Friday, July 15, 2005

The day after, a day to rest

My internet is DOWN completely. So thank goodness for a neighbor who has allowed me to use her PC. Would never want anyone to worry about me in not posting.

Wish I could report that I slept soundly but I can't. Night sweats continue to be bad. Every 1 1/2-2 hrs. I am awoken by them. Going to buy some soy mild today since Dr. Garrow recommended it at bedtime. Will try anything.

Slight headache as expected. Off to get neulasta shot and something to eat. And then I think my bed will be calling me.

Cable may take up to a week to get fixed so don't worry if I'm not online. I'm here in spirit.

Thanks Diane for use of your computer...

Am glad to report, that for this moment, my cable is up and running. A miracle. I won't hold my breath.

Today was busy day for me. I didn't work as is usual for the day after chemo. Slight headache, keeping it in control with excedrin. Don't want it to get out of control. I picked up some corn, peaches and tomatoes from road stand. I went to cancer center and got my procrit shot and neulasta shot. I then went to grocery store to pick up some fruit and some soy milk to take at bed time. I've said this before and I will now repeat myself. You meet the nicest people in grocery stores. While shopping, a woman came up to me and said some kind words. Not even sure what they were exactly, something about looking good. I thanked her and as I did, she lifted up her ball cap and revealed a wig covering a bald head. She introduced herself to me. The name clicked in my memory bank. Awhile ago, someone told me that the owner of this grocery store I was in was recently diagnosed with breast cancer. And this woman was her, Aileen. I gave her one of my hand made calling cards showing my blog address. And as you can see, not only is she an angel, she is an angel who reads and comments on blogs!! Again, any other time we would have never had a conversation. Bad things can become good things, friendship.
And I thank her for being there today when I needed a friend.

After shopping, I picked up a takeout order at restaurant which will be lunch/dinner. I had to go to hospital to pick up pre-meds for Barry's CT scans next week. This test is scheduled for next Wednesday. Please pray for smaller tumor or even no tumor. Only after he is better will I be totally better! Eventually did lie down for awhile. Never actually slept but had rest time anyway. Sort of nice being home by myself, not to answer to anyone. No trash compactor opening closing, no phones ringing. I have talked to Barry and Tim today. They bought bikes while on the Cape. Barry got a used one at bike shop and Tim got himself a new one. Tim really needed one. At times he rides about 10 miles around here by himself. You don't see many kids out there riding bikes, but he does.
And now I'm sure they will be enjoying the canal bike path this weekend with their bikes. With everything we've been through, any expense is worth it. No need to justify.

This weekend my aches will be returning, but this will be the last weekend for them. Hurrah.

Thursday, July 14, 2005

I made it to the FINISH LINE!!!

Wow. Never thought I would say that. But the chemo is done for me.

My internet was down for past day or so, and I was lost without it. But now it's up and running (for how long is another question.)

I was sitting on front steps waiting for Jody to pick me up at 9:15 a.m. It was about 9 a.m. when I was going over my notebook that I take with me to the appointments. Came upon a page that made me panic. It was about the meds that I would be taking. And the word EMEND popped out in front of me. This is the drug I take the day of chemo, and the following 2 days. I had totally forgot to get that prescription filled! For once I was not thinking chemo. Talk about panic. I went into house and immediately called the drug store. Am thankful the pharmacist knows me (frequent shopper there). She said come right down for it. Hopped in car, got the pills and raced home. Ran in the house for something to take the pill with and Jody then arrived. I couldn't believe that I had forgotten the pills. Not a good way to start the day.

I met with Dr. Garrow to review all my test results (which were good). I asked him about the night sweats (I wake up every 90 mins-2 hrs. sweating on my head very bad). Menopausal symptoms, increased due to chemo. May subside after chemo is done. We will monitor that. Suggested soy milk at bed time to start with before any prescription for me. Next week I will start once again with procrit shots for awhile since chemo is back in my system. I found out from Dr. Garrow that the neulasta shot we get the day after chemo for white blood cells cost $5,000 per shot!!! Wow. Jody took lots of pictures of me during my day meeting with the doctor and receiving the drugs. It took FIVE tries to get my IV properly inserted into vein. This was extremely intense. They must get a return blood flow once IV is inserted before the adriamycin drug is administered. Otherwise, it can't be injected into the IV. Three different nurses all had difficulty today. More stress that I didn't need today. I am so glad and thankful that Jody was with me. A true friend. She went through this 5 1/2 years ago and knows what it is all about.

