Thanks Doreen for being a special delivery..

Yes, I was napping when you stopped by. You brought so many goodies to enjoy, and the carnations are so pretty. They are on of my favorite flowers. Maureen explained how you became the florist purchaser. She and I share the same value: being thrifty with our monies.
They charge as much as the flowers. That's rediculous. And the goodies are very good. Even though they are Steelers!

Today started out slow but has ended up being a nice day. Considering I had a terrible night for sleep. I think tonight will be much better.

Very busy week of appts. /Muga from 50-40%

I've seen the Primary Care Dr, surgeon, and Dr. Simon who is my oncologist.

Dr. Simon had read about my recent surgery and had 2 drugs that I could use. And if I didn't mention this to any one my Muga Scan was at 50% and as of the first of January down to 40%. I am not aware of the number that is used to stop treatment as it causes trouble with the heart.
Dr. Simon asked my Pittsburgh oncologist and he agreed, try the new chemo drug. It' been ordered and I'm tentatively set for treatment on Thursday. Since it's a new drug, the nurses will have to taught themselves in order to give it me. I told them I would do my best. Dr. Simon
looked at my chart and I've been on approxibly 8 different treatment. This drug is given with pre drugs such as nausea. Followed by IV drip that should last 3 longs years. I also read briefly
(because that's what I do) and neuropathy can be an effect. I've had that while on a capsule
chemo drug way back.

The name of the new drug is IXEMPRA . I'll be googling during my spare time.

Last night sucked for me. Tossing, turning, legs ached along with crying. Why is that the nights can be the worse.

I would like to shout out a BIG wish that radiation will truly end tomorrow for Pat and the other prayer is for my another friend who follows my blog Ann L. I can't see going through this stuff by oneself.

My next medical appt. is Monday checking out and assessing breathing. To see it's set for correct # for usage.

That's it.

Stitch out/Staples Out,Tim took me to oncologist

Very busy day and I never felt them being taken out. My oncologist appt. took the longest which is about 90 mins. We've got the results of the MUGA scan that show45-50 reduction , down from 50 percent when I began the journey. I've been through about 8 differerent chemo drugs and my 2 oncologists have decided on a new treatment which is not on me at the present time. It has to be ordered, nurses have never used this drug in this office and therefore have to be taught so they can teach me. I told Dr. Simon I was going to be her *Star Student*.. I've heard the side effects can be rough but will give it a try. That's all I can do.


This weeks' appt. have ended. Yahoo.

Snowstorm/No School/Primary Dr. Visit this a.m.

That's it in a nutshell. Besides a nice nap in p.m. Lots of white snow slush, weighs a ton I've been told. Not sure of tomorrow for school.

Tomorrow I have 10 a.m. appt. with surgeon to removed staples and a stitch. And would you believe the office called to say that our primary doctor could do that. Unfortunately a day too late. Plus it could have been done when he consulted at the ER the other day. But that would be too easy. Barry's driving me to Hermitage appt. and Tim's driving me to oncologist appt.

Well, it continues to snow heavy throughout the evening. Probably going to be 2 dr. delay.

Another trip to E.R. and home...

Last night it began at about 7 p.m., coughing that wouldn't stop. And my nasal passages were clear but my chest consisted of blood. Light red. Did sleep through the night and then Barry took me to hospital. You know that I am sick of hospitals. We were there for about 3 hrs. doing blood work and chest x-ray. Typical as soon as I pulled in to driveway there was no phlem or blood, and no cough. Calm as can be.

I was told to watch for these symptoms again, as they could have been caused by tumors in my body. I was eventually discharged.

This p.m. I took a nap with oxygen (as I needed some in the hospital). Tomorrow a.m. I have appt. with primary dr. at 10 a.m., Thursday appt. with surgeon followed by oncologist visit. Busy couple of days.

This is why I didn't post last last. Had other things on my mind.

PS I was given a new pillow from Lisa to try out. One that you read books while sitting in bed.
Am willing to try anything.

Take care.

My good friends Beckster and Debbie the English lady. You can't put a price on friendship.

This is the main reason in my opinion that hospital rooms do not have mirrors! Nice bed head. Thank goodness that this does not bother me.

Check out my hand. Nice and swollen. I think they were trying to find the maximum liquid intake! one could tolerate.

Pretty Patti! What more can I say.

Don't you just love my Hulk neck. I should have played football that week.

I just love Tim's smile. It lights up the room. No matter where you are! He's my inspiration.

Our God Is An AWESOME God!

Yes, Our God is truly an Awesome God. Just look at me. Sure I have cancer but I have also been alive for over 3 years since being diagnosed. We went to church today with a hero's welcome. The Praise Team was sitted as we walked into the church. It was because of a posting by Anne B. that I even knew about the song, and that they had been practicing it for a few weeks in honor of me. Had you asked me a week or so if I would be able to go to church today I would have laughed at you, and perhaps I would have listened to it on Titan Radio. But I set my alarm earlier than usual because I am slow to move nowadays. And today was just another great day at church. Again, how can anyone go through such shit without support and love from others. Faith is a good thing to have!

