have heard that the chemo I took can do some damage to your heart. Heck, what else is new...

Tonight I was able to go to Tim's band concert. Eileen, this is the one you went with me last year. Remember trumpet girl? Didn't see her tonight.. Of course, the kids played so well. They will be leaving very early in the morning for the bus trip to Disney. Wish I could stow away in the luggage and go. But as I've said, there will be other trips to go on.

Tuesday, April 18, 2006

Kind thoughts

I returned to work today after being off since last Thursday. So many people stopped by my desk to ask how my surgery went and how Barry was doing. We truly have a lot of people on our side.

Took Tim for haircut after I got my nails done. He's leaving early Thursday a.m. for a bus trip to Disney with the band. His school is marching at Disney this Saturday. I'll truly miss him but I know he's in good hands. Just wasn't the time for me to chaperone. Will save that for another class trip. Hopefully he'll take a few pictures for me. I'm sending him with a disposable camera. Do you think he'll take any pics? I'm optomistic that he will.

Monday, April 17, 2006

CT Scan

This morning I went with Barry for his first CT scan since the chemoemolization procedure that was done 7 weeks ago. This was done in Pittsburgh. Afterwards we met with Dr. G. who is Barry's doctor at that hospital. Even though the CT scan findings had not been officially written up, Dr. G. told him that by site the tumor appears to be the same size. And we have to be thankful that it doesn't appear to have grown. The actual findings of the CT scan will be sent to both Dr. G's.
So the plan for next week is to once again to treat the same tumor. This will be done next Tuesday.

Update from Dr. G: CT scan showed no new lesions/no change in size.

Sunday, April 16, 2006

Happy Easter

After church this a.m., I cooked the "boys" breakfast. And for lunch we had a spiral ham. And unlike last year's ham, it was not frozen. (inside joke)

At Tim's suggestion I took my scooter out for a ride. It was the first time this year that I've ridden it. And with gas at almost $3 gallon I think it will be used a lot this year. It felt good to be on the bike. As usual, Tim had a good idea.

Tomorrow is Barry's appt. with his doctor in Pittsburgh. First he will be having a CT scan. Hard to believe it's been 7 weeks since his first chemoembolization procedure. I'm not praying for a miracle, just a reduction in the size of the one tumor they treated. That's all I need at this time and the focus of my attention.

Daffodils are a sure sign of spring.

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The Easter lilly is one of my favorite plants. My Christmas cactus is also in bloom. That was the case last year also.

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I just wanted to wish you a Happy Easter.

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Saturday, April 15, 2006

Yard work

Today was one of the top 10 days weatherwise. The sky was so perfect, even the stars are all out tonight. Can't beat it. Just gorgeous weather.

We spread mulch again in the garden and around the house today. Not even cancer or breast surgery can stop this family in doing good old fashioned yard work. I just love being outside doing gardening. Sure does beat housework, and Barry can attest to that for me. The yard looks great. We're actually a few weeks ahead of our normal mulch spreading. Took nice nap after all the good work.

We went out to dinner with 13 friends and family. Again, I just love this community. Full of friendship and just nice people.

Off to get cookies out of oven. Happy Easter!

Friday, April 14, 2006

Resting up

Took phone off the hook in the morning so I could rest without any phone calls. Ended up getting out of bed at 10:30 a.m. Slept pretty good actually.
Spent today with Barry and Tim which was nice. I've felt pretty good with this surgery. I had more discomfort with biopsy done a few weeks ago. Perhaps I'm just getting tougher!

