Tuesday, June 05, 2007

Had thought I was feeling better until a bit after logging off last night. Then a headache came, went to bed and the aches returned. Took a long time to sleep, and once I did I was tossing and turning all night. Can't wait to hit the bed tonight!

Monday, June 04, 2007

New landscaping

We had some landscaping done today. And boy does it look nice. Brought in lots of fill and topsoil to level the front yard, planted grass and removed the large rocks that were there. End result is to make our lives easier. Able to sit on the mower and get the lawn done with ease. Less time weedwacking for Tim. We also had a bed made in back of deck and out front by the rhubarb where I can plant lots of perennials.

After dinner tonight, on the spur of the moment, I called my good friend Joanne who I used to work with at the bank. She met me at Home Depot to do some flower shopping. Then we went to Lowe's to finish the job. And for a special treat we ended our unplanned visit at McDonald's for sundaes. I don't know about you, but it's often times that are not planned that work out even better! Sure was nice seeing her. I did promise her to take pictures of the garden once I get it planted.
That will be my fun thing to do after work tomorrow.

"To plant a garden is to believe in the future."

PS. Aches went away this p.m. and am feeling pretty good. Yeah..

Sunday, June 03, 2007

Update on second chemo Taxol

Geez, if I don't blog soon I'm going to forget everything that happened this weekend.
Yesterday was actually a good day. Barry and I did some clothes shopping for him while Tim reffed two soccer games. Then we went shopping for new laptop. The one we had was about 6 years old and it was working like it was a dial up computer. Time to replace it. Even went out to lunch. As we were going into the restaurant, the guys made fun of me. They had not told me that the fruit punch drink I had been drinking, had made a nice huge moustache stain on my mouth/lips. Never said a word when we were shopping. Said it looked like I was a clown that didn't know how to put lipstick on! You should have seen the amount of red I swiped off my mouth onto my shirt... Nice guys.

Came home, attempted to nap, but the steroids wouldn't let me. Even though I felt very tired.

Can't remember what I did later in day. Sorry.

This a.m. at about 3:30 a.m. I woke up with very achy legs/hurt to stretch them out. Figured that was caused by bone strengthening meds I was given on Friday. Took some tylenol and eventually fell back to sleep. Even my left fingers were sore. But no fever as the doctor had said I could have got.

We went to 8 a.m. mass as I was eucharistic minister. Had been a couple of weeks since going to church with everything happening. I couldn't get home fast enough. By 9:30 I was back in my jammies since my legs/fingers still were sore. I slept until noon. Barry and Tim went shopping while I was asleep.

I took Tim to his soccer game in afternoon. And boy did it rain. But it did let up after awhile and they were able to play the game. I sat with Lisa and Mike, which was nice. By that time I had felt a bit better, not as achy.

After the game, I took another nap.

My legs are starting to ache a bit now, along with my lower back. Have taken some more tylenol. I do feel better than last week at this time I think. Have to realize that pain means the meds are working to strengthen the bones.

Plan is to make appt. with surgeon this week to have port placed in my collarbone area for chemo treatments.

Tim's got just a few more days left of school. Am very proud of his accomplishments, especially knowing what he's been through the past couple of years.

Saturday, June 02, 2007

Friday, June 01, 2007

2nd chemo is complete!

Lisa drove me to my surgeon's office before my chemo treatment, and the area that I had the biopsy is healing perfectly. I questioned if I could have a port installed near my collarbone for chemo, and he said it would not be an issue. Just confirm with my oncologist. My concern was the location of the tumor, perhaps being too close to the area where ports are put under your skin. I'll explain ports another day... My oncologist said fine, so I will contact the surgeon next week. Does as an oupatient and is beneficial when you have so many times IV being used on your arm/veins. And I only am able to use one arm due to lymph nodes removed on the other.

