Yes, I was napping when you stopped by. You brought so many goodies to enjoy, and the carnations are so pretty. They are on of my favorite flowers. Maureen explained how you became the florist purchaser. She and I share the same value: being thrifty with our monies.
They charge as much as the flowers. That's rediculous. And the goodies are very good. Even though they are Steelers!
Today started out slow but has ended up being a nice day. Considering I had a terrible night for sleep. I think tonight will be much better.
Saturday, January 31, 2009
Very busy week of appts. /Muga from 50-40%
I've seen the Primary Care Dr, surgeon, and Dr. Simon who is my oncologist.
Dr. Simon had read about my recent surgery and had 2 drugs that I could use. And if I didn't mention this to any one my Muga Scan was at 50% and as of the first of January down to 40%. I am not aware of the number that is used to stop treatment as it causes trouble with the heart.
Dr. Simon asked my Pittsburgh oncologist and he agreed, try the new chemo drug. It' been ordered and I'm tentatively set for treatment on Thursday. Since it's a new drug, the nurses will have to taught themselves in order to give it me. I told them I would do my best. Dr. Simon
looked at my chart and I've been on approxibly 8 different treatment. This drug is given with pre drugs such as nausea. Followed by IV drip that should last 3 longs years. I also read briefly
(because that's what I do) and neuropathy can be an effect. I've had that while on a capsule
chemo drug way back.
The name of the new drug is IXEMPRA . I'll be googling during my spare time.
Last night sucked for me. Tossing, turning, legs ached along with crying. Why is that the nights can be the worse.
I would like to shout out a BIG wish that radiation will truly end tomorrow for Pat and the other prayer is for my another friend who follows my blog Ann L. I can't see going through this stuff by oneself.
My next medical appt. is Monday checking out and assessing breathing. To see it's set for correct # for usage.
That's it.
Dr. Simon had read about my recent surgery and had 2 drugs that I could use. And if I didn't mention this to any one my Muga Scan was at 50% and as of the first of January down to 40%. I am not aware of the number that is used to stop treatment as it causes trouble with the heart.
Dr. Simon asked my Pittsburgh oncologist and he agreed, try the new chemo drug. It' been ordered and I'm tentatively set for treatment on Thursday. Since it's a new drug, the nurses will have to taught themselves in order to give it me. I told them I would do my best. Dr. Simon
looked at my chart and I've been on approxibly 8 different treatment. This drug is given with pre drugs such as nausea. Followed by IV drip that should last 3 longs years. I also read briefly
(because that's what I do) and neuropathy can be an effect. I've had that while on a capsule
chemo drug way back.
The name of the new drug is IXEMPRA . I'll be googling during my spare time.
Last night sucked for me. Tossing, turning, legs ached along with crying. Why is that the nights can be the worse.
I would like to shout out a BIG wish that radiation will truly end tomorrow for Pat and the other prayer is for my another friend who follows my blog Ann L. I can't see going through this stuff by oneself.
My next medical appt. is Monday checking out and assessing breathing. To see it's set for correct # for usage.
That's it.
Thursday, January 29, 2009
Stitch out/Staples Out,Tim took me to oncologist
Very busy day and I never felt them being taken out. My oncologist appt. took the longest which is about 90 mins. We've got the results of the MUGA scan that show45-50 reduction , down from 50 percent when I began the journey. I've been through about 8 differerent chemo drugs and my 2 oncologists have decided on a new treatment which is not on me at the present time. It has to be ordered, nurses have never used this drug in this office and therefore have to be taught so they can teach me. I told Dr. Simon I was going to be her *Star Student*.. I've heard the side effects can be rough but will give it a try. That's all I can do.
This weeks' appt. have ended. Yahoo.
This weeks' appt. have ended. Yahoo.
Wednesday, January 28, 2009
Snowstorm/No School/Primary Dr. Visit this a.m.
That's it in a nutshell. Besides a nice nap in p.m. Lots of white snow slush, weighs a ton I've been told. Not sure of tomorrow for school.
Tomorrow I have 10 a.m. appt. with surgeon to removed staples and a stitch. And would you believe the office called to say that our primary doctor could do that. Unfortunately a day too late. Plus it could have been done when he consulted at the ER the other day. But that would be too easy. Barry's driving me to Hermitage appt. and Tim's driving me to oncologist appt.
Well, it continues to snow heavy throughout the evening. Probably going to be 2 dr. delay.
Tomorrow I have 10 a.m. appt. with surgeon to removed staples and a stitch. And would you believe the office called to say that our primary doctor could do that. Unfortunately a day too late. Plus it could have been done when he consulted at the ER the other day. But that would be too easy. Barry's driving me to Hermitage appt. and Tim's driving me to oncologist appt.
Well, it continues to snow heavy throughout the evening. Probably going to be 2 dr. delay.
Tuesday, January 27, 2009
Another trip to E.R. and home...
Last night it began at about 7 p.m., coughing that wouldn't stop. And my nasal passages were clear but my chest consisted of blood. Light red. Did sleep through the night and then Barry took me to hospital. You know that I am sick of hospitals. We were there for about 3 hrs. doing blood work and chest x-ray. Typical as soon as I pulled in to driveway there was no phlem or blood, and no cough. Calm as can be.
I was told to watch for these symptoms again, as they could have been caused by tumors in my body. I was eventually discharged.
This p.m. I took a nap with oxygen (as I needed some in the hospital). Tomorrow a.m. I have appt. with primary dr. at 10 a.m., Thursday appt. with surgeon followed by oncologist visit. Busy couple of days.
This is why I didn't post last last. Had other things on my mind.
PS I was given a new pillow from Lisa to try out. One that you read books while sitting in bed.
Am willing to try anything.
Take care.
I was told to watch for these symptoms again, as they could have been caused by tumors in my body. I was eventually discharged.
This p.m. I took a nap with oxygen (as I needed some in the hospital). Tomorrow a.m. I have appt. with primary dr. at 10 a.m., Thursday appt. with surgeon followed by oncologist visit. Busy couple of days.
This is why I didn't post last last. Had other things on my mind.
PS I was given a new pillow from Lisa to try out. One that you read books while sitting in bed.
Am willing to try anything.
Take care.
Sunday, January 25, 2009
Our God Is An AWESOME God!
