Saturday, August 05, 2006

Chain saw art

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Hand loomed rugs for sale

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Amish market place at the Town Fair

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Amish boy looks down the street

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Music that touched my heart today

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A song dedicated to us

This weekend our town is having a street festival. My neighbor had told me that she and her friend were going to be singing Christian songs in the afternoon. So I went down and got a front row seat. Unknown to me, she dedicated a song to "a neighbor who went through cancer, along with another family member and who always had a smile on her face while doing so." Can you believe that! I must admit, as I sat alone in the front row, that I shed tears as she so graciously sang the song. Once again, angels walk among us. I am so blessed to have such wonderful friends! Thanks, Terry and Mary

Friday, August 04, 2006

No SPAMMIN' on my blog

Spammin' my blog is when someone leaves an anonymous comment on the blog, just a few words. But in the short comment there is a hyperlink that they want you to click for you to be sent somewhere else. That somewhere else is a place they want to benefit from you visiting. This has happened to me, but now I'm in the driver's seat and am taking ownership of my blog. I have fought cancer, I don't need to fight spammers.

Tim's back home from band camp. He was gone all week. I sure did miss him. It's amazing how much these kids learn in just a few days. Memorization of the music and the marching that goes along with it. Truly wonderful to watch. House was too quiet.
Football season, here we come!

Wednesday, August 02, 2006

Trying to stay cool

Today I was told that they are having a going away party for me next week at my job. A bunch of us are going out after work to a Mexican restaurant. Am really looking forward to that. It was a choice between a food day at work or restaurant after work.
And since you can't really enjoy yourself at work with the phones ringing I chose the restaurant. Should be lots of fun.

Am so tired of the heat. Every day it's in the 90s with humidity. I guess next February I'll be wishing I had some of this heat.

I have gone two days this week to spinning. Today I felt a bit out of place though at this class. I think I was the oldest one there, others looked like they didn't need to exercise at all. Very young and in their workout attire. And the music that was played was not the type I would ever listen to. I don't think I'll go back to this day's class again. Too loud and I just had trouble keeping up with them.

Have been eating out a lot this week. Tomorrow I've been invited for a girl's night out at local restaurant. Unless something changes, I'll be there.

PS. Had my first follow-up visit with my radiation oncologist today. Everything looks great. Only thing he said I should do is to have colonoscopy. Had that on my "to do" list this year but... He gave me the name of a doctor who uses the pill camera for this exam. You swallow what is a small video camera (size of jelly bean) and it takes many many pictures in an 8 hr. period. You wear something around your waist that records the insides of your body as it makes it way through the dark tunnels. Will look into that. Just hard to think of making an appt. since I'm starting a new job shortly.

Saturday, July 29, 2006

I let Tim get in driver's seat

It's been so hot and humid lately. Have enjoyed staying inside after work. Have kept up with spinning exercise. This week I went twice after work. A lot of fun, a lot of sweat. It's about 45 minutes of high energy exercise listening to good music.

This evening Tim and I did head back to the local college track. I walked a little over a mile, he ran for quite a few laps more than I did! That's youth. It was such a beautiful site. There was a boat in the lake with a couple of guys in it. Had a small trolling engine on it. Something you don't see often. Usually only see people fishing there. It's not a large lake by any means. I did hear that a few years ago it was actually a swimming place. One of these days I have to bring my camera and take pictures of it.

Haven't written about Barry lately. He's been feeling some pain in his shoulder and liver area for past month. But you know, he never complains. I only know it because I ask him how he's doing. Takes the alleve and keeps on going. Knowing what he is going through, I try not to complain about any aches I have. One thing that amazes me, he has not lost his hair with this chemo treatment. Even though he's getting same adriamicin that I had. Strange but good.

Oh, one other thing. After Tim and I walked, I let him get in the driver's seat of truck and drive up the driveway! Can't believe that in February he'll be getting his learner's permit. He told me that I don't get out of my comfort zone (or something like that) and be daring. Then I let him back down the driveway. And you know, he did it by using the rear view mirrow. Pretty good. I always have to lean out the stupid window. Kid is growing up too fast.

Next chemo treatment for Barry, which is August 15th, I'm taking Tim with me. He'll be company for me. This way I won't have to worry how he is doing at home. And if there is accomodations for us at the local housing/hotel for patients' families. You don't know until the day of the hospital visit. I've put in a reservation already. And you know, it could be a good boost for Barry to have him there.

Tim heads to band camp tomorrow for the week, and Barry also is heading to a business training seminar all week. Sure am going to miss them both. It just happens that both are at the same time. Good thing is I don't have to cook! (not that I have been doing that much)

Thursday, July 27, 2006

YEAH... NEW JOB FOR ME!!!!

Got word this a.m. from Human Resources that I got the job in the other dept! After almost 3 1/2 years I'm moving on. Can't believe it. More to follow....

I start new job on Aug. 17th, my last day at present job will be the 14th. Barry's next chemo is the 15th/16th, and the new department is very accomodating for me.

The job is a lateral move but as you know, money is not everything. I've been unhappy way too long in the job that I've been doing. When I came home from work today, Tim greeted me with a big round the shoulder hug and a smile. Ask anyone, he knows. Life is too short not to be happy. And I need to be in a more positive environment. Now I will be able to focus on one specific department rather than a whole bank's department.

If you get the chance to talk with me directly, understand that I'm not on speeed when I talk: just truly excited! And I'm going to be working for my friend who also left my present department for bigger and better things. Can't wait until Aug. 17th.

Sunday, July 23, 2006

WOW what a day...