And it's amazing how many times I heard this awesome word mentioned today. By both Rev's
and some friends. Just in casual conversation it comes up. Pretty nice.

I was able to once again to take a small nap in my bed. Surrounded by about 4 pillows and without oxygen. Felt so good to me. Tomorrow the oxygen people come with my portable unit to go out shopping. To be used as needed. During the day I find no need of oxygen, just when I am going to bed at night so far. Hopefully that will change.

Again, thanks Praise Team/Anne B. for taking the time to learn that song for me. Because we know He is an Awesome God!

Can't put into words how much this blog means to me..

Had trouble thinking of a title today for my blog entry. Hard to put into words what I'm thinking and what this blog means to me. Since it's on the internet, a website, how can I save it without printing it daily? I want it saved so that Tim and others could go back later on and look at where my mind has been these past years. And what I was thinking. To know I have touched so many people truly inspires me/motivates me to continue each day.

I want to welcome NJ a long distance "blogger friend". You don't know how much it meant to me when I read your comment. I shed a few tears of joy upon reading your nice comment. I have a "counter" on my blog since April 2008 to show me how many people look at my blog. Last time I looked it was over 31,000 hits. So many people have been touched by my story. But I am selfish, look forward to hearing from you also. It's easy and it's free to leave a comment. Some people tell me that they thought they needed to create an account to do so but that is not the case. You can just sign in anonymous, leave your comment, and just sign your abbreviated name so I know who is writing it. Like JK.

And I learn so much from your comments. Like Anne's comment about church tomorrow. Can't believe that they are singing my favorite song Awesome God. Becky just called me to tell me also. And to offer a ride if needed. Told her that we'll be there if at all possible. May not stay the entire service because of discomfort but it's going to be hard to keep me from being there.

Well, that's it for now. PS. Only got up 3 times last night! Forward...

I'm truly home!

Yes, it's me. Just got done catching up on my blog. Read everything. The blog and it's comments. Means the world to me. So much I don't remember and this gives me a chance to read all about it.

Marie: Yes, received the needlework that you created that said CANCER SUCKS. Because we both know that first hand that it does. Thanks.

All my bloggin' friends and family, a big hug of gratitude for your love and ongoing support. What a great idea to send me cards via the hospital. Was fun getting mail.

Joe H.: Thanks for your visits this past hospital stay. And thanks to the church for the prayer shawl. I am truly blessed.

Since I am on oxygen I have new piece of furniture in my house. An oxygen tank. Attached to that is 50 ft. of clear tubing. So as I walk around the house Barry can keep track of me! I don't have to stay on it all during the day, just as needed. Definitely need it when I lie down. Last night consisted of getting up to pee every 90 mins. and then putting oxygen thingy up my nose. Very uncomfortable just laying on my back. I still have staples and stitch to be taken out next Th. at surgeon's office. Area is sore. Both fingers became like the Hulk, swollen with fluid. They had me on IV. Never disconnected it, even after being on regular food. Gained 10 lbs. while there. Once I complained, the IV was disconnected. No wonder I was going to the bathroom so much.

Used to enjoy naps and sleep, now I don't look forward to it. Hopefully the feelings will come back. Even with morphine drip, give as much as you need to yourself, never took the pain away.
Not afraid of dying, just take the pain away.

Again, thanks!

THE RUBY RED SHOES WERE CLICKED AND

jane got her wish and is in the house. Waiting for the oxygen to arrive. Sounds like waiting for a horse to get into place for the Kentucky Derby. I think Jane would have paid any price to get out the hospital environment. THERE IS NO PLACE LIKE HOME AUNTIE EM!!!! adios moe

I AM HOME..........

Jane is on her way home. I haven't talked with her, but Barry is picking her up. Hope you have a good rest in your own bed and jammies. Peace and quiet too. Love you all..........
Eileen

"I'm still in the hospital" I GOT A BUNCH OF ECARDS TODAY!!!

and i can't wait to get out of this place. Jane seemed a little short of breath. We talked briefly as supper just had arrived. Is in pain and says the oxycontin immediate release not on the med list so hasn't had-told her to tell them she needs it-has been taking for months. She said she will probably go home tomorrow and has been approved for home oxygen. The chest xray today was good. To me she seems a little sad. Will blog tomorrow after work. adios moe ToldJane Doreen thought of the ecards!

"A MUCH BETTER SLEEP"

and a great big thank u for those who gave sleep energy to Jane and she just told me she slept much better! Already had the 5:30 am CHEST XRAY machine roll into her room. Had mentioned last night when Tim visiting she might go home today.Barry worked last night. Her voice sounded with minimal shortness of breath, oxygen with water moisture going, and the usual morning phlegm being coughed up. I told her I would catch up with her later. adios moe

"wish i had headphones"

to block out the iv noises etc.. I can't wait to get out of here and go home and sleep in my own bed. It "just hurts" And yes ,Joe Hopkins stopped by with a prayer blanket made by the church Jane attends. I told her names of all bloggers to date.

CHEST TUBE OUT!!

with a brief phone call jane told me the chest tube is out, will have cxr in the morning,moved to another room, in pain,and I can't talk anymore "I AM POOPED" May u be more comfy soon!! love moe