I received Taxol again today. Dr. G. said that the first treatment does cause the symptoms I had talked about, lack of energy. But hopefully this one will be better. I did get some boost energy drinks from them as samples. Plus I've been told by another cancer survivor about a berry drink, a short 4 letter word, but damned if I can remember it! Will check that out also. Had blood work before hand to check my counts/hemoglobin/platelets etc. All in the acceptable range, but have dropped some since last week. Didn't take that long to happen. I've been approved for avasten and will have that drug next Friday. I was also given my first treatment of Zometa.

Being on ZOMETA Therapy

ZOMETA is an FDA-approved prescription drug developed by Novartis Oncology. It is used to treat patients with multiple myeloma. ZOMETA is also used to treat other cancers—including breast‚ lung and prostate cancer—that have spread to the bones‚ a process called bone metastasis. When cancer has spread to the bone‚ treatment with ZOMETA helps to protect bones and may reduce or delay such complications as:

Bone fracture
Need for radiation and/or surgery to bone
Spinal cord compression

Even patients who have already experienced bone complications from the spread of cancer to the bones may be helped by treatment with ZOMETA.

ZOMETA is used with cancer treatments such as radiation‚ hormonal therapy‚ or chemotherapy.

To help manage your treatment‚ see additional ZOMETA Patient Resources.

If therapy with ZOMETA is recommended for you‚ here are some things you should know.

ZOMETA is given as an intravenous infusion every 3 to 4 weeks. You may receive it at your doctor’s office or at a clinic or infusion center. The infusion takes at least 15 minutes once ZOMETA is prepared.

-------------------

Dr. G. mentioned to me the possiblilty of a fever tomorrow night from the zometa drug. Just to be on lookout for it.

It was a learning experience for Lisa, who like others including myself, had only heard the words "receiving chemo". She was able to see first hand what that actually means. I am hoping to bring my camera to the next treatment, if I remember to do so. Would like once again to document the process in a personal way. Am anticipating hair loss probably by next Friday. Will once again shave my head to take charge of this situation.

After I got home and took a couple hr. nap, we went to calling hours at about 5:30 p..m for Becky's step dad. That was on my to do list no matter what today. She has been a great support system like so many of our friends. My sympathy is extended to them.

Went home, heated up sgetti and meatballs that Meg had made for us and they were so good. Lisa even brought over some hamloaf "balls" specially made for Tim, along with an Amish friendship loaf of bread. Life is good.

Wanted to do something tonight since for a change I'm feeling myself. Ended up just staying put. Feeling thankful to God for this moment. I'll take each moment that is given to me. And after having some crappy days this week, boy do I feel good right now.

Thursday, May 31, 2007

2nd chemo tomorrow

Today was another pretty good day. Am as set as I can be for tomorrow's chemo. Lisa's driving me, and I'll be having a quick check up at my surgeon's office before the treatment. Not sure which chemo drugs I'll be served tomorrow. Depends if insurance has agreed to cover the avasten drug. Time will tell.

As my sister says, here's to strong veins!

Wednesday, May 30, 2007

A better day

Still yawned most of the day, but I seemed to be a bit better. Am thankful for that.

Tuesday, May 29, 2007

I make myself post cause I know so many people are concerned about me.

Did go to work today, there in body just not mind. Accomplished a lot of data entry, just wanted my chatty self. But last I knew, that was not a sin. People are concerned but it's hard to explain how you are feeling. Not nauseous thank goodness, but just no energy. Like someone wrung out all my energy.

At lunch Barry cooked bratwurst on the grill which was nice. That allowed me to lay on couch with blanket for about 20 mins. A chance to close my eyes.

As soon as I got home from work (a very long day) I changed into my jammies and got under the covers in my bed. I dozed until 6:30 pm. Tim had helped himself to a bratwurst so he was all set.

If I could get just a small amount of energy back I would be happy. I just have to remember that I'm doing the best I can do. Lay down whenever I can, and get to bed early at night.

A friend has offered to do a house cleaning party for me. In the past I would never have considered such an offer. But you know, I'm this close to saying "go for it." People wouldn't offer if they didn't want to do something. Heck on a healthy day, house cleaning wasn't on my top 10 list. There comes a time when you have to sit back and just say yes.