It's been one of those uplifting days, even though that was not even planned. Today's sermon was about having plans, and how sometimes our plans change. We may have our own plans but God has HIS plans for us. It was one of those sermons that just hits you in the heart, and I get the pen and paper out to write down just a few words to remember later.

In the evening, after Tim and I went to local ice cream store, we went to the college track to do some walking/running. There was a lot of activity at the college. Tim told me that it was Missionary week there. I could not believe all the people walking around the campus. As I was walking I could hear music in the amphiteatre which quickly caught my ear. I'm a sucker for music. After we did our exercise, we headed up in the car to see what was happening. As we drove up, a girl's voice called "hey Tim K". I thought, geez a small world! Not knowing that it was a girl from his school who was attending the missionary event. She talked of a great speaker (Tony Campolo) they had, and invited us to attend the next event. We drove home, I did an online search of the college and the missionary conference and did find out that it was an evening open to the public, and that David Bailey (a Christian singer) was also going to perform. This man's name and story was told to me last year when I was going through chemo. Jody had mentioned to me that he had been diagnosed with a brain tumor (now also a cancer survivor for 10 years) and had been told he only had months to live.

To make a long story short, Tim and I changed and went back to the concert and evening of prayer. It was full of Christian singing, the kind I adore. Words to the songs appeared on a large screen so you could raise your hands/clap your hands and sing/dance to the songs. This was followed by a very moving minister. I can't recall his name, but will look it up later. David Bailey was truly moving as he sang . After his performance I did go up to him and state that I was a cancer survivor along with my husband. I'm not ashamed to say that I shed tears this evening, tears that cleanse my soul. I truly get moved by song and do truly enjoy upbeat Christian music. For some reason the Catholics don't have that going, at least in our church. And for me, feeling the faith in song is so meaningful to me.

It's truly been a great day. One not planned at all, but aren't those the best kind of days.

The missionary conference is in town all week and I've been invited to be a part of the evening music whenever I can.

God bless you.


http://www.davidmbailey.com/

http://www.tonycampolo.org/abouttony.php

Tony Campolo, professor emeritus at Eastern University, is the founder of the Evangelical Association for the Promotion of Education, an organization that develops schools and social programs in various third world countries and in cities across North America. He is the author of many books, his most recent being, "Speaking My Mind."

Saturday, July 22, 2006

Nice bloggin'

I would like to thank my new bloggin' person who took the time to post comments by reading archive records of the blog. It's the positive feedback that I get, that keeps us going. This blog was created as a form of therapy for me. Took too much time to write down things in a diary form. Typing is so much easier. There have been times that I have thought of stopping the blog but have told by a few people who read it not to do that. There truly are a lot of caring people in this world.

Had lots of rain last night and this morning. Farmers will truly like that. Not much sun is shining today. But it's a perfect napping kind of day...

Keeping fingers crossed for positive news on job I applied for.

Well, I did take a nice 2 hr. nap this afternoon. Even was able to dream. Felt so good. After waking from my late nap, I got hold of Barb (my new friend whose husband was recently diagnosed with cancer) and arranged to meet her 1/2 way to deliver a meal I had made her. It felt so good making her a nice meal since I have been on that receiving end. So many people made meals for us last year, and now I know how good those people also felt. A great feeling. I also gave her husband a Survivor bumpersticker that I had bought awhile ago. Always knew (unfortunately) that there was going to be another person diagnosed with this terrible disease. A very nice woman has once again entered into my life.

Wednesday, July 19, 2006

Friendship

I was so pleased to just read an email from the woman I met while camping on our way home. Her name is Penee and they are traveling in their large RV for a few months. I tell you, there are so many nice people out there. Usually just takes a quick hello and you've made a new friend!

I got an email from Barb (husband has pancreatic/liver cancer). Her husband just got his first IV of Vitamin C megadose. Very interesting way of treating cancer. Barry in fact had found something on internet when he was first diagnosed about this. Am anxious to share this with him.

Tuesday, July 18, 2006

Cancer touches another family

While on vacation I learned from Jody, that a man she knows was recently diagnosed with pancreatic cancer which has spread to liver and lymph nodes. She had asked that I contact this man's wife to help her out. In fact Jody gave her my blog address. Chemoembolization had been mentioned to him, but recently a doctor said to wait a few months and do some kind of hormone shots right now. I have corresponded via emails with her and look forward to talking with her on the phone. She has her hands full, a mother of teenage triplets. As Jody was to me, I will try to be to Barb. Someone she can vent to. I have told her that good things can come out of bad situations, like friendships! Also told her that second/third opinions are quite OK. Be your best advocate. I wish her and especially her husband the best. Keep the faith.

Today I had an interview for another department within the bank. I left the interview knowing that I gave it my best shot. Am praying to get the job, as I've not been happy where I am. Don't want to get burnt out. Keep your fingers crossed for me! Will know within a week I believe.

I did take lots of pics on vacation. But have to take the time to organize them. Soon I will post some online.

Saturday, July 15, 2006

Home sweet home

Woke up to rain this a.m. but the ride home was in the bright sunshine. Got home in about 6 1/2 hrs.

Glad to report that there were no truck or trailer problems. Everything worked just fine.

Trailer has been unpacked, sheets are being washed, and the grass has been cut with Tim's help. Boy, did it grow in 2 weeks. Tim will be weed wacking tomorrow for sure.

Was glad to see turkeys still in the neighborhood when we came home. Also bought some fresh Amish corn! Hope it's tasty.

That's it for now. A great vacation.

Friday, July 14, 2006

Vacation time is winding down...

