Wednesday, February 27, 2008

Another "special" day for me

This afternoon at work I had flowers delivered to me from my sister Maureen. As she has told me, they were not for my birthday (PS, which is Monday). They were a "just because" bouquet of daisies and carnations.

Then I went to get my hair cut after work, and I was presented with a gift card for a hair cut from her. That was my birthday gift. She had to do some detective work to have these two things occur so nicely. Had to call the College last week for the department and address of where I work, and had to email Barry for the location of where I get my hair/nails done. Heck, I never knew that Barry knew where that was! I guess he does pay attention..

So, here's to another special day for me.

THANKS

Tuesday, February 26, 2008

Mammogram is fine!

Yeah, a test came back fine. I'm pretty pleased about that.

I got to the hospital early since I wasn't sure how traveling would be with the weather. My appt. was at 3:00 p.m. and I think I was done there by that time. They use the new digital mammogram, first time I've had that done. So within minutes the results are done, and much more accurate than the analog mammos.

I then went up a floor to meet with Dr. B. who heads the Magee Breast Cancer Center.
It must have been my special day, because I just had taken my coat off and my name was called. I only had to wait about 5 minutes after having my vitals taken before the doctor came into the room. Now that is a miracle in itself. God was truly on my side today!

The plan is this: after my CT/PET scan on March 11th, I will contact Dr. B for the results. And from there he will help me with any treatment plan that is needed. You can't beat having a Pittsburgh doctor on your side. I will also be seeing the local oncologist here. Am sure if need be, the 2 doctors will put their heads together if there is a need.

Again, a great day as far as testing goes. And the mammo is done for another year.

Have you had your mammo lately?

Monday, February 25, 2008

Tomorrow-mammo and consulation at Magee

I will work a few hours in a.m., and then go have my 4th radiation treatment. Then I will be heading to Pittsburgh for my yearly mammogram appt., followed by a consultation with the doctor who heads the breast cancer care center at Magee Hospital. He's asked me to bring all my records/mammos since being diagnosed in March 2005. The mammogram is at 3 p.m. I'm not looking forward to the drive as out of the blue the weather prediction has gone from a rainy day to a sleet/rain/snow day. Yuck. Not my kind of driving day.

Thursday, February 21, 2008

First radiation treatment done....

For lunch I had a few minutes of radiation...along with an egg salad sandwich. Can't beat that combination, can you? You know you're in the right place for radiation when signs are all about you stating "CAUTION RADIATION." Very comforting. It was like old times as I lay down in a dark room, with a massive machine hovering over me, radiating my chest. For most of the time I just counted numbers to pass the time. You don't feel anything but you certainly do know what is happening to your body. You are totally alone as the technicians leave the room and the radiation begins. This is when you have lots of time to think, if only for the few minutes it takes.

11 more treatments to go and then I'll be having another CT/PET scan at Hillman Cancer Center. I honestly think I'll be getting more treatments since 3 years ago I had about 35 sessions and that was just as a "precaution." 12 just seems too few in my opinion. But perhaps these treatments are giving out more radiation.

Wednesday, February 20, 2008

Our Relay for Life News..........



This is the email that I got last week from a student at the College about the April 12th Relay for Life:


Message: Hello, My name is Taylor -. I am the head chair for Westminster's Relay for life this year. Through a grapevine of people I heard about you and your husband's battle with cancer. I am sure you know about Relay for Life and what we stand for and hope to accomplish. The reason I am e-mailing you is that we at Relay for life would be honored if you and your husband would cut the ceremonial ribbon for this years Relay for Life. This year's Relay is on April 12. I hope you and your husband will consider doing this for us. If you have any questions or would like to talk to me in person please e-mail me and let me know. Thank you, Taylor -

(last name omitted due to privacy)

I was so honored to be asked to cut the ceremonial ribbon. Barry and I have agreed to be a part of this special event.

I am a bit disappointed that Tim will not be able to attend the Relay since he will be away on a spring band trip to Tenn. It will certainly be different without him walking with us.

First radiation appt. is tomorrow!

After two preliminary appts. I am scheduled to have my first dose of radiation tomorrow at 11:30 a.m. All the appts. will be that same time, Monday through Friday. Always have the weekend off. Yeah. The time works for me since I can incorporate having radiation to be part of my lunch hour. Talk about fun! I'm looking forward to going back to work with a certain "glow" about me. My chest is marked up quite nicely, as if a child decided to draw on it with a permanent marker.
Today's appt. consisted of laying on the table for about 40 minutes, unable to move an inch, and having films made as the machine would circle my body from side to side.
Don't worry, you know me: I'll eventually take pictures of the process. Bob and Ursula were the technicians today. By the time I got off of the hard table, my collar bone area was hurting so bad from the positioning of my arms to be over my head. It seems that I'll be having pain for awhile. Just a normal work day is painful to me by about noontime. Don't get me wrong. I'm not whining but just explaining how I feel.

