Just look at my blog and comments and you will find the definition of friends. To think I can come home from working and have a meal waiting for me is to be a blessing. Thank you.
Our first meals of love were delivered today. What a treat. Can't tell you how much this gesture means to me/us. I am so thankful that we moved to God's country.
I did get some positive news from the drug company Emend. I have been approved for free pills for the anti-nausea. The pills I used for my first chemo cost over $330 since insurance didn't cover them. But thanks to the Cancer Center and Brenda, my social worker, Emend approved them for me. They will automatically send them to me a week before each treatment. And if needed, I have 1 year of supply. There certainly are angels on earth.
Work was extremely busy today. Didn't help that I had wicked headache. But the nurse at the Cancer Center did tell me that I could take percacet or the like for the pain. And of course, ativan for anxiety/stress. I did take these when I came home and I feel much better. A nice feeling of almost la la land. Will be a pleasure not to have a headache.
Tomorrow I go to Look Good Feel Better class at the Cancer Center. Looking forward to it.
I also have a check up with my surgeon, assuming that will be my last one.
Monday, May 16, 2005
Sunday, May 15, 2005
Some aches
Didn't sleep well last night, even with sleeping pill. Tossed and turned. At 6 a.m., I took an alleve and attempted to go back to sleep. Flu like aches in my legs and a bad headache continue.
Since the headache wasn't getting any better, I took some sudafed because it could be sinus headache. I also found that when I put a hot face cloth on my eyes it felt so good. But of course, the heat doesn't last a long time.
At about 11:30, Barry suggested I get up and move to my chair in living room since it was such a nice day. So I did. Enjoyed a popsicle as I looked out the window. After a short while, Tim told me that I had a visitor in the back yard. Another deer! All by herself. Another sign from God that I needed to be up to see her. After she left the yard, Tim and I went into the woods and left some food for others to enjoy later. We also tossed out some old apples that we had.
Barry has gone to WalMart to look at new thermometers. It's very important that we watch for any fevers that we may get. Having a reliable thermometer is important. Tim has gone for a bike ride by himself. He usually bikes for about 9 or so miles. I've showered and my headache seems better. Will take more sudafed soon. Barry looks at me and hopes that he feels better than I do next week. I'm sure he will do fine.
Friends are so kind to us. They ask what they can do. I say continue to pray, but if you really want to know what would be like heaven it would just a simple meal. Even when I'm full of energy I don't like to think of meals. So now even a frozen meal sounds good to me. Last week I made a big batch of chicken soup so I could freeze a couple of containers for a "rainy" day.
I made myself get outside and walk to Lisa's house with Tim today. A bit tired but that's ok. That way I deserved my nap later on.
Symptoms I have noticed:
My sense of taste right now is gone. Nothing in my mouth tastes like anything. Am hoping this is short term because it certainly doesn't make you want to eat anything.
Headache has returned. Not as bad. Will check with doctor tomorrow to see if he can prescribe something.
Body aches no worse. Am noticing that even my teeth/jaw are sore.
Lisa P. telephoned me this evening. Friends had been asking her what they could do for us, and they've come up with making us some meals for the week. This week's meals for Monday, Wednesday and Friday are going to be taken care of by our friends. That is truly the definition of friendship, and I deeply appreciate the kindness. Had you ever asked me in the past about accepting help in this manner, I would have said there was no need. But have learned that accepting help is acceptable.
As I was doing the dishes tonight, I had a weepy time and Tim noticed. He came over and asked if I needed a hug. I told him that I certainly did need one, we're all going through so much right now. I try not to show tears in front of him but am only human. I told him that I was so lucky to have him, lucky that he's as grown up as he is. We talked about God giving us what we can handle, and we said that He will help us through these times. I have a very smart and caring son.
Since the headache wasn't getting any better, I took some sudafed because it could be sinus headache. I also found that when I put a hot face cloth on my eyes it felt so good. But of course, the heat doesn't last a long time.
At about 11:30, Barry suggested I get up and move to my chair in living room since it was such a nice day. So I did. Enjoyed a popsicle as I looked out the window. After a short while, Tim told me that I had a visitor in the back yard. Another deer! All by herself. Another sign from God that I needed to be up to see her. After she left the yard, Tim and I went into the woods and left some food for others to enjoy later. We also tossed out some old apples that we had.
Barry has gone to WalMart to look at new thermometers. It's very important that we watch for any fevers that we may get. Having a reliable thermometer is important. Tim has gone for a bike ride by himself. He usually bikes for about 9 or so miles. I've showered and my headache seems better. Will take more sudafed soon. Barry looks at me and hopes that he feels better than I do next week. I'm sure he will do fine.
Friends are so kind to us. They ask what they can do. I say continue to pray, but if you really want to know what would be like heaven it would just a simple meal. Even when I'm full of energy I don't like to think of meals. So now even a frozen meal sounds good to me. Last week I made a big batch of chicken soup so I could freeze a couple of containers for a "rainy" day.
I made myself get outside and walk to Lisa's house with Tim today. A bit tired but that's ok. That way I deserved my nap later on.