We're one night away from being home from our vacation. Staying at a beautiful campground in Verona, NY. It's associated with a casino called Turning Stone. We went to the casino and had our dinner there. Did not spend any cash at the casino itself! For the first time this vacation, I had a swimsuit on and went in the pool. While there I spent over an hr. talking with a very nice woman who had pulled into the campground at same time as we did. They are from Nevada and own over 580 acres on a ranch. They are driving a large diesel pusher like my brother owns. Traveling for about 3months and going up through east side of Canada. Really enjoyed talking with her. Why is it that you meet the nicest people on your last day? May give her my email address to keep in touch. They also use laptop to communicate with family. Got to the campsite at about 3 p.m. Such a beautiful campground, no tents allowed. A nice pull through site with the luxury of 99 cable channels and wireless internet service. Life is good.

Hard to remember everything we did while on the Cape. Especially since I didn't blog daily. We had an early 85th birthday party for my father. It was done early to coincide with us being on the Cape. There was so much food there. Lobsters galore. We treated my father like a King. There was about 45 guests there.

Tim went whale watching one day with my sister and saw tons of whales. He really enjoyed that. She packed a nice picnic lunch for the two of them. He's looking forward to doing that trip again. He said it was funny when the whale watcher would stand up top of the boat, tell everyone the location of the sightings, and then all the people would go to that side of the boat and make it lean over.

Barry's cousin Tim and his wife Amy came to see us for two days. A shorter trip for them to see us on the Cape then in Pennsylvania. We were able to go out to with them for a couple of meals. It was great seeing them. The weather was not in agreement, so we were not able to ride the canal with them.

The time went by much too quickly. Did not do all that we had wanted to do, not enough time. But we did spend time with family which was a priority for us. I am certainly going to have to get back to the track for some laps. Had lots of seafood, could have had more ice cream! Didn't make it to Partee Freeze. Next time!

Tomorrow we leave here and head home. Til then....

Monday, July 10, 2006

Have not had luxury of internet while on the Cape. The time is going by too quickly. Not sure if we'll be able to do all that we wanted to do. Tim is actually gone for a whale watching trip with Maureen as I visit with my parents and use their computer. Barry's going to be working on Dad's computer after I sign off.

Weather has been nice. Enjoying the views of the Cape Cod canal. We've been watching a lot of DVD's each evening. The local grocery store rents them from a self service machine like a soda machine. All for only $1.00 each day. Can't beat that.

Well, time to sign off and enjoy family. Looking forward to seeing Cousin Tim and his wife tomorrow who are coming from Ct. Should be a good time.

Wednesday, July 05, 2006

Lunch at the beach

Since arriving on the Cape, have not had luxury of internet access at our new campsite. Right now I'm online at my dad's house. As they say, having a good time. Tim and I have played scrabble and yahtzee in the evening, rented DVD last night. Yesterday Tim and I rode bikes on the Cape Cod Canal, a 7 mile bike path. Very nice ride. (even though the wind was against us on the ride back). We've been enjoying the seafood, having it whenever possible.

Today we went to see my brother who is camping near Provincetown in his RV. In preparation for a sunny day at the beach, we took bathing suits and suntan lotion. Unfortunately, it rained most of the time we were there. You can never plan the weather. Once again, Doug went all out on cooking us a nice meal. Spaghetti and meatballs, hamburgs and hotdogs served under the awning of the RV.

And we got to experience traffic on the way back from the beach. And we have still some miles to go before we actually get back to our campsite. Have heard on the radio that there is the usual traffic backup. Not looking forward to that. I certainly don't miss traffic. Love my country living!

Saturday, July 01, 2006

On our way...

We made it to our first stop at about 2:30 p.m. Staying at a nice KOA campground in Herkimer, NY. Have about 330 miles/5 hrs. to travel tomorrow to reach Cape Cod. Not including what could be heavy holiday traffic. Sitting in camper, using laptop and being online. I know some people, like Cousin Tim, would say that is not camping! Oh yes, the satellite dish is outside so we have cable also. Life is good. Cooked spaghetti (well, heated up jar of sauce Meg) and bratwurst on the grill for dinner. A nice dinner.

Not sure when we will be leaving in a.m. Time will tell. Very hot here. Temps in 80s. Til tomorrow....

Thursday, June 29, 2006

Still walking and liking it.

Believe it or not, I continue to do my walking. Heck, for me that's a record! As of this a.m. (and it will probably go back up on vacation) I have lost 6 lbs. My goal is to lose 9 more lbs. But with all that seafood I plan on eating, I will have to continue to do my walking. Still can't get into some clothes from last year.

Even brought shorts and tank top to work to change into for my walk during my lunch. Much more comfortable than wearing pants. Put my head set on and I'm ready to roll.

Tuesday, June 27, 2006

Tim went to doctor this a.m. for physical and to go over his recent headache. Dr. told him to try over the counter migraine medicine first, and if after 1/2 hr. the headache is still there to take a pill that was given to him. Has only had a couple of these headaches in over a year, but at least we have something to relieve it.

While Tim was at band practice tonight, I walked with BJ since her son was also a band member. It was perfect timing, unplanned. I think we talked about spinning the whole time we walked. And we walked for 1 and 3/4 miles, more than I usually walk. Went by fast with good company. Thanks!

Monday, June 26, 2006

Spinning

After work today I participated in my first (and hopefully not my last) spinning class. The teacher of this class happens also to be my oncologist. And what people have told me about him is true: his class is HIGH energy. I may not have been able to keep up with them, but at least my legs were moving the whole hour.