Yes, Our God is truly an Awesome God. Just look at me. Sure I have cancer but I have also been alive for over 3 years since being diagnosed. We went to church today with a hero's welcome. The Praise Team was sitted as we walked into the church. It was because of a posting by Anne B. that I even knew about the song, and that they had been practicing it for a few weeks in honor of me. Had you asked me a week or so if I would be able to go to church today I would have laughed at you, and perhaps I would have listened to it on Titan Radio. But I set my alarm earlier than usual because I am slow to move nowadays. And today was just another great day at church. Again, how can anyone go through such shit without support and love from others. Faith is a good thing to have!
And it's amazing how many times I heard this awesome word mentioned today. By both Rev's
and some friends. Just in casual conversation it comes up. Pretty nice.
I was able to once again to take a small nap in my bed. Surrounded by about 4 pillows and without oxygen. Felt so good to me. Tomorrow the oxygen people come with my portable unit to go out shopping. To be used as needed. During the day I find no need of oxygen, just when I am going to bed at night so far. Hopefully that will change.
Again, thanks Praise Team/Anne B. for taking the time to learn that song for me. Because we know He is an Awesome God!
And it's amazing how many times I heard this awesome word mentioned today. By both Rev's
and some friends. Just in casual conversation it comes up. Pretty nice.
I was able to once again to take a small nap in my bed. Surrounded by about 4 pillows and without oxygen. Felt so good to me. Tomorrow the oxygen people come with my portable unit to go out shopping. To be used as needed. During the day I find no need of oxygen, just when I am going to bed at night so far. Hopefully that will change.
Again, thanks Praise Team/Anne B. for taking the time to learn that song for me. Because we know He is an Awesome God!
Saturday, January 24, 2009
Can't put into words how much this blog means to me..
Had trouble thinking of a title today for my blog entry. Hard to put into words what I'm thinking and what this blog means to me. Since it's on the internet, a website, how can I save it without printing it daily? I want it saved so that Tim and others could go back later on and look at where my mind has been these past years. And what I was thinking. To know I have touched so many people truly inspires me/motivates me to continue each day.
I want to welcome NJ a long distance "blogger friend". You don't know how much it meant to me when I read your comment. I shed a few tears of joy upon reading your nice comment. I have a "counter" on my blog since April 2008 to show me how many people look at my blog. Last time I looked it was over 31,000 hits. So many people have been touched by my story. But I am selfish, look forward to hearing from you also. It's easy and it's free to leave a comment. Some people tell me that they thought they needed to create an account to do so but that is not the case. You can just sign in anonymous, leave your comment, and just sign your abbreviated name so I know who is writing it. Like JK.
And I learn so much from your comments. Like Anne's comment about church tomorrow. Can't believe that they are singing my favorite song Awesome God. Becky just called me to tell me also. And to offer a ride if needed. Told her that we'll be there if at all possible. May not stay the entire service because of discomfort but it's going to be hard to keep me from being there.
Well, that's it for now. PS. Only got up 3 times last night! Forward...
I want to welcome NJ a long distance "blogger friend". You don't know how much it meant to me when I read your comment. I shed a few tears of joy upon reading your nice comment. I have a "counter" on my blog since April 2008 to show me how many people look at my blog. Last time I looked it was over 31,000 hits. So many people have been touched by my story. But I am selfish, look forward to hearing from you also. It's easy and it's free to leave a comment. Some people tell me that they thought they needed to create an account to do so but that is not the case. You can just sign in anonymous, leave your comment, and just sign your abbreviated name so I know who is writing it. Like JK.
And I learn so much from your comments. Like Anne's comment about church tomorrow. Can't believe that they are singing my favorite song Awesome God. Becky just called me to tell me also. And to offer a ride if needed. Told her that we'll be there if at all possible. May not stay the entire service because of discomfort but it's going to be hard to keep me from being there.
Well, that's it for now. PS. Only got up 3 times last night! Forward...
Friday, January 23, 2009
I'm truly home!
Yes, it's me. Just got done catching up on my blog. Read everything. The blog and it's comments. Means the world to me. So much I don't remember and this gives me a chance to read all about it.
Marie: Yes, received the needlework that you created that said CANCER SUCKS. Because we both know that first hand that it does. Thanks.
All my bloggin' friends and family, a big hug of gratitude for your love and ongoing support. What a great idea to send me cards via the hospital. Was fun getting mail.
Joe H.: Thanks for your visits this past hospital stay. And thanks to the church for the prayer shawl. I am truly blessed.
Since I am on oxygen I have new piece of furniture in my house. An oxygen tank. Attached to that is 50 ft. of clear tubing. So as I walk around the house Barry can keep track of me! I don't have to stay on it all during the day, just as needed. Definitely need it when I lie down. Last night consisted of getting up to pee every 90 mins. and then putting oxygen thingy up my nose. Very uncomfortable just laying on my back. I still have staples and stitch to be taken out next Th. at surgeon's office. Area is sore. Both fingers became like the Hulk, swollen with fluid. They had me on IV. Never disconnected it, even after being on regular food. Gained 10 lbs. while there. Once I complained, the IV was disconnected. No wonder I was going to the bathroom so much.
Used to enjoy naps and sleep, now I don't look forward to it. Hopefully the feelings will come back. Even with morphine drip, give as much as you need to yourself, never took the pain away.
Not afraid of dying, just take the pain away.
Again, thanks!
Marie: Yes, received the needlework that you created that said CANCER SUCKS. Because we both know that first hand that it does. Thanks.
All my bloggin' friends and family, a big hug of gratitude for your love and ongoing support. What a great idea to send me cards via the hospital. Was fun getting mail.
Joe H.: Thanks for your visits this past hospital stay. And thanks to the church for the prayer shawl. I am truly blessed.
Since I am on oxygen I have new piece of furniture in my house. An oxygen tank. Attached to that is 50 ft. of clear tubing. So as I walk around the house Barry can keep track of me! I don't have to stay on it all during the day, just as needed. Definitely need it when I lie down. Last night consisted of getting up to pee every 90 mins. and then putting oxygen thingy up my nose. Very uncomfortable just laying on my back. I still have staples and stitch to be taken out next Th. at surgeon's office. Area is sore. Both fingers became like the Hulk, swollen with fluid. They had me on IV. Never disconnected it, even after being on regular food. Gained 10 lbs. while there. Once I complained, the IV was disconnected. No wonder I was going to the bathroom so much.