Symptoms I have noticed:
My sense of taste right now is gone. Nothing in my mouth tastes like anything. Am hoping this is short term because it certainly doesn't make you want to eat anything.
Headache has returned. Not as bad. Will check with doctor tomorrow to see if he can prescribe something.
Body aches no worse. Am noticing that even my teeth/jaw are sore.
Lisa P. telephoned me this evening. Friends had been asking her what they could do for us, and they've come up with making us some meals for the week. This week's meals for Monday, Wednesday and Friday are going to be taken care of by our friends. That is truly the definition of friendship, and I deeply appreciate the kindness. Had you ever asked me in the past about accepting help in this manner, I would have said there was no need. But have learned that accepting help is acceptable.
As I was doing the dishes tonight, I had a weepy time and Tim noticed. He came over and asked if I needed a hug. I told him that I certainly did need one, we're all going through so much right now. I try not to show tears in front of him but am only human. I told him that I was so lucky to have him, lucky that he's as grown up as he is. We talked about God giving us what we can handle, and we said that He will help us through these times. I have a very smart and caring son.
Saturday, May 14, 2005
Day 3 following Chemo/ First effects of Neulasta
I have changed my blog name to reflect the recent news in my life.
Yesterday was an extremely busy day for any person, but for me since it was my 2nd day after chemo it was a lot more. But a day that a lot was accomplished.
Didn't sleep well last night. Up looking at the clock often. Woke up with another headache, which is a side effect of one of the chemo drugs. Took some tylenol along with my 3rd and last emend anti-nausea pill. Thank God that the anti-nausea pills do their job. Hard to explain what I am feeling today. As my bosom buddy Jody told me, you may feel like you're getting the flu with the bones aching. And that's how I am feeling. That is the neulasta doing it's job, building up bone marrow. It can last 3-5 days and will get stronger in pain. Just need to take alleve, motrin or tylenol. And I'm staying in my jammies today and attempting to rest for a change.
Due to my small body build, the doctor said I will feel the effects of that pill. Barry is possibly seeing first hand what he will be feeling next week.
That's it for now. Just had some soup and ready to lie down some more. A healing kind of a day for me. A well deserved day to be in bed.
Had a nice call this p.m. from "cousin" Tim. It was great to talk to him, and he also was able to talk with Barry. It sounded good just listening to Barry talk to his cousin. A lot more positive feelings than I've heard in past few weeks. You have to understand this, not knowing can be worse than knowing. After his call, I got out of my pj's and eventually went to the grocery store with Tim (son). We bought all the makings for banana splits. That's my latest downfall, something I've been enjoying this past week. Also picked up some pineapple, apples, strawberries and pears. Healthy food to munch on. It was pouring when we went to the store, and do you know what I did? I stood out in the rain and just enjoyed it hitting my face. Going through times like these make you appreciate the littlest things in life. Oh yes, Tim and I did buy what could be a winning lottery ticket at the store!! Will keep you posted if we do win.
When we pulled into the driveway from the grocery store, we were greeted by 3 deer in the back yard. Truly a sign from God. Deer have always been such a blessing to me, so they appeared at just the right time.
Another day is done. Did take some alleve for my body aches and head ache, and will be hitting the bed soon. Please, if you do take the time to read my journal, please post comments so that I do know that you are there reading it. It does give me additional inspiration just to read your comments. And thanks for adding us to your prayer chains.
Yesterday was an extremely busy day for any person, but for me since it was my 2nd day after chemo it was a lot more. But a day that a lot was accomplished.
Didn't sleep well last night. Up looking at the clock often. Woke up with another headache, which is a side effect of one of the chemo drugs. Took some tylenol along with my 3rd and last emend anti-nausea pill. Thank God that the anti-nausea pills do their job. Hard to explain what I am feeling today. As my bosom buddy Jody told me, you may feel like you're getting the flu with the bones aching. And that's how I am feeling. That is the neulasta doing it's job, building up bone marrow. It can last 3-5 days and will get stronger in pain. Just need to take alleve, motrin or tylenol. And I'm staying in my jammies today and attempting to rest for a change.
Due to my small body build, the doctor said I will feel the effects of that pill. Barry is possibly seeing first hand what he will be feeling next week.
That's it for now. Just had some soup and ready to lie down some more. A healing kind of a day for me. A well deserved day to be in bed.
Had a nice call this p.m. from "cousin" Tim. It was great to talk to him, and he also was able to talk with Barry. It sounded good just listening to Barry talk to his cousin. A lot more positive feelings than I've heard in past few weeks. You have to understand this, not knowing can be worse than knowing. After his call, I got out of my pj's and eventually went to the grocery store with Tim (son). We bought all the makings for banana splits. That's my latest downfall, something I've been enjoying this past week. Also picked up some pineapple, apples, strawberries and pears. Healthy food to munch on. It was pouring when we went to the store, and do you know what I did? I stood out in the rain and just enjoyed it hitting my face. Going through times like these make you appreciate the littlest things in life. Oh yes, Tim and I did buy what could be a winning lottery ticket at the store!! Will keep you posted if we do win.