"How is taking a Spinning class different than just riding a stationary bike?
Spinning class makes riding a stationary more bike fun by adding variety and visualization into your workout. A motivating group setting, energizing music and inspiring instructors make Spinning class an incredible experience."

The lights are dimmed and the music is upbeat. I can't believe how much I sweated. It was a lot of fun. I actually told Dr. G that he should be paying me to take the class, instead of vice versa! Got home and took a couple of tylenol. My butt was a bit uncomfortable. But was told not to get discouraged by the first class. After vacation, I will return to another class.

Saturday, June 24, 2006

A social day.

Last night I went to a girl's night out party which was very nice. Lived elsewhere and never had done that. Guess that's what makes this country so nice. Had a lot of laughs with my friends. Thanks!

And this afternoon, the three of us went to a graduation party in the neighborhood. It was for Dr. G's daughter, one of Tim's friends. We certainly will miss her. She was Tim's walking to school buddy. It was a great day for a party, thank goodness the rain stayed away for this day. I was also able to cut the lawn today. Tomorrow will be Tim's turn to weed wack the yard. Even did my one mile walk at the track while Tim went to the golf range.

Tim's at the bonfire now for the graduation party. When he went there, we went for some ice cream at the local stand.

All in all, a great day.

P.S. Tim has not had any additional headaches since last week. Will be going to see doctor on Tuesday for a physical/checkup. Thanks for asking.

Thursday, June 22, 2006

Feeling much better today

Barry was much better today. Am glad to be able to write that. Actually stopped in at work to check out a couple of things. I was surprised when I came home and Tim told me he was at work. He went to the cancer center this morning and got his neulasta shot ($5,000). Thank goodness for insurance. Between the two of us we are worth lots of money!

Finally had some much needed rain last night and this afternoon. Love the sound of rain. Had not had rain for a couple of weeks.

Tim got a new set of golf clubs today. So he's all set to play some golf.

Wednesday, June 21, 2006

That's life....

I got to the hospital by 9 a.m. today. Barry was asleep when I arrived. Had just got shot of morphine. He awoke shortly afterwards. Had as restful a sleep you can in a hospital. So many noises and interruptions just while I was with him. His doctor arrived and gave him the OK to be discharged. I think the only thing Barry ate while in the hospital was a cookie and drank some ginger ale. I definitely ate more than him! This was the first time he left the hospital with me pushing him in wheelchair to the door. Discomfort and light headed, and glad to be going home. I think it was about 11:30 a.m. when we left the hospital.

After his doctor gave him the OK to leave, he went to see the elderly man in the bed next to Barry. 80 years old and just told that he has pancreatic cancer that had gone to his liver. A frail man as it is. After going over his limited options due to his health, the man's comment to Dr. G. was "That's life." Again, so many stories to be told.

We got home and I cooked burgers on the grill for Tim and myself. Barry immediately went to bed. After I ate, I did the same and slept for a couple of hours. It's always a couple of exhausting days when he has treatment. I am thinking of staying at a Ronald McDonald type of hotel near the hospital next treatment, to save on driving back and forth. Am hoping that Tim can come with me next time to keep me company. This way I won't worry about him while I'm gone.

Barry's moved downstairs now to watch some TV with Tim. While Tim did band practice, I got back on the track and walked a mile. I've been doing 1 -2 miles a day (except yesterday). Enjoying it which is strange.

Tuesday, June 20, 2006

Treatment 3 is done!

We left for Pittsburgh today at 4:30 a.m. and I've just returned home at 10:30 p.m. A very long day for us.

Today's treatment seemed to be the worst for Barry of the 3 he has had. More pain than the first. He did receive morphine and some other drug for the pain. I would say that on the whole, we did not have much conversation at all today after he came to the room. He was just in such discomfort in the belly area. I was just there for support mostly. The only thing he had was a sip of water all day. As in the past, I had bought a sandwich for him to eat but he never ate it. I did tell the night nurse when I left him at 8:45 p.m. that it was in frig for him. Every treatment is so different. I'm sure he didn't even realize that I left him when I did. Tomorrow will be a better day.

Barry got to explain the process to a woman who was undergoing this chemo treatment today for the first time. Always nice to talk with someone who has been where you are going. She has had breast cancer, went into her spine and now liver. You truly meet many people with so many different stories to share.

And like the other two times there, a room mate of his was diagnosed with cancer: pancreatic cancer. He's a frail 80 year old man. And later in the evening his condition went another direction because he lost feeling in one of his feet. Possible blood clot from an earlier procedure he had years ago. Just a shame.

Good night.

Monday, June 19, 2006

Things

Yesterday Tim had one I researched to be a migraine headache. We had gone to the track early in the a.m. and the temps were already in the low 80s. He jogged, I walked the usual laps. Early in p.m. he complained of having tunnel vision in one of his eyes (before that he was lightheaded). Shortly after that, he was in cabinet looking for tylenol. I knew he had headache because he's not a pill person. He had a similar headache last year so he knew to tell me the symptoms this time.
He ended up sleeping most of the afternoon, the headache just stayed there. After researching online, I did find information on migraines. Gave him cold cloth for his eyes and more ibuprofen. By 7 p.m. it was much better. Only hurt when he would cough or get up quickly.

Since I had a doctor's appt. this a.m., I mentioned this to the dr. I've made an appt. for Tim to see him next week. Today Tim is feeling all set.

Tomorrow a.m. Barry will be going for his 3rd chemo treatment in Pittsburgh. Will be a long day for us. And as usual, will post when I get home.

Take care.