Monday, May 28, 2007

zero energy and I don't like it

not sure if it's steroids going away and/or chemo working, but my energy level is at a low. no umph at all and I don't like that feeling. very depressing to know that right around the corner is another treatment. Tim's so kind, hugs me and says it's not my fault. It just sucks.

asking for healing energy and prayers.

Sunday, May 27, 2007

Feeling good continues...but not for long..

Going with the flow and I continue to feel good. Slept peacefully. Am hoping that Barry contacts the Reiki Master to have some spiritual energy sent his way. He has trouble sleeping, sweats, etc. The way I look at it, I'll try anything.

Off to first graduation party this afternoon. Lamb on the spit will be main course. Barry's already drooling for it. Using that as his away message on computer today.

Updated blog 11:20 p.m.

I wrote on my blog a bit too soon this a.m. Things changed once I took the morphine time release pill. Don't think I should have taken that this a.m. Even though they told me to keep ahead of the pain, I think it was a bad thing to do. I did cut the lawn afterwards, and made up 2 hanging baskets for deck. By the time I was doing that, I was feeling a bit whipped. Most of the day is a blur. About 2 p.m., I went to bed knowing that at 4 p.m. the graduation party was starting. Wasn't able to really sleep. Did get up at about 4:30 p.m. Talked it over with Barry and said we would go to party. I at least needed some food in my stomach. Most of the time at the party was a blur, was there in body but my head was elsewhere. I could hear conversations but I wasn't really a part of them.

As soon as got home, which was before 7 p.m. we both headed to bed. I could not get comfortable since my jaw/teeth had slight ache. Weird feeling. Eventually did fall asleep and just woke up at 11 p.m. for an ice pop. Barry slept a couple of hours.

I am so glad that I'm off tomorrow for the holiday. Needless to say, I'm not taking any more meds. If pain comes back, I'll take something. Can't see why people like to do drugs. Not for me.

Can't wait to see Tim. Both times he called, we missed talking to him.

Saturday, May 26, 2007

A good day for me, thank God.

Knock on wood, so far so good. Have had no discomfort from first chemo treatment. About only thing different is "trench mouth". Yucky taste. But that's fine with me.
Slept well. Went out and bought some more herbs and flowers to make hanging bags. Wasn't going to do them this year, but they always do look nice. My sister had shown me how to make them for my deck.

Tim's off with his friend for the weekned. House is already too quiet.

My holiday weekend plan is to relax! take care of myself! and I think it's about time for a little siesta! Barry's already beat me to that.

Have still taking the time release morphine to keep it in my system, insurance policy.

Looking forward to going to the first graduation party with the Beckster family tomorrow afternoon. Even Barry's able to come since it's a holiday weekend.

Thanks again for everyone's powerful prayers and positive energy.

11 p.m. And end of a good day. Went out to dinner with Barry and missed what could be Tim's one and only call to us! Have to say, today was a good day.

Friday, May 25, 2007

My first chemo treatment is complete

Julie drove me to the cancer center, but only after I posed with her for a picture. Had to blog a picture, you know the routine. One of these days I will also take some pictures of the actual treatment. This round of treatments is with a chemo drug called Taxol. I am waiting for insurance approval to add the drug avistin which presently only has FDA approval for colorectal cancer, but doing wonders with breast cancer. If insurance denies this drug for my treatment, the social worker has papers all set to apply for the drug from another source, perhaps drugmaker. I signed application papers today.

Before the chemo drug is given via IV, pre meds are given to me. These include benadryl for possible allergice reactions, kytril (used to prevent nausea and vomiting as a result of chemotherapy and radiation therapy. Kytril offers you the confidence to control these distressing side effects of cancer treatments) and a steroid called decadron. Oh yes, pepcid for my stomach too. Once these are given, the glass bottle containing Taxol is hung and connected to my IV. The drip dosage at first is very slow, just to make sure I am not having an allergic reaction. Fast beating heart/flused cheeks are watched. I think they adjusted the drip dispensing about 4 times before it began to drip at the fast speed. As soon as the benadryl was given in my vein, my eyes became so heavy. I had my eyes shut through most of the treatment, with the lights out in the room. Julie sat my the doorway doing paperwork, using the hall light for herself. She was very good company. I do see the need for a driver to the treatment each week due to this drowsiness.