When we pulled into the driveway from the grocery store, we were greeted by 3 deer in the back yard. Truly a sign from God. Deer have always been such a blessing to me, so they appeared at just the right time.
Another day is done. Did take some alleve for my body aches and head ache, and will be hitting the bed soon. Please, if you do take the time to read my journal, please post comments so that I do know that you are there reading it. It does give me additional inspiration just to read your comments. And thanks for adding us to your prayer chains.
Friday, May 13, 2005
WE ARE SURVIVORS! And now I will explain:
I have not posted anything to this blog all day, and it's for a very good reason.
At about 4:15 p.m. yesterday, I heard the results of Barry's liver biopsy from his doctor. He called me since Barry was at work and I was allowed to hear the results of the biopsy. Once again, in less than 2 months I heard the word CANCER. Once again, I was home alone as Tim was at a track meet. I don't know how God gives you the strength but He does. After he said the word cancer, he stopped for a moment and told me to take it in. I of course cried and didn't know what to do. Should I call him at his job since I already knew he was in a foul mood from not hearing results, should I drive to his job and tell him in person or wait until he comes home at midnite. The doctor told me that he was against me driving there as I just had my first chemo treatment and should not be driving so stressed. He explained that he was on call and that when Barry got home, he could call him for the news. I left it like that, I wouldn't tell him.
CT scan of brain/head along with bone scans will need to be done on Barry.
They type of cancer is adenocarcinoma. It is on the liver, but is NOT liver cancer. The origin is probably the lungs which also had spots showing on previous scan.
At 7:30 p.m. Barry called and asked if the doctor called me with results. I asked him if he wanted the truth if he was at work. He said yes, and I told him. Actually he took it quite well. Had wished I told him earlier since his boss had just left and many other employees were concerned about the results.
When he came home a few hours later, we hugged and knew the next day would yield a lot of questions. I then went to bed.
All the above happened yesterday.
Today:
Busy and productive day. By 8:30 a.m. the doctor had lined up all tests needed to be done. Time was for 10 a.m. We then went to see his boss to talk in person to. Went to lunch at Hickory Grill since we didn't make it there yesterday. Went to a 1 p.m. appt. with Dr. Garrow, OUR oncologist for consultation. I also had follow up appt. for my first chemo treatment along with the neulasta shot to build up white blood cells. Side effects will be achey bones which means the drug is working and building up bone marrow.
Barry's treatment will be the following and will start next THURSDAY:
He will go through 3 cycles of chemotherapy with an IV of Taxol and Carboplatin. It will take about 4 hrs. for each treatment. It has to go in slowly. It is a very potent drug combination.
Should not need anti nausea pills like I take for 3 days. Will go in next day for neulasta like I do.
After the 3 cyles, additional CT scans will be taken to see if tumor has shrunk. This will determine if treatment will be continued. He reiterated that he does not have liver cancer, cancer cells have settled on/near liver from other place. Most like lungs. We don't worry about the source as we will be fighting it with even more powerful drugs.
It's been a very long day for both of us. And of course, we had to tell Tim once again that terrible word. But you know. I think we will all make it. I know we will make it.
Barry's attitude has even changed. Past 3 weeks he appeared doomed, but with a diagnosis and treatment plan the unknown is now known. That makes all the difference.
Have told my family and close friends, and they don't know how I am getting through this. I have shed tears today but can't continue to cry. Negative energy and a son to be a role model to. And if you're not walking, you're not going anywhere. It's by the grace of God that I/We will make it.
Please continue to pray for us.
At about 4:15 p.m. yesterday, I heard the results of Barry's liver biopsy from his doctor. He called me since Barry was at work and I was allowed to hear the results of the biopsy. Once again, in less than 2 months I heard the word CANCER. Once again, I was home alone as Tim was at a track meet. I don't know how God gives you the strength but He does. After he said the word cancer, he stopped for a moment and told me to take it in. I of course cried and didn't know what to do. Should I call him at his job since I already knew he was in a foul mood from not hearing results, should I drive to his job and tell him in person or wait until he comes home at midnite. The doctor told me that he was against me driving there as I just had my first chemo treatment and should not be driving so stressed. He explained that he was on call and that when Barry got home, he could call him for the news. I left it like that, I wouldn't tell him.
CT scan of brain/head along with bone scans will need to be done on Barry.
They type of cancer is adenocarcinoma. It is on the liver, but is NOT liver cancer. The origin is probably the lungs which also had spots showing on previous scan.
At 7:30 p.m. Barry called and asked if the doctor called me with results. I asked him if he wanted the truth if he was at work. He said yes, and I told him. Actually he took it quite well. Had wished I told him earlier since his boss had just left and many other employees were concerned about the results.
When he came home a few hours later, we hugged and knew the next day would yield a lot of questions. I then went to bed.
All the above happened yesterday.
Today:
Busy and productive day. By 8:30 a.m. the doctor had lined up all tests needed to be done. Time was for 10 a.m. We then went to see his boss to talk in person to. Went to lunch at Hickory Grill since we didn't make it there yesterday. Went to a 1 p.m. appt. with Dr. Garrow, OUR oncologist for consultation. I also had follow up appt. for my first chemo treatment along with the neulasta shot to build up white blood cells. Side effects will be achey bones which means the drug is working and building up bone marrow.