After the chemo (I think it was about 2 p.m.) Jody treated me to lunch at one of my favorites restaurant. On the way home, I just put the seat back and rested my eyes. She didn't expect any conversation from me, again she knew what I was going through. I had wanted to put my jammies on right away but the phone rang. It was Adelphia wanting to come to house to check cable earlier than the original 5-7 p.m. tonight slot. I said OK and they arrived at about 4 p.m. They got the cable up and running after doing some things to the pole outside.

Got my jammies on and hit the bed. Wasn't able to fall asleep since I (here I go giving all my personal information out) had stomach ache and eventual diarrhea. Just not my day.

Have heard from my sister recently. As she and Jody say, it's done and in my system. Something to cheer about. It's just a very emotional, exhausting time. So many emotions. Thank goodness I went to the Cape to get energized before today.

Probably won't post any more today. Even though I am drained, I needed to post my inner thoughts to you. Please, if you read my journal at all, PLEASE post a simple comment today to pick my spirits up high. It's very easy to do and will mean the world to me. Don't just be a voyeur.

Again, Thanks Jody and all my angels.

Wednesday, July 13, 2005

Hi Ho Hi Ho, It's off to work I go

Blood test today. Chemo tomorrow.

My internet connection's been down a lot. So you may not see another update today.

Tuesday, July 12, 2005


7/10/05. Tim may not catch any fish but he's having a good time trying. Right on the rocks of the Cape Cod Canal. Posted by Picasa

7/10/05. The boys: Barry, his brother Matt and my brother Doug. Our camper is in the background. Posted by Picasa

7/10/05. My niece Stephanie with her pooch Gypsy. Posted by Picasa

7/10/05. Mom, Maureen, Me, Tim and Tommy are enjoying the scenic view of the Cape Cod Canal. A great place to bike or to fish from. Posted by Picasa

7/9/05. My parents, along with Barry's family. Can you pick us out of this picture? Posted by Picasa

7/9/05. Can you smell the ocean? You see, you can go back after all those years. Posted by Picasa

7/9/05 Even after 40 years, Mary Lou and I continue to be best friends. She's been so supportive to me these past few months.  Posted by Picasa

7/9/05 My sister Maureen along with my mother as we are nearing Nantucket Island. What a good looking group of ladies! Posted by Picasa

7/7/05. We went to see the Edwards Twins perform at the Sheraton. This is one of the twins, along with our great table guests. Posted by Picasa

My mother is about to walk Bud, but I wanted a photo opportunity. Posted by Picasa

What a great vacation!

I arrived home a little past noon. Everything went smoothly. As the title says, What a great vacation!

It's hard to remember what happened the past couple of days. One way of summing it up is what my sister said: Family is everything!

We went to Nantucket on 7/9/05 and Barry and Tim arrived on this day. My parents drove me out to Barry's folks house to see the Kaminskes all together. It was great seeing everyone. Even Barry's only brother Matt and his son Tommy were there for a few days. In fact, we ended up having Tommy spend couple of days with us at the campground. Good chance for the cousins to play together. After our visit, we had dinner at the Seafood Shanty overlooking the Cape Cod Canal (where we camped).

7/10/05 Maureen drove my parents over to the visit us at the campground. Got to see Doug and Stephanie, along with their pooch. Matt also joined us for the afternoon. I had reserved a campsite for them right beside us. Doug has a 38' motorhome. Gorgeous. Since Doug has his own restaurant and is a chef, he prepared us a gourmet dinner which included chicken, ribs and sirloin tips. Maureen provided a blueberry cobbler dessert. The campsite is a stone's throw from the beautiful Cape Cod Canal. After dinner, Doug prepared a couple of fishing poles for Tim and Tommy to use on the canal. They never did catch any fish!

7/11/05 Barry, Tim, Tommy and I went to visit my father. Tim and Tommy ended up going to the beach with Maureen and my mother. They didn't have bathing suits, just shorts. They had a blast. It was such a hot day. They said the ocean was "refreshing." While they were gone, Barry worked on my father's computer. At lunch we dined overlooking the harbor and the boats taking off for the islands. We then returned to the campground. Barry's family visited us for dinner. Matt had cooked ribs in slow cooker all day. I provided the famous Grandma's Pie Shop pie which was banana split cream pie. Mmmmmmm.