Used to enjoy naps and sleep, now I don't look forward to it. Hopefully the feelings will come back. Even with morphine drip, give as much as you need to yourself, never took the pain away.
Not afraid of dying, just take the pain away.
Again, thanks!
Thursday, January 22, 2009
THE RUBY RED SHOES WERE CLICKED AND
jane got her wish and is in the house. Waiting for the oxygen to arrive. Sounds like waiting for a horse to get into place for the Kentucky Derby. I think Jane would have paid any price to get out the hospital environment. THERE IS NO PLACE LIKE HOME AUNTIE EM!!!! adios moe
I AM HOME..........
Jane is on her way home. I haven't talked with her, but Barry is picking her up. Hope you have a good rest in your own bed and jammies. Peace and quiet too. Love you all..........
Eileen
Eileen
Wednesday, January 21, 2009
"I'm still in the hospital" I GOT A BUNCH OF ECARDS TODAY!!!
and i can't wait to get out of this place. Jane seemed a little short of breath. We talked briefly as supper just had arrived. Is in pain and says the oxycontin immediate release not on the med list so hasn't had-told her to tell them she needs it-has been taking for months. She said she will probably go home tomorrow and has been approved for home oxygen. The chest xray today was good. To me she seems a little sad. Will blog tomorrow after work. adios moe ToldJane Doreen thought of the ecards!
"A MUCH BETTER SLEEP"
and a great big thank u for those who gave sleep energy to Jane and she just told me she slept much better! Already had the 5:30 am CHEST XRAY machine roll into her room. Had mentioned last night when Tim visiting she might go home today.Barry worked last night. Her voice sounded with minimal shortness of breath, oxygen with water moisture going, and the usual morning phlegm being coughed up. I told her I would catch up with her later. adios moe
Tuesday, January 20, 2009
"wish i had headphones"
to block out the iv noises etc.. I can't wait to get out of here and go home and sleep in my own bed. It "just hurts" And yes ,Joe Hopkins stopped by with a prayer blanket made by the church Jane attends. I told her names of all bloggers to date.
CHEST TUBE OUT!!
with a brief phone call jane told me the chest tube is out, will have cxr in the morning,moved to another room, in pain,and I can't talk anymore "I AM POOPED" May u be more comfy soon!! love moe
I just got off phone with Jane....
She just called me and asked me to post for her. She said the chest tube was going to come out today. She also will be going into a regular room some time today. She asked that she have no visitors as she is very uncomfortable and will be home in a few days. She is having alot of chest pain as she did in the past. She also said her left had is swollen probably due to the BP cuff on her arm for such a long time. That was removed today so she hopes that will get better on it's own. I am just so proud of you Jane.....We all love you so much. My thoughts and prayers are will you, Barry and Tim. I hope you have a restfull day.
Love to everyone..
Eileen
Love to everyone..
Eileen
Monday, January 19, 2009
OFF THE OXYGEN A LITTLE BIT
Just spoke to Jane and told her of the number of blog "hits" and she is amazed so keep on posting!! Just awoken from a nap and supper in front of her. I had called Barry and he said Jane had been off oxygen a little time today. I mentioned to the both of them her memory lapses the other week was probably from low oxygen levels!! Jane mentioned that Tim was supposed to visit-hadnot come. And Becky too. I played dumb and just said yes as Barry told me Becky and Tim were heading over after 6pm so she will be surprised. I mentioned all the blog names to her. Remains in the intensive care unit. Barry took some pics today so we shall see them hopefully.
Rest up Jane and enjoy the company soon!! adios moe
P.S. Forgot to mention that the choir of the church Jane attends and where Joe Hopkins is from was practicing Jane's favorite song for the service yesterday.. U are an awesome God!! This was special for Jane. Had her hair washed saturday and keeps on telling me not to worry about her!! Nurses with her are reliable.
Rest up Jane and enjoy the company soon!! adios moe
P.S. Forgot to mention that the choir of the church Jane attends and where Joe Hopkins is from was practicing Jane's favorite song for the service yesterday.. U are an awesome God!! This was special for Jane. Had her hair washed saturday and keeps on telling me not to worry about her!! Nurses with her are reliable.
Sunday, January 18, 2009
a little temp-99.3
got the blood without incident and was able to sleep after tim and barry left this afternoon 4 hours or so. Took some ativan. Laughed when i told her i had washed mom's who who!! She was glad that Joe Hopkins listened to her advice and stayed off the icey snowey roads so he wouldn't have an accident. will blog tomorrow night 7p when i call her. adios moe snowing all day again in "god's country" as she calls her home!!
I'M GETTING 2 UNITS OF BLOOD!!
Well Jane's dad has a good memory and I think we should teach him how to do actual blog posting. When I was at work today, Jane calls and asks for Maureen and the new secretary says I am not there-Jane knows I am-hangs up and calls Gene and asks if I am working. Well my boss is Maureen and I am Mo most of time. Telephone tag ends finally with Jane calling work again and we all know I am there-she says 2 units of blood to be given,voice hoarse,in the icu in another room-seemed short of breath but says she is doing good. I always tell her who has posted. After work, headed right to Cape to entertain ma and pa kettle so this posting a little late. Will call Jane now. Thanks to all the nurses,md's caring for Jane-she compliments all of u-most of the help doesn't believe how good she is doing especially yesterday on the first post op day. well off to call jane adios moe
Saturday, January 17, 2009
ANOTHER DAY IN PARADISE FOR JANE!!
All of us continue to be amazed by Jane's strength,courage,perservance,upbeat conversation etc etc . I spoke to her around 1pm when I was at work and she answered her telephone with such an upbeat voice-spoke about being in the intensive care unit-will be there for 3 or so days, chest tube in place, had her foley removed and able to take a whiz on commode,getting the nurses organized with her usual pain med plan that she has been on at home-celexa etc.,barry and tim with her etc. She hardly seemed short of breath. With this new road I really believe that each one of her steps will be handled with grace and control as all u bloggers speak about and her head will be held high. Before I left work I was ever so pleased to sneak on work computer and see the pictures Patti had just taken of Jane eating the hospital food and the family picture of Tim,Barry,and Jane. Believe me I know Jane's mom and dad and us felt good inside after seeing first hand how her day was going. Well off til after work tomorrow. Thanks again -U go u wonderwoman Jane!!