Sunday, June 18, 2006

Happy Father's Day!

Already 70 degrees. Going to be a hot one today.

Saturday, June 17, 2006

4th and final Relay for Life today

Today I walked my 4th and final Relay for Life for an hour. Actually rode my scooter to it. I was able to walk with two of my friends from my job. Am glad I went early in the morning as it was a very hot day. But my legs are certainly feeling it tonight. Tim did lawn duty for our neighbors the past couple of days. He enjoys that job. And later in the evening he helped Barry clean off the roof of the trailer with some bleach. Getting ready for good ole' Cape Cod. Can't wait.

Yesterday I got another rejection letter from the college for a job I had applied for. I guess they don't know talent. Just not meant to be. But there's a job opening coming up where I work which I will apply for this week.

Wednesday, June 14, 2006

Walk walk walk

I continue to walk, even during my lunch time at work. Each day I try to walk at least 2 miles. Instead of walking tonight, I cut our lawn which took over an hour, and that does work up a sweat doing that. And I am enjoying listening to my tunes as I walk. Really gets me going.

Turned down ice cream again at work today. Had my fruit instead.

Monday, June 12, 2006

No change in CT scan today

Barry and I were at Pittsburgh hospital by 7 a.m. this morning. He had a CT scan done, followed by a MUGGA scan. At 10 a.m. we arrived at this doctor's office. We didn't see the doctor until just before noon. And as you can expect, we saw the doctor for about 5 minutes. A very long wait. Wouldn't be bad if you knew before hand that it would be such a long wait. You could have planned around it, like get a bite to eat or nap in a chair without the anticipation of being called. From the beginning we were told the results would be one of three things: No change and shrinkage would be good signs, or the cancer could grow. It has stayed the same, no change. So we have to be thankful of this result. After two cycles of this treatment the cancer has not grown. Next Tuesday will be his 3rd treatment.

By the time we got out of the hospital it was about 12:30 p.m. We found a Costco on the way home and had hotdogs. A quick lunch since we had not eaten breakfast. Didn't get home until after 2 p.m. Barry quickly changed and went off to work. I went to the track and walked 2 miles. Tim played racquetball with a friend.

By 4 p.m. I was mentally and physically tired and took a nap. When I woke up I defrosted some 'sgetti sauce and meatballs that Meg had made us awhile back. Believe me, that was a blessing. To have a nice meal without having to cook after a long day. An angel!

That's it for now. Thanks for all your prayers.

Sunday, June 11, 2006

Sunshine continues

This morning while Tim played tennis with his friends at the college, I walked 2 miles on the track. Was another perfect day with no humidity. Can't beat that. Tim downloaded some of my favorite tunes into a MP3 player to listen to while I walked. That was great.
Later on Barry waxed his truck and I vacuumed mine. Tim went to another graduation party. The last one he'll be going to is in a couple of weeks for T. We've been invited to attend that and are looking forward to it.
In the afternoon I layed out on lounge chair and got some "color" as my father would say. Even fell asleep listening to my tunes. The only problem with the color is that I have the good old white spots under my neck. Last year I didn't spend anytime in the sun since I was going through chemo. Believe me, I'm not a person just to lay out in the sun anyway. First time in a long time I've done that.
And since I did some walking in the a.m., I treated myself to a real nap in bed when Tim got home. I figured I could do both. My legs certainly are a bit sore tonight. Not used to exercising.
Tomorrow we head to Pittsburgh for Barry's tests. Will keep you posted. Positive thoughts and prayers...

Saturday, June 10, 2006

A beautiful day

I accomplished a lot today. I dropped my truck off for yearly inspection at 8 a.m. and then walked around town for about 40 minutes. Once that was done, I went for scooter ride and got that inspected. So my inspections are complete. Even the camper is set for the year. Tim refereed his last soccer game of this season. It was such a beautiful day today. Felt almost like a fall day. Both Barry and I washed our trucks in the afternoon.

Tim went to another graduation party this afternoon. Tomorrow he has yet another one to attend. And while he was gone, Barry and I went out to an Italian restaurant for dinner. It was such good food, enough that I was able to have a doggie bag. And on our way home the moon was so bright and full. If only I could have taken a picture. A beautiful site.

Summer vacation is starting off quite nicely for Tim. Already went to play golf with a friend, and tomorrow morning they are going to play tennis. Looks like he will be busy this summer. Glad he's finally found someone that will golf with him. He certainly does enjoy being outside and athletic.

Friday, June 09, 2006

3rd Relay Walk today

After work today I'm going to my 3rd Relay for Life walk this year. Heading there early to walk the track for an hr. in preparation for the survivor's lap. For me I need a push at times, and thanks for that nice poem "anonymous." I need that.

As planned I did go to the Relay for Life walk where I met a few of my friends. I remember going to that event last year, a day after I had received a chemo treatment. What a difference a year makes. Being a part of these events means so much to me. It's an emotional event. Just makes me realize once again how many angels are on this earth.

I am off on Monday as Barry will be having CT scan done along with a repeat MUGGA scan. This will be first MUGGA scan since February when he started this new treatment. That monitors his heart as this chemo drug can do a job on the heart. I continue to pray for shrinkage of this larger tumor. We will then meet with the doctor to go over the results.

I had been thinking of not blogging for awhile. Thought that perhaps no one is reading especially with every one going on with their busy lives and upcoming vacation plans. But perhaps there are one or two out there reading without commenting. I can say that commenting does give me purpose. I will especially remember the latest poem. That was a good one! Thanks.