Thursday, April 13, 2006

Surgery today

We got to hospital at 7 a.m. I had the breast localization procedure at about 8:30 a.m. This is when they sat me in chair and did mammogram slides after inserting a needle with wire into left breast. A bit uncomfortable but that's life. And they continued to take slides to have the wire mark off the area where the clip had been inserted during the biopsy a couple of weeks ago. This is done since the area of cells they want to remove would not be noticeable by naked eye. By the last slide my body got clammy and the nurse noticed that. She knew it was time for me to lie down before passing out. Could not wait to lie down and feel the wet cold cloth on my neck. My blood pressure certainly wasn't as it was a short while before.
Surgery was delayed from 10 a.m. until 11:30 a.m. due to doctor being late. It took about 30 minutes. The last thing I remembered was mask going on my nose and then I was out. Then in recovery room.
I got back to my room at about 1 p.m. and was able to watch my soap opera. We left the hospital at about 2:30 p.m. On a scale of 1-10, my pain was about 2 or 3. Felt pretty good. Similar to first surgery I had last year. Sure does beat having a drain put inside. Before leaving they did give me a percocet. Once I got home and had a slice of pizza, I went to bed and slept for 3 hrs.
Got up and we went out to a late dinner. Again, I continue to feel good and am thankful for that.
Thanks to all for your continued prayers for me and my family.

I am off tomorrow to rest and to take it easy.

Tuesday, April 11, 2006

Update

Yesterday afternoon Barry called me at work with message to contact my primary doctor about EKG results. Needless to say, I called the office immediately. The office manager would only tell me that the doctor needed to see me in person to discuss the EKG abnormality. And I was told he was not able to see me yesterday. Today was ruled out since I had an all day work related seminar. The earliest I could see anyone would be Wednesday, and that would be with the physician's assistant. I asked to speak directly to the doctor and was able to do so. He would not go into details of the findings, but only said that I would need to be seen in order to get clearance for upcoming surgery. At my persistance, I asked if I could just wait in his office until he was able to see me at end of day. He agreed and told me to come right there. I left my job at about 2:30 p.m. yesterday in tears. What else could go wrong were my thoughts?

After only about an hour, I was able to see my doctor. He basically did a physical on me, asked me if I had been experiencing shortness of breath or chest pains. And I told him no to these questions. The EKG does show some abnormality, but considering my upcoming surgery is low risk and my physical showed nothing negative he signed the release for the surgery. He has scheduled an echocardiogram for me next week. I had one of those tests right before chemo since chemotherapy drugs can damage your heart. I am very interested in finding out the results of that upcoming test. I have spoken with my sister and she had similar findings with an EKG last year and did follow up stress test. For now, I'm focused on my surgery this Thursday.

Today I was able to attend an all day seminar which was so enjoyable and informative. The guest speaker was Frank Abagnale who was portrayed in the movie Catch me if you can. Quite an interesting speaker.

Tomorrow I work and then I'm off Thursday and Friday. And on the 17th Barry and I will be going to Pittsburgh for his CT scan and follow up with specialist at hospital. A busy few days.

Saturday, April 08, 2006

Proud to walk in the Relay for Life

At 10:30 a.m. it is a sunny 39 degree day. At least it's not raining.

Heading to Relay for Life shortly. Looking forward to it.

Was very pleased to have Barry walk with me at the event today. And to have Tim walk the second lap with us as a caregiver. Very honored indeed. It was a cool but sunny day. I was able to once again walk with other people who have been touched by this terrible disease. A disease that touch can male and female, young and old.

In regards to not everyone wanting to be in the limelight, I agree with that statement. I consider myself one of those people. Anyone who truly knows me can attest to that. I have never felt a need or desire to be a focus of attention or public interest. I've been dealt an obstacle in our lives and I don't intend on burying my head in the sand, but rather to hold my head high and to be a person of strength. If I can touch just one person as others have touched me on my journey, than that is a wonderful testimonial to my life. And touching a person can be done just by having someone read my small blog.

Tim and I went back in the evening to see all the luminaries lit. Truly an emotional event to see. As the names are read, honored or in memory of, the track was filled with people walking in silence. It's just a shame that the list of "in memory of" is
so long.

Friday, April 07, 2006

Relay for Life is tomorrow...