As I walked up the driveway, I think I was walking like I was on drugs! oops, I guess I was!! A bit drunky. Said a quick hello to Barry and announced I was heading to bed. Think it was about 2:30 p.m. when I got home. I felt good and wanted to take advantage of the sleepy feeling. I quickly put jammies on after calling my dad with news of the chemo. Bed felt so good.

Barry and I went out to dinner tonight. Pain level is at an almost zero, but am taking time release morphine as prescribed. I know how fast it can come back. No nausea, no side effects. Knock on wood. I feel pretty good. Must be all the positive energy and prayers people are sending me.

I intend to do very little this weekend. Going to pamper myself and take a step back. Tim will be away at Ben's family camp this weekend. Barry did uncover the 5th wheel camper this a.m. (after he made Tim a gourmet breakfast and drove him to school). So it will be Barry and me this weekend.

Thanks to all.

Julie is my chauffeur for my first chemo treatment today. Nothing compares to friendship!

 
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A good night's sleep

Am so thankful for a good night's sleep.

Julie is taking me to my first treatment this a.m. She's a nurse and is quite familiar with oncology. A good friend.

And I'm also excited about my sister's new friend who is involved in Reiki, Japanese art of healing through energy. She's going to send me some energy tonight. I'm open to anything, anything that is positive. Have asked her if it could be send the mornings I have treatment also.

And once again, thanks to this blog for a way of me telling me/our story. Who would have thought it would have touched so many lives. I get instant emails whenever someone posts a comments, so please keep them coming. I don't get notified any other way. So if you just read my blog, I am not aware of that. But I do appreciate you taking the time.

My chauffeur arrives at 10:30 a.m. so off to get something in my tummy.

PS. Perhaps I'll even have a recent picture of me taken today.

Thursday, May 24, 2007

Cluttered mind

My mind is a bit cluttered right now. My chest seems like it is in overload, pumping so fast. It's just that there was no real mental prep for tomorrow's chemo for me. Not that it would have helped. Wam, bam, here I am. Have taken anxiety/anti depressant/pain meds. Think I've covered everything.

Forgot one thing. A good friend of mine, a bosom buddy, dropped off this huge chicken in a roasting pan for dinner tonight. Out of the blue, and perfect timing. I had nothing planned. Along with apple pie. Once again, terrible situations bringing out the best in people.

Have heard from people that I would never have expected to.

Short post now, as I'm mentally exhausted. I think my laundry is going to have to stay wet in the dryer!

Off to bed where I pray for a good night's sleep. Looking forward to that energy being sent my way. Cool.

11 a.m. treatment. Bring on good veins.

Wednesday, May 23, 2007

Pain returns for a visit

As bad as I'm feeling tonight, couldn't go to bed without an update. Had good day at job, accomplished a lot, people were so kind. They called me an inspiration. Felt good.

Had hair cut after work at about 6 p.m. Tim went to school function at about 6:45 p.m. I headed to mall and grocery store. By the time I was leaving town, the pain was slowly coming back to my chest. It was the longest 1 hr. 10 min. trip that I've had lately. Had not brought any meds, but had bought tylenol in store. I don't know how I made it home with the pain.

Quickly took meds (called oncologist for drug recommendation) consisting of vicadin. Just quietly layed on couch watching tv On drive home I was trying to do breathing exercises to make the pain less.

Meds are kicking in now, off to bed. Scary now since I now know the pain is caused by cancer. For sure, the pain meds have to come with me on trips. Am hoping to work tomorrow, but time will tell.

Night.

No sleep for me

Last night was a mostly sleepless night. Guess it made up for the nights/days I was sleeping so well. Headache remains, will take something for it. I do know that tonight will be better sleeping night. Off to work shortly. Wearing my new capris to work. Had never been allowed to wear them at old job. Along with sandals. Am hoping the a/c is on now at my job since it's going to be 80s.