Thursday, June 08, 2006

Graduation

Tonight Tim and I went to the High School graduation held at the college. What a great group of kids. I was touched by one of the speeches given by the salutatorian ( I think that was his title). He ended his eloquent speech by hoping for a cure for cancer, and that he would not be the one to find it. I had to find him after the ceremony just to hug him for mentioning this dreaded disease which has touched my heart so deeply. I told him I wanted to give him a standing ovation for doing so. I also told him that perhaps he would be the one to find the cure. I can't explain, but there are just certain times that people can truly touch your heart. There was also talk of being a kind spirit, to always wear a smile. Such a nice evening which I'm glad I was part of. And another highlight was getting a hug from Megan before she entered the auditorium. She was in line, but took the time to approach me for a hug. And I thank her. Tim's close friend T. graduated tonight with honors and was the youngest in the class, not even 17 years old. Tim certainly does know how to pick kind friends. There was just something you can't put your hand on about this group of kids. I will truly miss seeing them at band and at school functions. I wish them the best!

And in 3 years, it will be Tim's turn. I know that this time will fly like all the other years. It was another good year for him, and I continue to be so proud of him in what he has and will accomplish. He's been through a lot since last March with 2 parents going through cancer, but he has pulled through as a true survivor. Not only is a good person and friend, he's also an honor student. He is the reason that we can smile while going through what we go through.

Best of luck to all graduates!

Tuesday, June 06, 2006

Another school year comes to a close

Hard to believe that the school year is ending. Tim has 1 1/2 days left to go. The past couple of evenings we've been going to college track to do some laps: I walk about 1 mile, and he jogs about 2 miles. And he doesn't even sweat! Oh, to be young.
Even at lunch today I did some walking around the building. Even turned down McDonald's for breakfast and ice cream for afternoon snack. There's always so much food at work. Have to be strong and just say no.

Thursday night is graduation. Tim and I will be going. Will certainly miss this group of seniors. I think they're the best. A lot of good kids.

Barry's been told his next chemo treatment is June 20th. Not sure when the scans and heart test will be. Should be scheduled before the treatment some time. For some reason, the doctor's office did not schedule these appts. as they should have done. We're waiting to see what date they come up with.

Sunday, June 04, 2006

Another weekend.

The weekend went by too fast. But everything seems to be that way. Hard to believe that Tim just has 3 1/2 days left of school. Even he thinks the year went by fast. He's in the middle of taking finals, and so far is going quite well.

Yesterday he helped Barry work on his truck for hours. The work involved Barry being under the truck, and Tim was able to be a fetcher of tools and to lend a hand for tight fitting areas.

Today I felt old. You know your child is getting old also when he is driven to events (today a soccer game) by upper classmates. I think this was the first game I didn't go see him play. But it's a good thing and we're all getting older. We are just lucky to have such good friends.

While he was at the game (which they lost), I did some vacuuming and then decided to go to the college track to walk some laps. I walked 5 laps which Tim has told me equals 1.25 miles. Better than nothing. We've had so many rainy days this week that it felt good to be outside doing something. Never was able to cut the lawn. And I then came back home and took a nap. When I woke up the sun was out and is still out a few hours later. A shock to see!

Wednesday, May 31, 2006

Family is the best.

I'm so excited that 'cousin Tim and his wife will be able to visit us while we are on the Cape in July. It truly will be a time to see the whole family. That's what life is truly about! I can almost taste the fresh lobster and shrimp. Dad, you better save some for us..

Tuesday, May 30, 2006

I hate paperwork.

Tonight I finally got around to filing about 4 months worth of receipts/bills. They had been previously filed on my stairs! So it was a productive evening..

Monday, May 29, 2006

Back to work

This weekend was so beautiful. Temps today got up to 90 degrees. Am thankful for air conditioning. Tim and I did a lot of yard work this weekend. Tim did weed whacked our neighbor's yard and then did our yard. And I know that is a lot of work since I tried it once. It had always looked easy. Barry put up some brackets on the deck so that I could hang flower trays. Looks very nice. Yesterday he also put together the smoker we gave him for Christmas. I think he would have liked it better had it come already put together! It was a weekend for cooking on the grill.

This morning I worked for about 5 hrs. at the bank. Everytime our bank buys another bank the conversion takes place on holidays. Lucky us! It makes it impossible to enjoy a long weekend. But I still have a dream, and that dream is to work at the local college. Have had that dream since moving here. And I'm not going to give up.

My father has asked that I write about Barry since I haven't written about him for awhile. It's been a nice weekend for us. The three of us have spent the whole weekend together. I think Tim was a bit upset having to do the yard, but I've explained to him that things have changed. What Barry used to do, can now be done by him. And in the end, it all worked out. We are so looking forward to going to the Cape in July. It's something I think we need especially with the things happening in our lives. Can't wait to see family. Today at work people talked about BBQ's and family get togethers, our time will be in July!

Friday, May 26, 2006

TGIF

Yesterday I met with my oncologist for a 6 month follow-up. He told me that it's not uncommon to have cholestorol go up and down for about a year after treatment. I told him (and he said OK) that I was going to try garlic pills for awhile. He did mention that the drug for high readings can cause muschle aches and liver damage. For now I am going to go the herbal route. I don't have to see him for another 6 months.

And today was my follow-up appt. with my surgeon. All is healing fine. So I'm finished with that dr. Yeah.

Can't believe Memorial Day weekend is here. And yes, we bought another bank so I have to work on Monday. Yuck. What a way to ruin a long weekend.

