Barry heard from UPMC today. Here are the findings:
He has a very rare type of liver cancer called Epithelioid hemangioendothelioma (EHE), of which they've seen only 7 cases of it. The doctors have recommended that he start the treatment I wrote about, chemoembolization, next week. The chemo drug that will be used will be adriamycin, the same drug that I was given for my breast cancer. Best known for it's color, looks like red koolaid.
Before anything happens, we will be in touch with Barry's oncologist to make sure that he concurs with this decision. We will be waiting for more detailed information, such as date and time of treatment.
If you google search EHE liver cancer you are able to read a lot of information. Information that we will be absorbing in the days to come. One thing I've learned this past year is this: lots of new words about the oncology field. I have to think that it's for a reason, to touch others and to show strength to others.
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"On Heightened Alert"
Cancer is your shadow if it ever comes your way
You're never truly alone, after diagnosis day.
You notice little things you never noticed before
Because Cancer brings you closer to being at heavens door.
Any unusual appearance of something on your skin
You immediately call your Doctor, whose become your best friend.
You notice imperfections that you never knew you had
And you jump to conslusions that all of it is bad.
You know you shouldn't worry, it's not the thing to do
Cause worry causes Stress and stress is bad for you.
But you know you're all alone with what you call Big C
And you keep asking the big question, "what will it do to me."
Don't jump to conclusions and don't let it get you down
Be strong and positive and let your cross become your crown.
Mary West....written November 14, 2004
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