So, that's it for now. A new journey begins tomorrow.....

PS. Yeah for my sister Maureen as she had her mammogram done today and everything is fine. Just because of me my sisters are now at high risk. Good news, Moe!

Wednesday, February 13, 2008

Getting set for some radiation

For the first time in years, the college where I work said that non-essential workers did not have to work today due to inclement weather. This is where it's great to be classified as non-essential. I'll take that adjective anyday. So I got a snow day along with Tim. I went back to bed and didn't wake up until 1 p.m.! And I have to say that this was about the best sleep I've had in a long time.

Barry had gone out for KFC while Tim did the shoveling.

I met with Dr. Proctor, my new radiation oncologist, yesterday morning. After a lengthy appointment it was decided that I would be given 12 "rounds" of radiation on the tumor. The tumor is located near my left breast (opposite the original cancer), just beside where my port is. Radiation is given to patients on a Monday-Friday schedule so one week would equal 5 rounds. It is also given at the same time of day, each day. Consistency is very important.

Tomorrow a.m. I will go back to cancer center to be "marked" for the radiation. I've been through this in 2005 so am familiar with the process. A CT scan is done to locate the tumor, and the doctor will make permanent markings on my chest and back so that radiation will be targeted at the precise spot. To this day I still can see the magic marker dots on my body from the last time. Dr. Christie, my surgeon, has already inserted a marker in the tumor that will help the doctor greatly in locating the tumor. I've been told that the appointment will be about an hour.

I'm not sure when radiation will start as there are a couple other steps that will need to be done. But compared to about 25 rounds of radiation last time, this is minimal. Just hope that some shrinkage comes from these treatments.

I do feel better than I did upon hearing the news the other day. You can't stay down, you have to keep going. A co-worker asked me the day I got the news how working fit into my life with cancer. I told her that for sure working is the best medicine for me. Keeps my mind focused on other things besides myself. And being in such a caring community is so beneficial. I don't know how anyone could go through an illness without the love and support of others around. I continue to be blessed and will continue to be positive. (PS. Doesn't mean I can't shed a tear, here or there.)

Happy Valentine's Day!

Monday, February 11, 2008

Happy 17 Birthday TIM and Happy Birthday MOM

Tomorrow is their birthday. Let's wish them a Happy Birthday!

Biopsy shows positive for cancer

I've heard those words twice before today, but today's words have just hit me like a brick. Perhaps since I'm still recovering from the extensive surgery from November. You can never get used to the words. I cry today not for myself but for Timmy. No kid needs to have his parents, both of them, go through this shit. And I mean that. I do know that he too is a survivor, but he's also my son. Just a bad day. What else can I say.

Tomorrow this darkness will go away.

Thanks for your continued prayers.

CANCER SUCKS

Sunday, February 10, 2008

Rest rest rest

It's been a weekend of being in bed for this family. Barry and Tim were sick last week with bug like symptoms, achey bones/chills/fever. Tim missed some school time.
Barry was out of work anyway recovering from his chemo treatment. Not the best timing for him. Bad enough to have cancer, but to also have this crap is not fun. Barry heads back to work today, and I know he'll be anxious to get home and into bed.

Friday evening I came down with a wicked stomach ache (sort of like when I had kidney stone). Becky had just brought over a huge cheesecake for us. I had to run off on her it was so bad. I was a poor hostess. I was in bed very early that night.

Yesterday a.m., I woke up with achey legs and a fever of 101 degrees. I took some tylenol and went back to bed. By 3 p.m. I felt better. Don't know what that was all about, but am glad it did subside. Let's hope it stays away.

And as for today, I've taken it easy again. Very high winds with snow showers this a.m. Right now it's 6 degrees and wind continues to blow strong. I had such a nice surprise this p.m. while I was resting. BJ brought over some homemade soup, brownies, chocolate covered pretzels and a hyacinth plant on behalf of her and some of my good friends. I think my friends want to fatten me up! They know how much I love chocolate.

Tomorrow I head back to work full-time. Actually I've been working about 6 hrs. a day anyway. Don't know how it will be until you do it.

Tuesday I've been scheduled to meet with new radiation/oncologist. Have no biopsy results yet but this appointment has been made in order to be proactive. If in fact this new area is cancer, we know that it is aggressive and we can't just sit around. Radiation will probably be the route we take.

Wednesday, February 06, 2008

Happy 55th Birthday, Maureen...

That's it. Let's all wish my sister a happy birthday, and welcome back to the work force TOMORROW.

Tuesday, February 05, 2008

A very long day in the city..