I just talked to Barry........
Hi everyone....I just got off the phone with Barry. He is at the hospital with Jane and she is doing pretty good today. They kicked him out of the room so she could go to the bathroom. LOL Sounds alot better today. Thanks to all of you for sending prayers to all of them. They must have really worked.......Love you all of you.....espically my sister Jane.
Eileen
Eileen
Friday, January 16, 2009
This was taken today.....
The first pic is a cotton swab. those white round circles are cancerThese were taken today during her procedure....
Eileen
I'M LOST FOR WORDS RIGHT NOW!!
Jane's surgery started later than expected. Finished 4 ish. Just spoke to Barry and I am lost for words-MULTIPLE TUMORS-He says he has pics he will send to show what he means. Original plans as Jane might be vented were not to see her tonight to upset her as sometimes u are awake when tubed-last year it was sad when Barry and I saw her tubed after the original chest resection. I know we must now all be strong for Jane,Barry,and Tim as the road ahead will be challenging. Right now we are so upset. adios moe
U can send ecard to Jane...........
Go to: https://ecards.upmc.com/GetWell.asp Under hospital name, select: UPMC Horizon Jane's Room Number is 214 If you have a problem, please let me know. I just sent my card! Take care, Doreen Thanks Doreen.....I hope this works for everyone , too. Love to all of you in Pa with my sister. It is so hard to be so far away..........
Love to you all
Eileen
Love to you all
Eileen
Pictures of Jane at hospital........
These pictures were taken yesterday at the hospital. Jane did look good and had a good visit with her friend Doreen. Thanks for sending the pictures to me and Moe. All our love and prayers are with you Jane today.........
AWAKE SINCE 4 AM!!
Jane's mind is perfect. She had known I was to call her at 7AM and right at 6:59AM she calls me and tells me in a very hoarse voice that she has been up since 4am and that u know maureen that at 4 am u have to take someone's temperature and wake them up!!! States I can't talk any more as I have to rest up for 1pm. I think the conversation lasted less than a 10 second countdown. I am glad Jane is still in control as she has been in the past. U go Jane and my final words were take the VERSID-that pre med that makes u relax and not remember getting on the operating table. Here comes the positive energy wave/prayers from Holliston in 10 below zero weather so it might move slower---today. Told her of recent posts quickly. May u do tons of cat naps today and breeze thru todays surgery. U know everyone loves u bunches!! adios moe
Thursday, January 15, 2009
Jane the funny one tonight.........
I just got a phone call from Pretty Patty and she told me what Jane told a doctor that went into her room and asked what she was having done tomorrow. Leave it to Jane....She told him she was having breast implants and a penial implant. She is too funny...I wouldn't have thought of it in the first place, never mind saying it. Good for you Jane. We will all be saying a prayer for you tomorrow and know you will come thru with the grace you always show. We all love you very much.................
Eileen
Eileen
A SURPRISE PHONE CALL
my caller id says it is jane's cell and could it be. Well it is jane and she shares the following information with me. Several doctors saw her today including the lung surgeon and her lady cancer md's assistant-don't know names. They say go for it at this stage. She begins to cry and says this will be the last procedure she goes thru-how much more can i take". I told her to ease her mind and focus her energy on resting for the operation tomorrow. She knows after this discussions need to be made as to how much more treatment will be.She is ever so excited to mention to me that Mr Joe Hopkins-u know he is 89 years old maureen visited and also woman from the Dean's Office at the College-? name sorry-she took couple pics and will send to me.
It has snowing most of day and school cancelled for tim tomorrow. Told her I forgot to mention the iv's needed yesterday as her blood pressure was low and her pulse was high-u know she wants the details posted!! She will be in the hospital for 7 days. She knows of postings received and thanks u all for same! She did have a lot of pain after the echo today-on oxycontin and between morphine meds like at home. Left me with telling me her mouth was dry from talking, she had a roomate and they moved her to another room and that she was NPO after midnoc for the operation tomorrow. I will call her in am. P>S> JANE after i printed this the first time i pressed publish post and the whole thing disappeared as it did for u other night!! must be a kay moment!! ADIOS MOE AND LETS TRY TO POST AGAIN
It has snowing most of day and school cancelled for tim tomorrow. Told her I forgot to mention the iv's needed yesterday as her blood pressure was low and her pulse was high-u know she wants the details posted!! She will be in the hospital for 7 days. She knows of postings received and thanks u all for same! She did have a lot of pain after the echo today-on oxycontin and between morphine meds like at home. Left me with telling me her mouth was dry from talking, she had a roomate and they moved her to another room and that she was NPO after midnoc for the operation tomorrow. I will call her in am. P>S> JANE after i printed this the first time i pressed publish post and the whole thing disappeared as it did for u other night!! must be a kay moment!! ADIOS MOE AND LETS TRY TO POST AGAIN
"I'M EXHAUSTED"
jane says short while ago-"too many doctors to remember who,echo testing,my mind is exhausted and too full to think" Barry and Tim with her. Surgery set for 1pm tomorrow. I won't talk to her til the am as she is beat! She is short of breath when she speaks. Says she needs to sleep.
"good morning and I can't wait to brush my teeth"
Just spoke briefly to Jane and received the above quote!! She sounded stronger in her voice and said she was on and off awake until midnight and then her door was shut.Stated she was more comfortable than yesterday with the oxygen. Also said she had the staff put on her chart that she had decided to have the fluid removed. I told her of posting responses-calls to all etc. We talked about a lot in probably less than a minute. Isn't it weird that so much can be accomplished in that short span of time and then at work u might sit in a meeting for hours and accomplish absolutely ZIPPO!! I did mention that me and barry as her health care agents would help her along this journey as she had requested us to way back when.Her response was "yes" Told her I would catch up with her later and to rest. adios moe
Wednesday, January 14, 2009
DECISIONS TO BE MADE!!