Am looking forward to walking once again at the college's Relay for Life walk tomorrow. Last year I walked after just hearing the word cancer a month prior.

Tim will also be walking with his Latin club like he did last year. I'm so proud of him. Today he was interviewed by the college's radio station (which will probably be aired over the sound system tomorrow at the Relay) at the suggestion of his Latin teacher. She knows what we've been going through and thought he would be the perfect person to be interviewed. He also raised a lot of money with the help of our friends and family members. I got a beautiful email from his teacher this afternoon.

"His commitment to this was amazing. I was really impressed. You have quite a son, but then you already knew this!"

She will also be walking at noon tomorrow with the survivors. I'm looking forward to joining her and all the other angels that will be there. I hope that Barry will also join me. But I do understand that each person is different and I'm not going to push.

By the way, Tim was asked if it was difficult to raise the money. His response: "not really. We have a lot of friends and family who have supported us."

I told you he was the best! Thanks to all of you who gave generously to this cause.
And of course, you know pictures will follow..

Thursday, April 06, 2006

Bye Bye Birdie

Tim and I went to see High School performance of Bye Bye Birdie tonight. It was the first time I've ever been to a school performance. You know the actors are good when you truly believe they are who they are playing. I truly enjoyed the play, especially since it was a musical. And my good buddy Megan (who always is there with a hug for me) was wonderful playing the part of a s....

I can't wait to see another play.

Tuesday, April 04, 2006

Thought provoking

There is a local establishment in the town where I work which always displays good phrases. This is the current one which got my attention today:

To plant a garden is to believe in tomorrow.

A very true statement.

Sunday, April 02, 2006

I continue to love this town...

Tim had his first outdoor soccer game today. We took his buddy with us. I was so happy when I was asked to drive him. For once I could help out as many have helped me out. It's so nice to know that you have friends. It was great seeing all my soccer friends at the game. A very nice group of friends. As much as I whine about the season, it is enjoyable being part of such a nice group.

After the game (which they lost 2-1) we had to get back briefly on a toll road. This particular entrance has no person working the booth, just the machine to drop the coins in. The vehicle ahead of us was stopped at the booth. It happened to be a boy on the soccer team. Could tell he was looking for change. So I had Tim's buddy get out of truck and give him some coin. He ended up putting about 40 pennies into the machine! Was quite funny to be part of.

After bringing Michael home, Tim and I went to gas station to get Subway. Only in a small town would you see a man pull up to the pumps driving a John Deere tractor!

These are just a couple of reasons why I love this town..

Saturday, April 01, 2006

Barry Barry Barry Barry Barry Barry Barry

OK. Let me see. Barry's taking each day as it comes. Continues have discomfort on the side where the tumor(s) are. But is thinking positive that this is the chemo doing it's thing. He hasn't been painfree since this first direct chemo procedure done on 2/28. 7 weeks from that date he will have CT scan, which he has actually asked me if I was going to go with him. Now I definitely will. And then the following week is the second of these chemo treatments. He did some outside yard trimming yesterday which worked up a good sweat. The yard is looking pretty good. Not that it matters since we are in the process of finally getting sewers in our neighborhood. They are slowly creeping up to our area. And then our front and side yards will be destroyed. But as we know, grass can be planted. If anything, once they are done we want to make the front yard more level. This way we would be able to drive the mower to cut it rather than Barry having to do it by hand.

Barry, Tim and I went out to Mexican food for lunch. And shortly I'm heading out to dinner with my friend the Beckster. Barry will be staying home to supervise Tim and his classmates while they prepare for an English presentation.

Time to get ready. I hope Guess Who is happy now that I've talked about Barry.

P.S.
Back from dinner with my girl friend. And do you realize it took me 50 years to actually go out to dinner with a girl friend. The whole time I don't think our mouths shut once! Felt good to be able to chat with a friend. THANKS, Beckster.
Our next outing will be with hubbies and kids.