Barry's treatment will be the following and will start next THURSDAY:
He will go through 3 cycles of chemotherapy with an IV of Taxol and Carboplatin. It will take about 4 hrs. for each treatment. It has to go in slowly. It is a very potent drug combination.
Should not need anti nausea pills like I take for 3 days. Will go in next day for neulasta like I do.
After the 3 cyles, additional CT scans will be taken to see if tumor has shrunk. This will determine if treatment will be continued. He reiterated that he does not have liver cancer, cancer cells have settled on/near liver from other place. Most like lungs. We don't worry about the source as we will be fighting it with even more powerful drugs.
It's been a very long day for both of us. And of course, we had to tell Tim once again that terrible word. But you know. I think we will all make it. I know we will make it.
Barry's attitude has even changed. Past 3 weeks he appeared doomed, but with a diagnosis and treatment plan the unknown is now known. That makes all the difference.
Have told my family and close friends, and they don't know how I am getting through this. I have shed tears today but can't continue to cry. Negative energy and a son to be a role model to. And if you're not walking, you're not going anywhere. It's by the grace of God that I/We will make it.
Please continue to pray for us.
Thursday, May 12, 2005
First Chemo Treatment today
It was on March 15th that Dr. Henwood said the word cancer to me. And here it is about 2 months later and I'm having my first chemo treatment. Time flies when you're having fun!
Appt. is at 10:30 a.m. and I'm not sure how long it will be. They have to put the chemo drugs in very slowly the first time.
First chemo is complete!!! 1/4 of the way done for chemo. Got there at 10:30 a.m. and got home at 1:30 p.m. There was a bit of a delay due to them not receiving the echocardiogram results yet. Kendra was my nurse. She was so nice like everyone that has come into my life lately. Once connected up with the IV she inserted a steroid along with about 15 minutes to administer the adriamycin (red coolaid) by syringe into the IV. This was then followed by 1/2 hour drip of the second drug that starts with a C. They usually go hand in hand. Adriamycin is a powerful anti-cancer drug.
After coming home I called my family to tell them the news. The one thing that tells me I have chemo drugs in me is that my urine is red due to the drug. Tomorrow I have to go back for follow-up and to get a shot of neulasta to boost my white blood cells. Science has really improved with these drugs.
Will probably hit my bed this p.m. for a nice nap just to rest my brain. At least now I know the process, it's not an unknown to me. The only unknown right now is what will the drugs do to me in the next couple of weeks. All in all, I feel great right now to have this in the past.
In looking back at the day right now, only thing I have is a headache but that could be stress related. Have taken tylenol and anxiety pill. Only was able to rest for short time.
Highlight of my day at 7:24 p.m. was seeing about 4 deer in back woods along with Tim's pet raccoon. A sign from God.
Love you all.
Appt. is at 10:30 a.m. and I'm not sure how long it will be. They have to put the chemo drugs in very slowly the first time.
First chemo is complete!!! 1/4 of the way done for chemo. Got there at 10:30 a.m. and got home at 1:30 p.m. There was a bit of a delay due to them not receiving the echocardiogram results yet. Kendra was my nurse. She was so nice like everyone that has come into my life lately. Once connected up with the IV she inserted a steroid along with about 15 minutes to administer the adriamycin (red coolaid) by syringe into the IV. This was then followed by 1/2 hour drip of the second drug that starts with a C. They usually go hand in hand. Adriamycin is a powerful anti-cancer drug.
After coming home I called my family to tell them the news. The one thing that tells me I have chemo drugs in me is that my urine is red due to the drug. Tomorrow I have to go back for follow-up and to get a shot of neulasta to boost my white blood cells. Science has really improved with these drugs.
Will probably hit my bed this p.m. for a nice nap just to rest my brain. At least now I know the process, it's not an unknown to me. The only unknown right now is what will the drugs do to me in the next couple of weeks. All in all, I feel great right now to have this in the past.
In looking back at the day right now, only thing I have is a headache but that could be stress related. Have taken tylenol and anxiety pill. Only was able to rest for short time.
Highlight of my day at 7:24 p.m. was seeing about 4 deer in back woods along with Tim's pet raccoon. A sign from God.
Love you all.
Wednesday, May 11, 2005
One more day
And I'll be on a new journey. I'm thinking of this as a second chance to re-create myself even better. Am off to work wearing a dress! Yes, a dress that only happens couple times each summer. Plus earrings instead of my usual studs. It's all about attitude.
Wish I had known what kind of a day it was going to be at work today. I would have called in sick myself. Someone else did call in sick for some reason, plus someone on vacation. So, just another sucky day at work. I've already vented to my close friends about the whole deal at work so I won't go back over the old wounds.
When Barry went to fill my presciption for anti-nausea pills to be taken the day of treatment, followed by the next two days (a total of 3 pills), he was told that insurance did not cover them.