7/12/05 My father picked me up at 6:30 a.m. for Providence airport. I got there early but that was OK. Better to be early than late. The flight was very smooth.
Did shed a tear or two but quickly remembered all the laughs and good times I had just enjoyed. What a great vacation. A vacation that I greatly needed. Now it's Barry and Tim's turn to enjoy their vacation on Cape Cod. I have heard from them this afternoon. They were visiting the rest of the Kaminske family today. I had not been able to see Matt's wife Wendy and 3 of their children due to my flight.

I have attempted to remember everything. But you know how my mind is.....

Back to work tomorrow. And just in time for blood work for my LAST CHEMO on Thursday. Jody is taking me to my appt. and then treating me for lunch in celebration. She's also a survivor.

Again, FAMILY IS EVERYTHING.

7/6/05 My sister Eileen and my niece Tina, with her son Jamie. What a smile! Posted by Picasa

Saturday, July 09, 2005

Nantucket Island and Mary Lou

Maureen, Mom and I got the 6:30 a.m. high speed ferry to Nantucket Island. In one hour, we were on the island. Mary Lou, a girl friend of mine for over 40 years met us at the boat and took us for a tour of the WHOLE island. You couldn't have asked for a better tour guide. We saw every memory that we had, even took pictures of our old house that we sold in 1965 when my brother Doug was born. We talked to a man on the porch who said that his parents bought the house in 1965. Probably the people my parents sold house to.

So much to write about, more to follow.

Barry and Tim arrived on the Cape at about 9 a.m. 12 hr. ride for them.

The next couple of days I won't be posting. Will be spending time with the family and that's what I came to do. I only have Sunday and Monday left...

Great seeing everyone.

Friday, July 08, 2005

Friday on Cape Cod/See Doug and family today

I had so many dreams last night. So much "input" yesterday into my brain. It was such a great show last night that it was on my brain as I lay in bed.

Looking forward to seeing my brother and his family today.

Barry and Tim leave to come here sometime late this evening into the early morning of Saturday. Not sure yet. Am hoping they avoid any rain/bad weather from a storm in the area. They have a long trip ahead of them, not like the 1 hour or so plane ride I had.

Shortly after we returned from grocery shopping, Doug and his family arrived in their 38' motor home. They had been vacationing on the Cape this week. I had not seen my sister-in-law and niece for over a year. Last year I had seen Doug when I was on the Cape. Been too long. Doug, since he's a chef and owner of a restaurant, cooked us up a feast on Dad's new grill. Sirloin tips, burger, ribs and chicken. Even on his days offs he enjoys cooking. Have never had a bad meal.

And then Roger arrived later in the afternoon. He's my brother-in-law, married to Eileen. Never a dull moment with him in the house. A lot of fun to be with.

While everyone napped during the afternoon, Mom and I snuck off for some ice cream. I think I was only one who didn't nap today. Didn't want to waste any time sleeping.

The last of the family arrived a short while ago, Gene. He's married to my other sister Maureen. I can't even remember the last time I saw him. So right now we have a full house (almost). Barry and Tim will be leaving any moment from Pennsylvania to come here. About a 12 hr. trip for them. I will be relaxed once they are here. It's a long trip for one person to be driving the whole way.

Signing off for the day. Tomorrow a.m., bright and early, Maureen, mom and I are taking ferry to Nantucket to see Mary Lou. Won't be online much tomorrow. Too much excitement. And then we will be seeing Barry at the campground.

Thursday, July 07, 2005

Fresh Cape Cod Air.....

Well, the different state did not cause the night sweats to disappear. Could only wish.

But here I am on Cape Cod. Ready to enjoy my first full day. My sister Maureen will be arriving by noon. Can't wait to see her. Have nothing planned to do (as far as I know). A cool overcast day with temps in 50s. Not going to get any better I guess.

Mom and I went to the Mall and I finally bought a pair of hoop earrings. We're such good shoppers, we got out of the mall within an hour. I also was ready for my next Cape Cod meal.