Tuesday, May 22, 2007

It's back.......

Yes, the cancer is back. Not the words I wanted to hear but the words I expected to hear. The same cancer name, recurrence of breast cancer but in different location. Beneath the sternum (chest bone) coming out around the side pertruding through my chest. About 4 c.m. in size. Not surprised, knew it in my gut. You don't have a large growth coming out of your chest 2 years from breast cancer for no reason at all. Shed no tears while talking to oncologist, had already shed some past week or so.

Additional testing is being done on the tissue.

The Plan:

Chemo will begin this Friday with two drugs. Taxol and avastin, plus a drug for super bone strength. Can't remember the name. Wonder why? Chemo every Friday for 3 weeks, then off the 4th Friday. No delay, starting right away. Hair loss once again, plus possible neuropathy and skin irritations (acne on face). Will have to get my hats back and scarves borrowed from Jody again.

They say 1 in 7 get breast cancer. Am still wondering why some get it twice.

I've shed some tears this p.m. once again, but I do have a plan. I return back to work tomorrow for a couple of days and then chemo on Friday. With chemo on Fridays I can rest 2 days on the weekends. I did it once before, and I hope to continue to hold my head high during this period. Bottom line is there is no cure for cancer. All it takes is one cell, and mine was probably tucked away under my chest bone in a lymph node.

Thanks for your continued thoughts and prayers. Believe me, I don't know how people can make it through this shit without faith.

Off to see oncologist

Am hoping I hear pathology results today, but it could be a bit too early. But at least I'll be meeting with oncologist so he can see first hand the area in question.
Yesterday was first day without prescription meds, and just took over the counter. One thing I've been noticing is how extremely tired I have been. Yawn practically all day, and when I sleep boy do I sleep. After getting Tim up for school, I immediately go back to bed and sleep until 10 ish. Often during the day, I take 2 -3 hr. nap. In trying to assess this, I am thinking it could be related to the anti depressant that my medical dr. prescribed when I was in hospital. Have since read side effects and that is one. So, after talking with my sister last night I took only 1/2 the pill at bedtime and will go over this with my oncologist today. Need to wean myself off of that pill in my opinion. Have also had a mild headache in the back of my head for past couple of days. Can't think of anything else but perhaps a blood test might show.

Off to 2 p.m. appt.

Am planning on returning to work tomorrow. Will call them later, barring anything out of the ordinary.

Monday, May 21, 2007

A plan....

Definition of plan:

A scheme, program, or method worked out beforehand for the accomplishment of an objective: a plan of attack.

Today I/we began my plan. This was done by going to our church and for the second time we both got the blessing of the sick.

Definition:

The Catholic Church sees the effects of the sacrament as follows. As the sacrament of Marriage gives grace for the married state, the sacrament of Anointing of the Sick gives grace for the state into which people enter through sickness. Through the sacrament is given a gift of the Holy Spirit that renews confidence and faith in God and strengthens against temptations to discouragement and anguish at the thought of death and the struggle of death. It thus leads to spiritual healing with forgiveness of sins and, sometimes, to bodily healing as well.

The oil used in the sacrament is usually olive oil, though other vegetable oil may also be used (Catechism of the Catholic Church, 1513). It is blessed by the bishop of the diocese at the Chrism Mass he celebrates on Holy Thursday or on a day close to it. In case of necessity, the priest administering the sacrament may bless the oil within the framework of the celebration (Code of Canon Law, canon 999).

In the Roman Rite of the Western Catholic Church, the priest anoints the sick person's forehead with oil (usually in the form of a cross), saying: "Through this holy anointing, may the Lord in his love and mercy help you with the grace of the Holy Spirit." He then anoints the hands, saying, "May the Lord who frees you from sin save you and raise you up." He may also, in accordance with local culture and traditions, and the needs of the sick person, anoint other parts of the body, but without repeating the sacramental formula.

A positive step taken for our plan.

We see oncologist tomorrow at 2 p.m.