Wednesday, May 24, 2006

Nothing much happening

No news is good news. Been a couple of quiet days here. Finally bought some plants to make up some bags and baskets. About time. The weather is finally getting nice.
Got the results of my blood work from last week. Cholestorol is high. Dr. wants me to take lipetrol (not sure of spelling). Not doing that right away. May look into taking garlic pills as an herbal treatment. Just don't want to take any more drugs. Tomorrow I go for my follow up appt. with Dr. G my oncologist. Been a few months. Have seen him socially as he's a neighbor. He instructs a spinning class, exercise done on stationery bikes while listening to some good music. Have heard that it's a lot of fun, and it's done very close to where I work. I would be able to go there from work. Will at least go for one class to see how it is. Since last year I've gained about 15 lbs. Just wish I could stop wanting to eat. Exercise and me don't work out too good.

Sunday, May 21, 2006

Tim's first recital

The day started off very cool, about 39 degrees with drizzle in the air. It eventually did clear up a bit but the temps were still in 50 degree range and windy.

Tim was in his first recital today at the local college. There were about 20 students who played either the flute or the piano. One duet was a mother and daughter flute team. I told Tim not to get any ideas on that one! And there was one other adult student. It was very enjoyable. Tim did a great job. The teacher certainly did a great job with the students, a very professional recital. It makes me second guess my decision on not having Tim take lessons with her next year. I had decided to not continue next year since it's about 25 minute ride to her house. Am hoping to get someone closer to teach him. But after seeing this production it does make me think twice.

All in all a very nice weekend.

Tim was in a recital today that included flute and piano students.

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Saturday, May 20, 2006

Relay for Life

Barry arrived home late last night. I don't know how one can drive for so many hours without a break, but he did. It was important for him to wake up in his own home for the only true day he will have off before going back to work. Was able to get some rest in today.

Tim refereed a soccer game in the morning. And after lunch he went to a recital practice which is scheduled for tomorrow afternoon. His first recital with about 20 students. Looking forward to it.

I went to the Relay for Life walk in the afternoon. I was able to walk once again with Jody who is my number 1 bosom buddy. Our friends from last year were also there, along with Michele. It was great seeing everyone again. As I walked around the track for the survivor's lap, I did not shed tears this year. Perhaps it was due to so many tears that were already shed this week. I don't know why. I also got to thinking how much stronger I am now than I was a year ago. Sure I have weaknesses, but my strength is more powerful. I am so blessed to have such good friends to walk with me, at the Relays and during the other days.

Thanks.

True bosom buddies for life. You can't beat friendship. It's what keeps me going.

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This is what the Relay is about.

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WE are survivors! Me, Jody and Lynne

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Thursday, May 18, 2006

Withdrawal

As I continue to be honest on my blog, here's what's been happening with me the past couple of days.

The past couple of nights I've been having some very bad dreams, the type I would normally attribute to after I have eaten msg. I would wake up very sweaty. Plus since yesterday morning I've been having vertigo problems, the weird feeling of emptiness in my head/dizzy when just moving around. Took tylenol during the day yesterday, and was in bed by 7:30 p.m. Didn't get up until 3:30 a.m. for bathroom break. And the vertigo continued today. I made an appt. to see my doctor this afternoon. While waiting in the office, something popped into my head. For some reason, out of a different routine perhaps, I had stopped taking effexor at bedtime for night sweats. I honestly can't remember the day I stopped taking it. Don't ask me how this happened, but I'll blame it on chemo brain. Hence, withdrawal had set in. I am blessed in the fact that one symptom common to this type of withdrawal is thoughts of suicide. Thanks goodness that symptom did not come into play! The dr. agreed totally with what I had just told him. And the stiffness in my neck was a bunch of built up stress. Wonder why? He's a good dr. and does understand what we are going through.

The dr. gave me a few weeks of the medicine to take, but 1/2 the current dosage. I have already taken a pill to get it back into my system. This way I can attempt to wean myself off. But he told me to monitor myself, to see how I do with the night sweats. I now know why they say not to stop taking medication without consulting a dr. It's a terrible feeling.

Am looking forward to seeing Barry come home. I only wish it wasn't such a long trip for him to make. Tomorrow is his last day there, but unfortunately he'll be there in the afternoon. And after being there all week, I know he'll want to come home right away. I just hope that he rests a bit before the return trip.

Tuesday, May 16, 2006

Rain rain go away

We continue to have rain, but not as bad as Massachusetts. Thank goodness. Hopefully it will stop soon.

Last night Tim and I ate at a local restaurant. Pretty good food. But tonight I decided to be creative and make a new dish. It was delicious. Tim went back for seconds. Here's the link:

http://www.foodnetwork.com/food/recipes/recipe/0,1977,FOOD_9936_25022,00.html

If I can make it, anyone can. It's considered a 30-minute meal, not sure exactly how long it took me to make. Definitely one I will make again. I always have chicken tenderloins in freezer which makes it very easy.

Barry's been doing OK at his seminar. One thing he is noticing is the heavy smoke in the restaurants. A smell that we can do without. Times do change. I can't understand how anyone can enjoy puffin' away while having a meal. Beats me.

Well, that's it for today.

Sunday, May 14, 2006

Happy Mother's Day!

For Mother's Day today I woke up and cooked Barry a nice breakfast. He left at about 9 a.m. to travel to a training seminar in Illinois. Why he likes to drive I will never know. I think it's about a 9 hr. drive (600 miles), but time will tell. He'll be there all week and I'm sure we will miss him a lot. He could have flown but chose to drive. Flying in an airplane while going through chemo is not the best thing to do due to so many recycled germs. And he's looking at the bright side of the trip, a chance to see more of the USA.