Just talked to Barry after Tim and he visited Jane. He said they met with a lung surgeon-discussed options of treatment of fluid in the lungs-needle drainage,talc powder etc.-would this return again-to do or not to do? Right now on hold-spoke to Jane quickly-less sob-says need to make decisions-told her for tonight just try to rest her mind,get comfort with the oxygen-she had just awaken from a nap. I also asked her to promise me not to get oob by self so she would not fall. Mentioned phones ringing a lot-told me her room across from nurses station. Is in 203 WEST upmc-farrell. I definately told her i am posting for her and she appreciates responses. I did notice the single word answers of YES that happened in the past. Barry did say that the steroid issue would not be good at this point. I personally think I would go once for the drainage as i think it would make her more comfortable with the breathing. Whether or not it would help would not be known in less u tried. My what decisions to be made!!!! If anyone sees her tomorrow snap a pic of her for the blog and send to eileen as she can post on blog! Once again thanks for your concern and prayers. adios moe May u rest tonight comfortably Jane!!
ANOTHER BUMP IN THE ROAD FOR JANE!!
It is moe posting for Jane. I had talked to her last night and knew she was going to the doctor today. Yesterday I had asked Barry to call me after he took her to the appointment. I spoke to him at 11:30 and he said the Pittsburg Md and her local cancer Md. directed them to go directly to the Farrel hospital-not sure of spelling. After testing done, Jane just called me and said she was just admitted to the hospital-spoke briefly as she is exhausted and still with shortness of breath-on some oxygen-xray still shows fluid in the lungs-she said plans are to remove the fluid but doesn't know when. I asked her if she mentioned the imbalance mentioned and she said yes. She asked me to post on her blog-once again let us all help her climb out of the "road ruts" adios moe
Tuesday, January 13, 2009
Making an appt. to see Dr. in a.m.
I have a 9:30 a.m. appt. with oncologist. Going to mention to her my latest symptoms, especially getting tipsy while just walking Then I'm going to call my neurosurgeon to tell him. Maybe the 2 doctors can put their knowledge together long distance to see what could possily be up. Today was in bed practically the whole day. And when I have a.m. phlem it's so painful to bring it up. I sort of hearing a weasing noise when I breath. All is all, I'm pretty uncomfortable especially when I tear up.
Monday, January 12, 2009
Did I just do that?
These past couple of days I've been noticing my body doing things that I have to be honestly honest about. Like today, twice I've caught myself leaning a bit too the left and the need to stop myself. I have to give the same medicine that we gave my mother as she was going through dementia. Limit the driving or just eliminate it so no one gets hurt. These are tough words to say and even to type. The process of change it's a tough one to handle.
Sunday, January 11, 2009
Titan radio for church
I was up but not about for church this a.m. For some reason I am not fast in pulling myself together. So I knew it was on the college radio station and I was all set. Under the covers and in my jammies. Now you can't beat that. Oh yes, just forgot something that makes that statement false. I had to miss seeing my friends and having nice conversations. And I was so looking forward to 2 steppin'.
Hard to visualize what was being done with a potato.
We ended up getting about a little over a foot of snow. And no, dad, I didn't even touch it.
Can't even remember what I did today. Must have just slept, slept and a little more sleep. Just walking around the house I seem to run out of breath. I think if this becomes too much for me the liquid can be drained. Just not sure how that is determined.
Thanks for stopping by.
Hard to visualize what was being done with a potato.
We ended up getting about a little over a foot of snow. And no, dad, I didn't even touch it.
Can't even remember what I did today. Must have just slept, slept and a little more sleep. Just walking around the house I seem to run out of breath. I think if this becomes too much for me the liquid can be drained. Just not sure how that is determined.
Thanks for stopping by.
Saturday, January 10, 2009
Yesterday and my doings
I can't retype all that I typed because it took me so long, plus I can't remember it.
I had a MUGA heart scan in the afternoon after going out to lunch with Barry. He dropped me off at the hospital and went for his own blood work at cancer center. I was early for my appt. and they were early. Worked out perfectly. Carrie and Kerry (unsure of spelling) were the technicians who worked the machine. The reason I got messed up on my blog was because I was trying to find a picture of a MUGA machine.
Which I did but by the time I went to put it on my blog***you got it. Gonzo.
I had run out of business cards promoting my blog so just told the techs the website address. They found it in no time and just loved to look at the entries and pictures. Then they wrote the address down on a piece of paper to look at later.
Everyone has been so kind. But as the saying goes, be nice to others and they will be nice to you. Nothing genious about that.
Barry and I ran to outlets. He got a couple of pans. Got home at 4 p.m. and I went to lie down. I think you will know the answer to this question: what time did I get up? You got it. After midnight. I missed dinner, Tim making good brownies and Barry baked some muffins. That's why I was still up at 1 a.m. last night.
We have been having snow all day yesterday and today. No accumulation yesterday, but during the night it came down bucket loads. I think we have about 1 foot and it's still snowing now and into tomorrow. I hope it stops for church tomorrow.
Barry and Tim are outside shoveling and snow blowing.
I have seen some changes in my body lately. Even when I walk (especially in a.m.) I lose my breath and it aches on my left. I've been taking prescription strength ibuprofen along with an anxiety pill. I feel the best when relaxing on the recliner.
Even when I just empty the dish washer that takes my breath away. That's why Barry has told Tim to do that job for me. May take him awhile but it gets done. And isn't that what it's all about?
Well, I've got to go see how the boys are doing outside. I used to love snow removal. Most people dislike it, but I always enjoyed that and cutting the grass.
Call me weird.
I had a MUGA heart scan in the afternoon after going out to lunch with Barry. He dropped me off at the hospital and went for his own blood work at cancer center. I was early for my appt. and they were early. Worked out perfectly. Carrie and Kerry (unsure of spelling) were the technicians who worked the machine. The reason I got messed up on my blog was because I was trying to find a picture of a MUGA machine.
Which I did but by the time I went to put it on my blog***you got it. Gonzo.
I had run out of business cards promoting my blog so just told the techs the website address. They found it in no time and just loved to look at the entries and pictures. Then they wrote the address down on a piece of paper to look at later.
Everyone has been so kind. But as the saying goes, be nice to others and they will be nice to you. Nothing genious about that.
Barry and I ran to outlets. He got a couple of pans. Got home at 4 p.m. and I went to lie down. I think you will know the answer to this question: what time did I get up? You got it. After midnight. I missed dinner, Tim making good brownies and Barry baked some muffins. That's why I was still up at 1 a.m. last night.