$333.00 was the cost for these 3 pills, which I will need for the other 3 treatments. It's hard to believe nowadays that with so much cancer out there, insurance companies can charge this fee.
It just adds to the already stressed situation the cancer patient is in. But as Barry said, you need the pills so we have to just buy them. Am thankful that we had the money to even pay for them.
A tiring day but I have to look forward. Can't go backwards. Have already taken ativan for anxiety, and will take another one in a.m. along with one of my $100 pills. If I don't get sick I guess it is worth the money!
Until tomorrow....
Wish I had known what kind of a day it was going to be at work today. I would have called in sick myself. Someone else did call in sick for some reason, plus someone on vacation. So, just another sucky day at work. I've already vented to my close friends about the whole deal at work so I won't go back over the old wounds.
When Barry went to fill my presciption for anti-nausea pills to be taken the day of treatment, followed by the next two days (a total of 3 pills), he was told that insurance did not cover them.
$333.00 was the cost for these 3 pills, which I will need for the other 3 treatments. It's hard to believe nowadays that with so much cancer out there, insurance companies can charge this fee.
It just adds to the already stressed situation the cancer patient is in. But as Barry said, you need the pills so we have to just buy them. Am thankful that we had the money to even pay for them.
A tiring day but I have to look forward. Can't go backwards. Have already taken ativan for anxiety, and will take another one in a.m. along with one of my $100 pills. If I don't get sick I guess it is worth the money!
Until tomorrow....
Tuesday, May 10, 2005
A great day/New changes
Today I went to the Cancer Center and met with Brenda, a nurse oncologist. She explained the different drugs that I will be administered on Thursday. She also gave me prescriptions to fill and to use the day of treatment. Nausea pills. After our meeting, I finally got to see where the chemo is done. I think this was so beneficial since it was an unknown in my head, not knowing what to expect. It's a round shape room, with separate "suites" for individual treatments around 1/2 the room. Each room has a curtain if you want privacy, television, vcr, recliner chair for patient and another chair for a visitor. They have a fully stocked refrigerator with tons of fruit cups and soda, and of course lots of saltines. After meeting with Brenda, I went to the hospital for an echocardiogram. This will serve as a baseline for future purposes if needed.
After work, I picked up Lisa P. and we went to Images and looked at wigs. I jumped at the first wig which was just what I had on my mind. A bob-style cut and the color is like a frosted blonde. Really nice. Billie then cut my hair short like I used to wear it many years ago. At last I have short hair again!! Poor Barry.. My sister Eileen saw me on the webcam and says I look much younger now. This weekend I am going to have Tim take pictures of my hair cut and of me wearing my new wig.
I don't know if you can sense this by this writing, but I'm feeling pretty positive and comfortable about my situation. I know with the help of good meds and positive thinking that I will make it through what actually is a small portion of my life. And as my bosom buddy Jody said to me:
after this treatment I am 1/4 of the way done!
P.S. No news on Barry's liver biopsy. They did tell him that it should be ready by Wednesday.
So hopefully tomorrow we will hear from doctor. I did speak to the surgeon today so they know we are anxiously waiting for the results.
After work, I picked up Lisa P. and we went to Images and looked at wigs. I jumped at the first wig which was just what I had on my mind. A bob-style cut and the color is like a frosted blonde. Really nice. Billie then cut my hair short like I used to wear it many years ago. At last I have short hair again!! Poor Barry.. My sister Eileen saw me on the webcam and says I look much younger now. This weekend I am going to have Tim take pictures of my hair cut and of me wearing my new wig.
I don't know if you can sense this by this writing, but I'm feeling pretty positive and comfortable about my situation. I know with the help of good meds and positive thinking that I will make it through what actually is a small portion of my life. And as my bosom buddy Jody said to me:
after this treatment I am 1/4 of the way done!
P.S. No news on Barry's liver biopsy. They did tell him that it should be ready by Wednesday.
So hopefully tomorrow we will hear from doctor. I did speak to the surgeon today so they know we are anxiously waiting for the results.
Monday, May 09, 2005
Another nice day.
Well, it looks like another nice day in Pennsylvania. But looks can be deceiving. Off to work soon. Nothing else to report now, just wanted to show that I'm awake and kickin' in Pa.
It was one of those days from you know what at work today. Definitely not one of the positive energy days that I am in need of for this week. System was down and the day just went down the tubes. Would like to say something positve came out of the hours at work today but I would be lying. And I'm no liar. Hoping tomorrow is better.
One of the best things about this week is that I'm only working 3 days.
Tomorrow is busy day for me. I have a chemo teaching class followed by an echocariogram at the hospital. Apparently the chemo drugs that you are given do a job on your heart. And then after work I am going to look at wigs and hopefully get my hair cut there. Lisa P. is coming with me, and I'm looking forward to it.
It was one of those days from you know what at work today. Definitely not one of the positive energy days that I am in need of for this week. System was down and the day just went down the tubes. Would like to say something positve came out of the hours at work today but I would be lying. And I'm no liar. Hoping tomorrow is better.
One of the best things about this week is that I'm only working 3 days.