Of all days, Tim woke up after a night of not feeling well with a high temp of 102. Gave him ibuprofen that has helped in the past. I called our friend Lisa to bring over some ginger ale for him, and also told her that I would give Tim her work number in case he needed anything. He slept until 1 p.m. Fever has dropped but is still just laying down as of this writing.

The biopsy was right on time. A CT scan is done so that the doctor will know where the area is that needs to be biopsied. Then the area is marked. The area is numbed by some medicine and a fine needle was inserted into the tissue involved. There was some pushing involved due to the needle hitting the mesh from the November surgery.
Eventually the needle was deep enough to get a sample. This was shown to be the case since I was once again put under the CT scan for pictures. The doctors immediately took the tissue and had it examined. This took about 10 minutes, a long 10 minutes. I was sweating and unable to move, even my hands. Felt as if I was going to throw up. Nerves. The technician told me to take deep breaths which did help. Dr. Christie came back and said there was enough tissue and that the preliminary findings show the characteristics of cancer. Not surprised. I do understand that these are just the early findings and that more tests will be done. He then inserted what are called markers into this same area just in case I have the cyberknife radiation. But remember this: in October 2007 my insurance company denied this procedure due to primarily approved for brain cancer, not breast cancer. Dr. Christie was going to consult with head of radiology this p.m. to go over this with him. Has mentioned that if cancer, would apply to insurance company and then appeal strongly.

The whole procedure took less than 1 hr. Got back to my room and boy did my back/shoulder area hurt on side of biopsy. Immediately was given pain meds. I got discharged at 3 p.m.

A very long day for both of us. Had to pay some bills and am just now heading to put jammies on. My brain is tired and my body needs a good nights sleep. If only...

PS. It's pretty bad when you know a hospital inside and out. But am thankful for living so close to such good hospitals.

PSS. My dad's home from hospital. Yeah.

PSSS. Discharge papers wrote: avoid sexual activity today. Now that's funny!

Monday, February 04, 2008

Dad still in hospital

Well, my dad is still in hospital. They haven't diagnosed his problem yet. Have taken lots of blood and tests. And do you believe they are mentioning discharging him tomorrow? Good ole insurance companies. If they can't find out what's wrong with you after 3 days, you're out... Today he's going through the chills, wearing his sweat pants and having room temperature as high as the tropics. Terrible feeling. Have heard from his friend that has been visiting him that he does look a bit better colorwise tonight.

Tomorrow I head back to Pittsburgh for a CT scan guided needle biopsy. Have to be there at 10 a.m. for a noon procedure. Am glad that it's not the usual 6 a.m. time.
That hour is yucky. Won't have results for at least 7 days.

Tim's still not feeling good today. Flu like symptoms. Did go to school for 1/2 day which actually surprised me. His choice. Tough like his parents. And I'm taking vitamin c's to be proactive in not getting sick. Just need to make it through tomorrow's biopsy. Eyes are a bit sore but can't think about getting sick now.

Sunday, February 03, 2008

Dad admitted to hospital today...

My father had been feeling sick/crappy all week. My sister Maureen went to the Cape just to make sure he was OK. Upon getting there Friday night, he had thrown up his dinner. She got him to eat some jello and toast. Took care of my mom by washing her hair and doing her nails. Next a.m. (Sat.) she went back. Dad was dressed and seemed better. She took my mother for few hrs. to give dad some relief. At 1 p.m. she got back to their house and he was worse. Called their friend to come sit with mom, and took Dad to ER. Was there for about 4 hrs. on IV. Blood work OK. They changed his anti nausea med to be less sedative. Got home at about 5:30 p.m.

My sister was supposed to return to work today after having her drive-by hysterectomy but had to call out due to dad's health.

This a.m. she went back to see how he was doing and he wasn't any better, was very dizzy. So it's been a repeat of yesterday and they are back at hospital now.



It's tough to be sick, any age. Today my brother will be going to the Cape to stay overnight there.

It's during these times I wish I lived closer to be able to help them.


Updated blog 10:35 PM

My father ended up being admitted to hospital this a.m. onto the cardiac floor. While in ER his heart did something called "flutter" so that will be monitored. I did talk to him tonight and of course he's still not himself. Am glad that he was able to watch the Patriots (but I do know he would have loved them to win). At least he's in the hospital finally getting the care that he needs. As for my mother, my sister has brought her to my brother's house to stay there tomorrow on his day off. He's a chef/owner of restaurant so works tons of hours. Already worked about 100 hrs. this week. I think my sister is due back to work this Thursday, so it'll be up in the air who will take care of my mother if dad is still in hospital. I can only pray that eventually a plan is set up for such emergency situations: such as an "adult sitter." There's got to be such a person who could watch and keep my mom company.

Tim's come down with fever at about 5 p.m. today, along with aches/chills. But watched TV with me tonight.