By the time we got home, Maureen had arrived. Went out to another seafood restaurant, Cook's, and once again had fried shrimp. I think I'm going to turn into a shrimp. Can't get this kind of food in Western Pennsylvania. Delicious. We took Mom to get a haircut and while Moe was inside with her, I noticed a nice looking man heading in there. I was outside waiting. I said to him "if you go in there, you'll come out looking like me." He didn't laugh like I expected, but looked serious. When he entered the store, he made comment to my family questioning if in fact the store had shaved my head. Mom said no, that I was going through chemo. Also, said that Barry was going through same treatment. He then turned and looked out the window at me and laughed. Boy, when Mom and Maureen came out we had such a belly laugh! Felt so good to laugh. I also had a woman from the store take our picture standing outside the sign saying ProCuts. You have to make the most out of life!
Would have made a good segment for Girls Behiving Badly or Candid Camera.

Mom, Maureen and I are heading to a show of some kind at the Sheraton Hotel tonight. It's male twins/ Edwards Twins/ who impersonate singers both male and female. Looking forward to that. By the way their website is www.theedwardstwins.com if you want to read about them. (I'm not getting paid to tell you this!)

At the show, two sisters (one from Florida and the other from Ct.) and their parents from Hyannis sat with us. You couldn't ask for better company. I think the sisters were in their 40s, so basically same age group as us. The show was wonderful. I can't even remember all the celebities we saw perform: Cher, Elton John, Sonny Bono, Neil Diamond, Bette Midler and Barbra Streisand. They performed every detail to the point while you were watching them perform, it was the actual singer, including Barbra's hand motions to her hair and Elton's facial expressions. For 90 minutes I was elsewhere and chemo free. It was a good group to sit with and be with, clapping and enjoying the show. They do not lip sync, they actually do the voice impersonations. Truly amazing. It was Maureen's idea to get out and I'm so glad she had this idea.

After the show, I took pictures of one of the twins along with our table of friends. (Pictures of my vacation will follow when I return home to download them).
I told this man my personal story and that I was truly touched by their performances. He in return gave me a special hug. I handed him and the people I sat with a small personalized card that I created showing my blog address. I love to share my/our story with others who touch my heart. It's truly amazing how people come into your life and make it that more memorable.

Tomorrow my brother Doug will be seeing us, along with his wife Brenda and daughter Stephanie. Looking forward to seeing them. It's been more than a year since I saw him. It's time....

Wednesday, July 06, 2005

Leaving on a jet plane

Just about to leave house. See you soon.

Very foggy trip to airport. Plane was on schedule. Everything worked out fine. I did wear the surgical mask on the plane. I figured that I now have something in common with Michael Jackson, we both wear masks in public! It was a small lear type jet, only 18 rows and I was seated in the 17th row by myself.

Eileen was at the gate to pick me up. What a treat to get a hug in person. Then we went to see my niece and her son at their new home. It had been awhile since I had seen them. It was great seeing them.

We then headed to the Cape. What a treat to go over the Bourne Bridge. Got to see the campground that we will be staying at beneath the bridge.

When we arrived at my parent's house, they were outside with camera waiting to take their first picture of me. Great moment to see and be with them. We then went out for SEAFOOD at my favorite restaurant Golden Boy. Had fried shrimp. What a treat. Life is good. Then Mom, Eileen and I went downtown to walk the main street area. Lots of tourists, but I didn't see any other females bald. I was a unique person there.

Have already done so much today in such a short time. Only thing I didn't do was take a nap. No time for that.

Dinner was at another favorite Bobby Byrne's. So much food that I had no room for Par tee Freeze icecream. That will have to wait until tomorrow.

As we were coming into the house the phone was ringing. Don and Bonnie from Phoenix (previously my parent's backdoor neighbors) called to say hi. That was another treat in a treat filled day. I think I made Bonnie jealous or at least made her think of Old Cape Cod.

Am wondering if different environment will change the way I sleep. Usually I have night sweats (Barry also) and wake up with soaked head. Time will tell. A long but great day on the Cape.

Tuesday, July 05, 2005

It's almost time

All I have to say right now is "night sweats" are the pits. Thought it was my hormones, but Barry has same problem. Wake up with head and pillow wet. Maybe good ole' Cape Cod air will fix that problem!

Off to work my last 8 hrs. before my vacation. See you later.

Done. Ready for vacation. And I can truly say that I need this vacation!

Just a couple of last minute organizing to do and I'm all set. Have already printed boarding pass so that will save time at airport.

Won't be on my blog in a.m. as I'm heading out the door very early.

As my sister says, ADIOS AMICOS.