Tomorrow is busy day for me. I have a chemo teaching class followed by an echocariogram at the hospital. Apparently the chemo drugs that you are given do a job on your heart. And then after work I am going to look at wigs and hopefully get my hair cut there. Lisa P. is coming with me, and I'm looking forward to it.
Sunday, May 08, 2005
Happy Mother's Day!
And Happy Birthday to my sister Eileen.
And it's a gorgeous day in Western Pennsylvania. Sun shining nice and bright. Temps in the 70's.
Made up some hanging bags and baskets of impatients.
Tim took me to Dutch Isle and we shared a banana split. It doesn't take much to please me!
Took a nice 2 hr. nap and then did what Tim has told me to do lately: I rode my scooter around town a bit. And as usual, when other bikers passed me, they gave me the hi wave. See, I'm just like the big guys!
All in all, a good day in the neighborhood. No complaints on my end. Later.
And it's a gorgeous day in Western Pennsylvania. Sun shining nice and bright. Temps in the 70's.
Made up some hanging bags and baskets of impatients.
Tim took me to Dutch Isle and we shared a banana split. It doesn't take much to please me!
Took a nice 2 hr. nap and then did what Tim has told me to do lately: I rode my scooter around town a bit. And as usual, when other bikers passed me, they gave me the hi wave. See, I'm just like the big guys!
All in all, a good day in the neighborhood. No complaints on my end. Later.
Saturday, May 07, 2005
Saturday
Tim had a track and field day today. He was only signed up for one event: triple jump, and therefore was done practically before it began. That was fine with me. I drove him 1/2 way up north to meet the Pearsons so that he can dirt bike at their camp with them. This is his first time going there was quite excited. They already took his bike last evening.
Made an appointment at a beauty salon next Tuesday after work to look at wigs. This beauty salon is affiliated with America Cancer Society's Look Good Feel Better program. They will also show me how to use scarves properly. It's done privately so that is nice. After sweating outside for a few minutes today, I mentioned to Barry that it will be nice not to push away my bangs/hair and just be bald. Summer is the perfect time to shed some hair!
Barry and I also made a WalMart trip. I bought some ginger ale just to have on hand for the days after chemotherapy. I call it an insurance policy. Nothing like going out for something you need when you don't feel good. I already have saltines just in case.
I bought some impatients and potting soil, and may work on my flower bags this weekend. I have six bags to be creative with this year.
Made an appointment at a beauty salon next Tuesday after work to look at wigs. This beauty salon is affiliated with America Cancer Society's Look Good Feel Better program. They will also show me how to use scarves properly. It's done privately so that is nice. After sweating outside for a few minutes today, I mentioned to Barry that it will be nice not to push away my bangs/hair and just be bald. Summer is the perfect time to shed some hair!
Barry and I also made a WalMart trip. I bought some ginger ale just to have on hand for the days after chemotherapy. I call it an insurance policy. Nothing like going out for something you need when you don't feel good. I already have saltines just in case.
I bought some impatients and potting soil, and may work on my flower bags this weekend. I have six bags to be creative with this year.
Friday, May 06, 2005
Barry's 2nd liver biopsy
Left the house at 6 a.m. and got home from Pittsburgh at 5 p.m. A long day.
The actual ultrasound guided biopsy was only about 15 minutes. Afterwards, Barry had to lie on his side for a few hours. They got 3 tissue samples this time. This procedure was easier for him than the first one. Will have to wait until mid next week for results. The hospital was very easy to find. No problems in getting there.
A long day so short blog for now. Just wanted to tell everyone that we are home safe and sound.
The actual ultrasound guided biopsy was only about 15 minutes. Afterwards, Barry had to lie on his side for a few hours. They got 3 tissue samples this time. This procedure was easier for him than the first one. Will have to wait until mid next week for results. The hospital was very easy to find. No problems in getting there.
A long day so short blog for now. Just wanted to tell everyone that we are home safe and sound.
Thursday, May 05, 2005
First appt. with oncologist
Today's the day. Heck, had you asked me a couple of months ago about the need to see an oncologist, I would have thought you to be crazy. But, our lives can change in an instant. At times it is best not to know the future.
Am a bit anxious as can be expected. My stomach of course is how I can tell that. I try to be honest in my posting. Spent some time in bathroom last night which is proof in that.
Appt. is at 10:20 a.m. Thanks Meg for your kind words. And everyone else who is watching over me.
Barry went with me to the first appt. Dr. Garrow is so comforting to talk to and to listen to. And that's such a plus. I got a lot of my questions answered.
Here are some things I learned today:
May 10th, I will be having an echocardiogram as a baseline for my heart, along with a chemotherapy teaching session. This is when I will have a tour of the chemo area and be explained specifically what will happen when it starts.
May 12th is my first chemo treatment in the morning. It will be a longer session than the others as they have to insert it in the IV at a slow pace the first time. A normal treatment is about 1 1/2 hrs. I will not be working this day and the next day for sure. The first treatment usually will be guideline for how the other sessions go. I will be having 4 treatments at 3 week intervals. Total is 12 weeks. And then I will have radiation for about 6 weeks.
May 13th I go in for a "booster" shot to up my white cell count a bit. I don't have specific name of drug right now.