We have been having snow all day yesterday and today. No accumulation yesterday, but during the night it came down bucket loads. I think we have about 1 foot and it's still snowing now and into tomorrow. I hope it stops for church tomorrow.
Barry and Tim are outside shoveling and snow blowing.
I have seen some changes in my body lately. Even when I walk (especially in a.m.) I lose my breath and it aches on my left. I've been taking prescription strength ibuprofen along with an anxiety pill. I feel the best when relaxing on the recliner.
Even when I just empty the dish washer that takes my breath away. That's why Barry has told Tim to do that job for me. May take him awhile but it gets done. And isn't that what it's all about?
Well, I've got to go see how the boys are doing outside. I used to love snow removal. Most people dislike it, but I always enjoyed that and cutting the grass.
Call me weird.
I lost all that I just typed!!
Boo hoo. I just lost all that I typed. Considering the time, you'll have to wait until tomorrow. Sorry....
Friday, January 09, 2009
MUGA Heart Scan today 1:30 p.m.
Yesterday I didn't get up until noon. Not that I was asleep the whole time. Checked to see if Tim had 2 hr. delay at school. He didn't. But that didn't matter because he was sick. Some kind of flu. When you put eyes hurt together with being chilled/hot you get the flu in my opinion. He actually got up before me. I asked him if Barry had mentioned anything about me to him, and he said he did. His response was the same as all the other times to me. He said it's OK, you'll (I'll)
make it through it, you've done it before. He gives me inspiration. From that point on yesterday I was my same old self. Take away the pain and I am left with my positive outlook.
Eventually I showered and got into some clean jammies. My afternoon was full of visitors. It was a great afternoon. Lisa H. stopped by because a little birdie told her I was having a difficult time. She shared a prayer and had a nice conversation.
Linda F. had given me a beautiful heart necklace this week which I showed Lisa H.
Next thing I knew she was taking off a pair of heart shaped earrings she had been wearing. It was her gift to me so I would have a perfect match. You can't beat sincerity like that.
(off the subject: last night my sister Maureen called. She was crying out of concern for me. I said not to cry. Her remark was remembering what kind of environment we live in. All the caring people. Truly sincere people.
The kind of people when they offer to do something, they mean it. I agreed with her. She stopped crying right away.)
Later in the evening (unplanned which makes for a better time) 4 of my friends stopped by to say hi. One brought rosary beads (made from rose pettles) blessed by the pope. We shared so many laughs as I lay in my recliner. My illness was not the center of conversation which was nice. I had told them of the earrings being given to me, and of the comment I should have made to Lisa H. I should have said hey, I like your car! Perhaps she would have given that to me.! I think they were here for about 2 hrs. but I never looked at the clock. When asked how I was feeling, I said that pain was minimal in the position I had been in. Alright if I don't take deep breaths. I truly enjoyed the evening. An evening of not watching TV.
Tim had gone to bed while my friends were here. You know he's sick when he does that.
And now for today. Tim woke up and he did go to school. I got up at about 9:30 a.m.
Will shower and get ready for my MUGA heart scan today. From my past memory I think it takes a total of two hrs. Barry will be taking me as he has his own stuff to do.
make it through it, you've done it before. He gives me inspiration. From that point on yesterday I was my same old self. Take away the pain and I am left with my positive outlook.
Eventually I showered and got into some clean jammies. My afternoon was full of visitors. It was a great afternoon. Lisa H. stopped by because a little birdie told her I was having a difficult time. She shared a prayer and had a nice conversation.
Linda F. had given me a beautiful heart necklace this week which I showed Lisa H.
Next thing I knew she was taking off a pair of heart shaped earrings she had been wearing. It was her gift to me so I would have a perfect match. You can't beat sincerity like that.
(off the subject: last night my sister Maureen called. She was crying out of concern for me. I said not to cry. Her remark was remembering what kind of environment we live in. All the caring people. Truly sincere people.
The kind of people when they offer to do something, they mean it. I agreed with her. She stopped crying right away.)
Later in the evening (unplanned which makes for a better time) 4 of my friends stopped by to say hi. One brought rosary beads (made from rose pettles) blessed by the pope. We shared so many laughs as I lay in my recliner. My illness was not the center of conversation which was nice. I had told them of the earrings being given to me, and of the comment I should have made to Lisa H. I should have said hey, I like your car! Perhaps she would have given that to me.! I think they were here for about 2 hrs. but I never looked at the clock. When asked how I was feeling, I said that pain was minimal in the position I had been in. Alright if I don't take deep breaths. I truly enjoyed the evening. An evening of not watching TV.
Tim had gone to bed while my friends were here. You know he's sick when he does that.
And now for today. Tim woke up and he did go to school. I got up at about 9:30 a.m.
Will shower and get ready for my MUGA heart scan today. From my past memory I think it takes a total of two hrs. Barry will be taking me as he has his own stuff to do.
Wednesday, January 07, 2009
Liquid or something on my lungs. What else?
I was in pain this am. again. Think it has been 4th day. Called oncologist office and they scheduled a stat CT scan locally. Both were side by side. Barry drove me,
I had the test and they said to stick around for the results. Since Barry was out in truck, (12:45 p.m. and my appt. with oncologist 1:15 p.m.) I told him he could go home. I then called my neighbor Mrs. S. to pick me up when I was done at oncologist.
To make long story short, there was a bit of confusion. I was to go next door to oncologist and they would tell me outcome. Right then I knew somethin was not kosher. All along I have known by body, and today was no exception. She told me that I was getting that pain due to liquid out of lungs (I can't really remember what she said, should have some one come with me), the main pain is belt high left side waste. And she listened to my lungs and she could hear the liquid.
#2-I've inherited a large lymhph node on my left breast. I had for some reason found it myself the light before. Feels so squishy to me. Probably would show up as cancer knowing my history. And if it was to be drained, there could even be cancer behind me. I tell you, my lucky day.
That cancer is so fast moving. And it is so painful. Hard to breathe in and out.
She's ordered a MUGA scan for Friday at local hospital. Not sure on transportation at this time. SHe is doing another MUGA scan to make sure my heart is doing OK with the chemo. Think it was borderline when I started, so if it has decreased capacity
will have to change the chemo drug.
Still have to call dr. tomorrow to ask questions: is there pain relief, will this liquid dry up or grow, what's the next step?