Tim and I are headed to church soon. He has a soccer game later this afternoon. So far the sky has not opened up to rain. Just a cool cloudy day, unlike last year when the temps were in 70s. (I looked back at my blog to find that.) I haven't even made up baskets of flowers yet due to the cool weather we've been having.

Update: Barry had to take detour on trip due to at least a 10 mile backup (fatality involved) and that part of the road could be closed until evening. Thank goodness for CB radio. While on the many miles of detour he had stopped for a quick burger lunch and called us.

Tim and I ended up not going to away soccer game. Found out that it was over 1 hr and 15 mins away. Another soccer parent and I debated about going and made adult decision not to go. Am I glad about that. Shortly after deciding this, the sky opened up with thunder and the rains came. Good napping weather! My way of celebrating my special day! Actually Tim ended up in his room napping, too. Soon we may go for chinese buffet.

7 PM. Barry has arrived at the hotel. Thank goodness. A very long trip for one person to drive. Now I can relax knowing he's there.

Saturday, May 13, 2006

A day without rain

It turned out to be a pretty decent day. Tim and I were able to cut the lawn today. We also got invited out to dinner with two other families. Of course our friend the Beckster organized it all. We are truly blessed to have such good friends. So much for the much needed diet. But heck, there's always tomorrow...

Thanks! for the friendship.

Friday, May 12, 2006

MUGA results

I met with a cardiologist today to go over my echocardiogram and MUGA heart scan results. Since my sister is a nurse, I asked her for a copy of the reports to show her directly. Because I knew that once I left the office, I wouldn't remember all the technical terms she mentioned to me. The bottom line was that the heart does show some weakness due to the chemo drug I had for breast cancer. The numbers are lower but I was reassured that it's not to the point that I need to be worried about it. She explained that since I stopped the chemo a few months ago, that the heart could remain as is or even get stronger as time goes by. She has recommended another MUGA scan in six months. She said that swollen ankles, bloated belly, shortness of breath are things to look for. I laughed when weight gain was mentioned. Heck, that's me! But I've read and she agreed that having cancer can cause the weight gain. When I see my oncologist this month for my first follow-up appt., I'm going to inquire on when I can stop taking effexor for the night sweats. I am a bit concerned since I've been reading about bad side effects when you stop this medication. This med can also cause weight gain. I seem to be on the diet: see food and eat it! And I definitely didn't like her scale.. Lots happening in our lives right now. Somehow I've got to get motivated and walk.

Thursday, May 11, 2006

Cancer

Today's news:

MIAMI, Florida (AP) -- Colombian-American singer Soraya, who won a Latin Grammy for best female album in 2004 and worked to educate Hispanic women about breast cancer, died Wednesday after battling the disease. She was 37.

She died in a Miami hospital, said Lorena Oriani, a spokeswoman for her record label, EMI Latin.

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We've got to come up with something to stop cancer from touching so many lives. Truly another tragedy.

Wednesday, May 10, 2006

Back to work

Barry returned to work today since his second chemo treatment. Am sure he'll be tired later. House already seems so quiet without him.

Nothing new here. Which actually is good news! Tim did buy a new piccolo. Is planning on playing that for marching band which includes all the football games, rather than the flute. I can't believe how small the instrument is. Very cute.

Monday, May 08, 2006

Happy Birthday, Eileen!

I rode my scooter to work today. A bit chilly in the morning, 39 degrees. Had some hot chocolate when I got there. But I knew the afternoon ride would be warmer. It's nice being able to save some pennies with gas being so high. Last year I only rode it once or twice. I do enjoy it.

Sunday, May 07, 2006

Weekend is over

Where did the weekend go? It seems that time itself just flies by too fast. This weekend Tim and I did lawn duty, and he actually showed me how to use weedwacker. I now have a new outlook on that job. Harder than I thought it would be. But the end result was a nice looking yard. Plus doing yard work makes me work up a nice sweat. Love being outdoors. Also washed my truck.

This afternoon Tim had another away soccer game. And they lost. I know that my father always asks for that. Had thought of staying home and just sending Tim there, but felt a bit guilty as I've always gone to see him play. I also enjoy talking to our friends while the game is on. A nice time to socialize. By the time the game was done it was a bit cool. It was a late afternoon/early evening game.

Thursday, May 04, 2006

Tim's confirmation

Tim was confirmed this evening by Bishop Bradley. It was such a beautiful ceremony. His sponsor is a good friend of ours Tom. There were 81 boys and girls being confirmed. I was so proud of him. I only wish that he had the feeling as I did when I became Catholic as an adult 5 years ago. I was so pleased that Barry was able to see this ceremony, if only due to him recently undergoing chemo. Tim had a chance to kiss the Bishop's ring but chose not to! All the kids looked so nice dressed up. And as you can see, I was quick to download a couple of pictures for everyone to enjoy. It just seems like yesterday that he made his first communion.

It was a perfect ceremony. Tim looked great, and we're not that bad either!

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This is a picture of Tim and his sponsor Tom, along with Bishop Bradley.

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Wednesday, May 03, 2006

MUGA scan today

This afternoon I went for a MUGA heart scan. Took about 2 hours. Nothing to it. And they did tell me that my cardiologist (who ordered it) would be the one to read it today. So that is good news. Should have results within a day or two.

Tomorrow is Tim's confirmation. Have to go directly to church after I get home from work. An extra special treat is that Barry will be able to come. This was not going to be since he would have been working. It just seems like yesterday that he made his first communion. Where does the time go?