Dr. Garrow did confirm that hair loss is a side effect and recommended that it be cut before it comes out from the drug. This will be done. I have information about wig companies that I will be looking into. I think I will do a variety of things: wig, scarves and turban/hats. Variety is the spice of life.
I have stage 2 cancer/nodes negative. Hormone receptor negative. Will probably not need tomoxafin.
All the people I came into contact today at the Cancer Center were so caring. I spoke to the social worker who is my advocate for anything that needs to be done or looked into. She is able to be talked to at any time. Her name is Brenda. She ended the meeting by giving me a hug. Now that's my kind of person.
A lot to remember today, but I think I did a good job. Thank goodness I took notes!
On the road....to healing and recovery.
Am a bit anxious as can be expected. My stomach of course is how I can tell that. I try to be honest in my posting. Spent some time in bathroom last night which is proof in that.
Appt. is at 10:20 a.m. Thanks Meg for your kind words. And everyone else who is watching over me.
Barry went with me to the first appt. Dr. Garrow is so comforting to talk to and to listen to. And that's such a plus. I got a lot of my questions answered.
Here are some things I learned today:
May 10th, I will be having an echocardiogram as a baseline for my heart, along with a chemotherapy teaching session. This is when I will have a tour of the chemo area and be explained specifically what will happen when it starts.
May 12th is my first chemo treatment in the morning. It will be a longer session than the others as they have to insert it in the IV at a slow pace the first time. A normal treatment is about 1 1/2 hrs. I will not be working this day and the next day for sure. The first treatment usually will be guideline for how the other sessions go. I will be having 4 treatments at 3 week intervals. Total is 12 weeks. And then I will have radiation for about 6 weeks.
May 13th I go in for a "booster" shot to up my white cell count a bit. I don't have specific name of drug right now.
Dr. Garrow did confirm that hair loss is a side effect and recommended that it be cut before it comes out from the drug. This will be done. I have information about wig companies that I will be looking into. I think I will do a variety of things: wig, scarves and turban/hats. Variety is the spice of life.
I have stage 2 cancer/nodes negative. Hormone receptor negative. Will probably not need tomoxafin.
All the people I came into contact today at the Cancer Center were so caring. I spoke to the social worker who is my advocate for anything that needs to be done or looked into. She is able to be talked to at any time. Her name is Brenda. She ended the meeting by giving me a hug. Now that's my kind of person.
A lot to remember today, but I think I did a good job. Thank goodness I took notes!
On the road....to healing and recovery.
Wednesday, May 04, 2005
I'm all set for tomorrow
After what seems like forever is coming tomorrow. I have my first appointment with my oncologist Dr. Garrow. Different emotions in my head but I'm all set. I have a brand new note book to take notes, along with a list of questions that I've printed from a couple of websites. Questions to ask the doctor once diagnosed with cancer. Barry will pick me up at work and we will go together. Am thankful the appointment is in the morning so that I don't have to wait around all day.
I am sure that I will have lots to write in my blog tomorrow. Thanks to everyone for your continued good wishes for both Barry and myself. It's a busy week for us.
I am sure that I will have lots to write in my blog tomorrow. Thanks to everyone for your continued good wishes for both Barry and myself. It's a busy week for us.
Tuesday, May 03, 2005
Pooped but I'll make it
As I left for work this a.m. I noticed a bunch of turkeys in front yard. That was a nice site.
A tiring day at work (again). I've come home pooped. Between all the phone calls and trying to line up Barry's next biopsy, it's so much to handle. Just mentally exhausted with scheduling everything.
When I pulled into the driveway, I finally heard from Dr.'s office that the appt. has been scheduled for this Friday morning in Pittsburgh. An ultrasound guided liver biopsy. He'll have to be in recovery for 3-4 hrs. So it will be another long day at a hospital for us.
Watched my favorite show of the week, American Idol. Go Bo is all I can say. I really enjoy watching him.
After looking back at today, I have to try not to waste my energy on things that I have no control over. Hard thing to do, but I have to perfect that. As a good friend told me, I have to walk the walk and talk the talk. Good advice, friend.
A tiring day at work (again). I've come home pooped. Between all the phone calls and trying to line up Barry's next biopsy, it's so much to handle. Just mentally exhausted with scheduling everything.
When I pulled into the driveway, I finally heard from Dr.'s office that the appt. has been scheduled for this Friday morning in Pittsburgh. An ultrasound guided liver biopsy. He'll have to be in recovery for 3-4 hrs. So it will be another long day at a hospital for us.
Watched my favorite show of the week, American Idol. Go Bo is all I can say. I really enjoy watching him.
After looking back at today, I have to try not to waste my energy on things that I have no control over. Hard thing to do, but I have to perfect that. As a good friend told me, I have to walk the walk and talk the talk. Good advice, friend.
Monday, May 02, 2005
Back to work
I went back to work today after being gone last week. Actually it wasn't that bad. Probably because the problems I deal with on the phone are nothing compared to what's happening in our lives.