Today my CT scan technician got to talking with me. I explained my blog, gave her my card that shows my blog address. She said I must inspire so many people and then asked for a hug. We hugged and couple of tears flowed from her eyes. I agree.
I'm not afraid of dieing, but it comes down to being able to say I've done a great job with Tim. One of my goals was accomplished: got him into a good college. My next goal is to see him graduate from high school this June 2009. People have told me that you can tell Tim is a good rounded off person. And that comes from his surroundings.
When I got home this p.m. I went to bed after Barry went to work 3:15ish. I just woke up at 10:30 p.m. Didn't know where I was. Tim was already in bed, heard he was coming down with something. Probably no school for him in a.m.
Just to breathe normal is very painful. My to do list will include a call to Dr. S.
oncologist.
Wasn't able to do lunch with Patti, but has been rescheduled for tomorrow.
I had the test and they said to stick around for the results. Since Barry was out in truck, (12:45 p.m. and my appt. with oncologist 1:15 p.m.) I told him he could go home. I then called my neighbor Mrs. S. to pick me up when I was done at oncologist.
To make long story short, there was a bit of confusion. I was to go next door to oncologist and they would tell me outcome. Right then I knew somethin was not kosher. All along I have known by body, and today was no exception. She told me that I was getting that pain due to liquid out of lungs (I can't really remember what she said, should have some one come with me), the main pain is belt high left side waste. And she listened to my lungs and she could hear the liquid.
#2-I've inherited a large lymhph node on my left breast. I had for some reason found it myself the light before. Feels so squishy to me. Probably would show up as cancer knowing my history. And if it was to be drained, there could even be cancer behind me. I tell you, my lucky day.
That cancer is so fast moving. And it is so painful. Hard to breathe in and out.
She's ordered a MUGA scan for Friday at local hospital. Not sure on transportation at this time. SHe is doing another MUGA scan to make sure my heart is doing OK with the chemo. Think it was borderline when I started, so if it has decreased capacity
will have to change the chemo drug.
Still have to call dr. tomorrow to ask questions: is there pain relief, will this liquid dry up or grow, what's the next step?
Today my CT scan technician got to talking with me. I explained my blog, gave her my card that shows my blog address. She said I must inspire so many people and then asked for a hug. We hugged and couple of tears flowed from her eyes. I agree.
I'm not afraid of dieing, but it comes down to being able to say I've done a great job with Tim. One of my goals was accomplished: got him into a good college. My next goal is to see him graduate from high school this June 2009. People have told me that you can tell Tim is a good rounded off person. And that comes from his surroundings.
When I got home this p.m. I went to bed after Barry went to work 3:15ish. I just woke up at 10:30 p.m. Didn't know where I was. Tim was already in bed, heard he was coming down with something. Probably no school for him in a.m.
Just to breathe normal is very painful. My to do list will include a call to Dr. S.
oncologist.
Wasn't able to do lunch with Patti, but has been rescheduled for tomorrow.
Tuesday, January 06, 2009
No decadron for me, PA said...
When I don't write there's usually a reason. I did speak to my nerosurgeon's P/A
and she said that decadron is not given, too many side effects. After I hung up I thought of saying death is a side effect I'm living with. I had emailed dr. for him to call me back, but he had given my email to her to call me. Said I should call primary dr. or oncologist. He only deals with the brain. Mentioned also that I felt my speech was regressing from the surgery. My voice hesitates at time just like before. I'm aware of it, have to think before I talk. This was talked about in my 2nd email. She had to call me back as she was not aware of that one. She did and dr. suggested MRI to see if things are OK. Told her that I will get back to her if it occurs more regularly.
Pain: presently (past couple of days) I've been having pain when I breathe in and out. Also, on my left side of my body, where top of my underwear is hurts. Am not sure what body part is there. I was going to make an appt. with oncologist, but it does appear better this evening. Will call her if it is still there in a.m.
I'm going backwards I think. Back to my long naps. Back to being tired. Back to old speech. I wish I could go back those days before Christmas. Especially in church. I felt I was on top of the world. A zombie is what I call myself.
On to a good note. I'm looking forward (yes) to having lunch tomorrow with Patti.
Have not done lunch in a long time.
and she said that decadron is not given, too many side effects. After I hung up I thought of saying death is a side effect I'm living with. I had emailed dr. for him to call me back, but he had given my email to her to call me. Said I should call primary dr. or oncologist. He only deals with the brain. Mentioned also that I felt my speech was regressing from the surgery. My voice hesitates at time just like before. I'm aware of it, have to think before I talk. This was talked about in my 2nd email. She had to call me back as she was not aware of that one. She did and dr. suggested MRI to see if things are OK. Told her that I will get back to her if it occurs more regularly.
Pain: presently (past couple of days) I've been having pain when I breathe in and out. Also, on my left side of my body, where top of my underwear is hurts. Am not sure what body part is there. I was going to make an appt. with oncologist, but it does appear better this evening. Will call her if it is still there in a.m.
I'm going backwards I think. Back to my long naps. Back to being tired. Back to old speech. I wish I could go back those days before Christmas. Especially in church. I felt I was on top of the world. A zombie is what I call myself.
On to a good note. I'm looking forward (yes) to having lunch tomorrow with Patti.
Have not done lunch in a long time.
Saturday, January 03, 2009
Cyberknife complete
The cyberknife procedure took about 2 hrs. I only asked for one break near the end. Went to the bathroom just to stretch. Dr. wouldn't prescribe decadron (steroid) which in my opinion was the miracle drug. He had mentioned going back on it after cyberknife as my equilibrium could be effected. Without it all I do is sleep and my pain is minimal. Like before I went to the Cape it hurts when I breathe in and cough. Don't know what that's all about. I just know the days I was on the steroid after coming out of hospital were the best days for me. I felt great. I may end up asking my oncologist for script. (or just go to nearest street corner!)
JOKE
JOKE
Friday, January 02, 2009
CYBERKNIFE OF BRAIN COMPLETE!!
just spoke to jane quickly when i got home from work 415p-she is resting and said it took TWO HOURS!! ADIOS MOE
Thursday, January 01, 2009
Too much to remember...
Let me try to remember what happened since I last posted:
My brother Doug and his daughter came to Cape to see us on Monday. It's his only day off, so any time he spent with us is a million dollars. It was great seeing both of them. Another chance for Tim to see a cousin. We went out to lunch at local restaurant. They came down in their motorhome. I had seen him (not that I remember) in April when I had my first brain tumor. So he was quite pleased to see me walking/talking.
Tuesday we went back to see his parents and to say good bye to them.
We heard about a snow storm coming east. So we talked it over and decided to leave Tuesday night instead of the next morning. The 3 of us napped in the afternoon hrs.,
had some scallops wrapped in bacon, and left the Cape at 8:30 p.m. We were glad we did this. Oh yes, we threw pennies out the window as we drove over the bridge. This means that we will return. I think it's something I made up years ago. But it works.
Barry and Tim shared the driving both ways. I got to stay in the back seat, blanket and pillow beside me. I didn't really sleep, but I had the luxury of not driving.
On the return trip Barry drove all but the last 3 hrs. I don't know how he did that.
We didn't get home until 6:10 a.m. All the driving was during the night. Not my cup of tea. We hit snow flurries where it always snows, Snow Shoe. At times they even close that part of Rt 80 because of the weather. The flurries didn't last that long. And then bad weather came the last 45 minutes or so of the trip. Tim was driving. It snowed along with mist. You could see temperatures rise and fall, nearing the 32 degree mark. I think this was Tim's initiation into winter driving.
At some parts of the trip you couldn't see ahead of you. White out conditions.
I was so glad to get off the main road and into my driveway. I sighed a bit of relief. And kissed Tim and Barry for a safe trip. Was glad I wasn't driving because if it was me, I would have pulled off the road and found a nice hotel!
Yesterday after arriving home in the morning we immediately went to bed. I think Tim was in bed within 10 minutes. I was the last person to wake up after a few hrs.
And I didn't even drive. Later in the day the boys were watching a movie and I went to take a nap. Tim had a New Years Eve party to attend later in the evening. Do you know what? I slept right through dinner, Tim going out to party and new years eve. I didn't even see the ball drop. Maybe it didn't! I was awaken at 1:30 a.m. when Tim and his friend came home from the party. I truly must have been pooped.
And today Barry was out to the store while I slept. Then the boys got up, and it was my turn to get out of bed finally at 9:30 a.m. I guess I had enough sleep. I didn't dare take a "nap" today.
Oh by the way. Dr's office called and I'm scheduled for cyberknife again tomorrow at 11:30 a.m. It's going to be for 90 minutes this time. And for just one session. Unlike before. I'm definitely going to take a pill to relax. At least I know what to expect this time.
Well, I hope I covered it all. You can't put a price on a good time. I'm blessed to have such a family considering that so many families are not close. And I'm blessed to live in such caring surroundings.
I want to wish everyone a healthy New Year. I am lucky. Who can say that they've been through 2 brain surgeries and are able to write and talk about it? None that come to my mind.
PS. As I drove away from my parents house that night, I did not shed any tears. I did all that I wanted to do. It was meant that Maureen came to see me recently as she was sick while we were there. I did miss seeing my oldest sister Eileen. She too was sick. She's the sister who likes to clean my house!
My brother Doug and his daughter came to Cape to see us on Monday. It's his only day off, so any time he spent with us is a million dollars. It was great seeing both of them. Another chance for Tim to see a cousin. We went out to lunch at local restaurant. They came down in their motorhome. I had seen him (not that I remember) in April when I had my first brain tumor. So he was quite pleased to see me walking/talking.
Tuesday we went back to see his parents and to say good bye to them.
We heard about a snow storm coming east. So we talked it over and decided to leave Tuesday night instead of the next morning. The 3 of us napped in the afternoon hrs.,
had some scallops wrapped in bacon, and left the Cape at 8:30 p.m. We were glad we did this. Oh yes, we threw pennies out the window as we drove over the bridge. This means that we will return. I think it's something I made up years ago. But it works.
Barry and Tim shared the driving both ways. I got to stay in the back seat, blanket and pillow beside me. I didn't really sleep, but I had the luxury of not driving.
On the return trip Barry drove all but the last 3 hrs. I don't know how he did that.
We didn't get home until 6:10 a.m. All the driving was during the night. Not my cup of tea. We hit snow flurries where it always snows, Snow Shoe. At times they even close that part of Rt 80 because of the weather. The flurries didn't last that long. And then bad weather came the last 45 minutes or so of the trip. Tim was driving. It snowed along with mist. You could see temperatures rise and fall, nearing the 32 degree mark. I think this was Tim's initiation into winter driving.
At some parts of the trip you couldn't see ahead of you. White out conditions.
I was so glad to get off the main road and into my driveway. I sighed a bit of relief. And kissed Tim and Barry for a safe trip. Was glad I wasn't driving because if it was me, I would have pulled off the road and found a nice hotel!
Yesterday after arriving home in the morning we immediately went to bed. I think Tim was in bed within 10 minutes. I was the last person to wake up after a few hrs.
And I didn't even drive. Later in the day the boys were watching a movie and I went to take a nap. Tim had a New Years Eve party to attend later in the evening. Do you know what? I slept right through dinner, Tim going out to party and new years eve. I didn't even see the ball drop. Maybe it didn't! I was awaken at 1:30 a.m. when Tim and his friend came home from the party. I truly must have been pooped.
And today Barry was out to the store while I slept. Then the boys got up, and it was my turn to get out of bed finally at 9:30 a.m. I guess I had enough sleep. I didn't dare take a "nap" today.
Oh by the way. Dr's office called and I'm scheduled for cyberknife again tomorrow at 11:30 a.m. It's going to be for 90 minutes this time. And for just one session. Unlike before. I'm definitely going to take a pill to relax. At least I know what to expect this time.
Well, I hope I covered it all. You can't put a price on a good time. I'm blessed to have such a family considering that so many families are not close. And I'm blessed to live in such caring surroundings.
I want to wish everyone a healthy New Year. I am lucky. Who can say that they've been through 2 brain surgeries and are able to write and talk about it? None that come to my mind.
PS. As I drove away from my parents house that night, I did not shed any tears. I did all that I wanted to do. It was meant that Maureen came to see me recently as she was sick while we were there. I did miss seeing my oldest sister Eileen. She too was sick. She's the sister who likes to clean my house!
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