It was disappointing that since last Friday we have not got a doctor's appt. in Pittsburgh scheduled for Barry. I spoke to Dr. Henwood's office and they have not heard from the doctor who they faxed a report to last Friday. This is terrible, creating time out of Barry's job and more aggravation that is not needed right now. I would have thought we would have got faster service. Hopefully something will come tomorrow.
It was disappointing that since last Friday we have not got a doctor's appt. in Pittsburgh scheduled for Barry. I spoke to Dr. Henwood's office and they have not heard from the doctor who they faxed a report to last Friday. This is terrible, creating time out of Barry's job and more aggravation that is not needed right now. I would have thought we would have got faster service. Hopefully something will come tomorrow.
Sunday, May 01, 2005
And now for May
This is going to be a busy week for me. I will be seeing Dr. Garrow, my oncologist on Thursday for the first time. The good thing is that I am familiar with him since he's a neighbor of mine. I am anxious to meet with him and expect the appointment to be informative. I have my list of questions ready along with a brand new notebook to keep my notes. This was suggested to me by other cancer survivors. So much is usually discussed that it's hard to remember what is said once you leave the office. It's the not knowing that can make you go crazy.
Barry's biopsy came back inconclusive so he has to meet with an interventional radiologist in Pittsburgh. Our surgeon is scheduling this appointment and will get back to us. Here's a link to explain this specialized field of radiology: http://www.cc.nih.gov/drd/sp/whatis.html
Needless to say, we both have our anxieties to deal with right now.
I return back to work tomorrow. I've been treated by my doctor for anxiety due to my own condition. Am thinking positive that once I know what my treatment plan is that the anxiety will not be as bad. As I've said before, cancer is 24/7 right now in my/our lives. Nothing that I would ever recommend to anyone to go through.
Tim slept over 12 hrs. last night. Does say he's feeling better which is good news. Didn't want to wake a sleeping kid.
My sister Maureen sent this positive quote to me that she heard on TV last night:
"You can't see the future if you are looking through tears!"
Barry's biopsy came back inconclusive so he has to meet with an interventional radiologist in Pittsburgh. Our surgeon is scheduling this appointment and will get back to us. Here's a link to explain this specialized field of radiology: http://www.cc.nih.gov/drd/sp/whatis.html
Needless to say, we both have our anxieties to deal with right now.
I return back to work tomorrow. I've been treated by my doctor for anxiety due to my own condition. Am thinking positive that once I know what my treatment plan is that the anxiety will not be as bad. As I've said before, cancer is 24/7 right now in my/our lives. Nothing that I would ever recommend to anyone to go through.
Tim slept over 12 hrs. last night. Does say he's feeling better which is good news. Didn't want to wake a sleeping kid.
My sister Maureen sent this positive quote to me that she heard on TV last night:
"You can't see the future if you are looking through tears!"
Saturday, April 30, 2005
End of another week
Took Eileen to airport this a.m. House is going to be so quiet now. Must admit that as I turned away from her I shed some tears, and also in the car. Good tears. Had I not enjoyed her and everyone so much, I wouldn't have shed any. It was so nice having family here, people who have family living close to them take family for granted. I don't for a second.
My house is so nice and clean. These past 2 weeks my floors have been Murphy soaped, curtains have been cleaned, tons of laundry have been washed, and house dusted to the t. Barry said to me :guess it will be another 3 years until it gets cleaned again! Wise guy. Thanks to Mom, Dad, Maureen and Eileen. And of course to my brother in laws for letting my sisters come here in the first place. And better than a clean house is just having the emotional support in difficult times. I am so blessed to have so many friends nearby that will be by my side these upcoming months.
Tim's come down with sore throat and cold today. Went in hot tub to get rid of chills. Bummer being sick. I know he doesn't feel good when he naps during the day like today. By evening, he was seen PoGo'ing, Eileen.
Well, that's it for now. Again, thanks to all.
Without even realizing it, since it's been such an emotional week, I basically have full movement in my right arm. Hard to believe that. And my armpit is almost back to normal feeling. The healing process is working even during these times.
Wgt. today: 137 lbs. Have lost a few pounds in past weeks. That's good news.
My house is so nice and clean. These past 2 weeks my floors have been Murphy soaped, curtains have been cleaned, tons of laundry have been washed, and house dusted to the t. Barry said to me :guess it will be another 3 years until it gets cleaned again! Wise guy. Thanks to Mom, Dad, Maureen and Eileen. And of course to my brother in laws for letting my sisters come here in the first place. And better than a clean house is just having the emotional support in difficult times. I am so blessed to have so many friends nearby that will be by my side these upcoming months.
Tim's come down with sore throat and cold today. Went in hot tub to get rid of chills. Bummer being sick. I know he doesn't feel good when he naps during the day like today. By evening, he was seen PoGo'ing, Eileen.
Well, that's it for now. Again, thanks to all.
Without even realizing it, since it's been such an emotional week, I basically have full movement in my right arm. Hard to believe that. And my armpit is almost back to normal feeling. The healing process is working even during these times.
Wgt. today: 137 lbs. Have lost a few pounds in past weeks. That's good news.
Thursday, April 28, 2005
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