Wednesday, October 05, 2005


A beast of a machine. Posted by Picasa

This shows how I received the 8 boosts during my last days of radiation. Notice how close the machine is to my chest. Posted by Picasa

We had two large sheet cakes for my celebration today. I was able to share the leftovers with Barry and his crew. Posted by Picasa

Lots of flowers, balloons, cake and friendship. Posted by Picasa

My department surprised me with a party today. Posted by Picasa

My radiation is complete!

And I'm looking forward to it. Never thought it would come. Thanks to all for your continued prayers for us. Sort of a bittersweet day but I have to take time to celebrate for me. Now I can focus on Barry.

Upon arriving at work I was greatly surprised! My department had decorated my desk and had planned a congratulations party for me. I was truly surprised. My desk was all decorated with balloons and streamers, with a Way To Go message on a bulletin board. I received a mum plant from my boss's mother. She actually delivered it to me at the bank. It was the first time I had met her.

I also received a beautiful fall bouquet of flowers from the whole building where I work. And to top it off, a bottle of champagne was given to me by Andy L. and Beth C. from the Administration area of our building. I've taken lots of pictures and will show them to you.

It's not just a food party, it's also a cake party. Two huge trays with cake were delivered for me to share with the whole building. Soon an email is going to be mailed to all employees to come up for a piece of cake.

I am truly blessed. And so appreciative of this attention. Today is definitely one of the GOOD DAYS. Thanks to all.

I had my last radiation appointment today! Wow. All done. I was also able to pick up Barry's pills that the drug company provided us. He will start taking a daily pill this evening. My follow up appointment is next February. As I was leaving I ran in to Dr. Garrow my oncologist. Took a picture of him and myself. I actually received a certificate for completing radiation treatment. Was scheduled to have follow up appt. with him but he said to reschedule in a couple of weeks. Said I should relax for a few days, no need to see him now.

As soon as I could tell that there was going to be cake leftover, I thought of Barry and his crew. I knew the exact place to bring it. Tim and I delivered it to him at his job. He was able to enjoy a piece. It didn't take long for the guys and gals to have some of it. I was so happy to share my good day with them. And Meg has been wanting to see me in person. So many of his employees have been supportive of both of us during this process.

Since Barry had gone to work early today, he surprised me and was able to leave work and join Tim and myself for dinner. This was a nice treat. We went out to dinner as a family. Something I had not expected to do which made it more special.

What a day. A great day. I know the days ahead may be difficult but today I had to soak in the good stuff. A time to energize my soul. I truly saw many angels walking among me today.

THANK YOU.

Tuesday, October 04, 2005


I now know why Matt always would feel his head while working. I began doing the same thing. Sure does feel good. I miss him. Posted by Picasa

My buddy Matt on his last day in our dept. It was pink shirt day in his honor. Don't we look alike?  Posted by Picasa

ONE MORE DAY

One more day of radiation. Yes, an emotional roller coaster. So much has happened, too much to even remember.

Will be giving the technicians a container of twizzlers tomorrow. They've been so kind to me.

By 3 p.m. tomorrow this part of my journey will be over. Yeah.

Going out to dinner with Timmy after I get my nails done tomorrow to celebrate.

Monday, October 03, 2005

The last days of my radiation

Had my afternoon radiation today, leaving 2 more. Can't wait. They asked if I was taking the day off to celebrate/go out to dinner. Said no, just rushing back to my job like I've done for over 7 weeks. I won't miss that at all.

An exhausting day today with someone on vacation, and people that are new to the dept. And Mondays are usually crappy. So pooped I can't wait to hit the bed.

That's it for now. See you tomorrow.

Sunday, October 02, 2005

The end of a great weekend.

The great weekend started on Friday and here it is Sunday evening. A great one.

Went to Sam's club today, with the main item on my shopping list being twizzlers. I want to give them to the Cancer Center this week since it's my last week for radiation. They continue to be so kind and caring there. And am very happy that they had this item. Last time Barry was there it was not available.

I had the best nap today. Last night and during this nap, I've started having dreams. It's been many weeks that I've had a dream (or known I've had one). Felt great.

Went out to dinner. And now back home.

I have THREE days of radiation left. Have an appointment with Dr. Garrow this week, also. It seemed so far in the distance when this appt. was made about 2 months ago. These 7/8 weeks did go by so fast. Radiation as compared to chemo is much easier.

Looking forward to a GOOD week. Wonder why.... I have a reason to celebrate. Anyone want to join me!

Saturday, October 01, 2005


The couples get ready to go out to dinner. Posted by Picasa

Tim and Annie. Posted by Picasa

Tim picks up Annie at her home. Posted by Picasa

Tim's homecoming dance is this evening

Barry was up all night from effects of chemo. Wide awake from one of the drugs. Not sure if he ever did fall asleep.

I picked up Tim's flowers for Annie in the morning. Then woke him up and we went to his soccer game. Due to Barry's work schedule, he was able to see both of Tim's games this week. It was such a beautiful day today. Perfect weather. The game was tied.

During the afternoon, both Barry and I washed our vehicles. Tim did his usual weed wacking of the yard. It was about 3:30 p.m. that he went inside to clean up for the homecoming dance. So nice having a boy, low mainenance. I was so proud of him today as I watched him get dressed for his first big dance. After every thing that has happened in our family, it is so nice that he actually has remained such a great kid. He's the best. He dressed in black, which I told him is always classy. Black dress shirt and slacks. That's all you need to look good. I took some pictures of him outside and then we went to pick up his date Annie C. at about 5 p.m.

We arrived at Annie's house and she looked gorgeous in her midnight blue dress. The flowers that Tim gave her matched her dress perfectly. Her parents and family greeted us as we took more pictures of Tim and Annie. They own a dairy farm, hard working family.

We then drove the kids to BJ's house to meet the other six couples. You should have seen all the family and friends of these handsome children taking pictures of them. It was such a site. After Annie had heard that some girls were at beauty parlors having their hair done, I heard her tell them that her cousin had styled her hair in her kitchen, and that there were 74 bobby pins in it. She is a beautiful girl and very down to earth, nothing phony about her. These boys and girls were so perfectly dressed. And as I learned from this experience, boys' ties match the girls' dresses. Tim has known most of these kids since moving here. It's so nice that they remain friends. I've heard these names for a long time. Can't say it enough, good kids. My wish is that in years to come I can continue to say these things.

After picture taking the parents drove the couples to a local restaurant where they were able to dine by themselves. While the kids were eating, we went back to BJ's house and had so much food. She had made meatballs/sausage and sauce, pasta and so many appetizers. Melda had made wedding soup which was so delicious. We were there for about 2 hours and then picked up the kids for the dance.

When Tim and Annie got into the truck (and yes Tim opened the door for her), they got to laughing because Annie ordered off the kids menu! Chicken fingers. Tim also had chicken. It was so nice that the kids were actually talking in the truck and not shy. Dropped them off at the dance by 8:30 p.m. Will be picking them up at 10:30 p.m.

As you can see by the length of this blog, it was a GOOD day for our family. A day that no one take can away from us. And will stay in my heart for a long time. As Tim got dressed this afternoon I told him that he is the reason that I've become sociable.

I picked Tim and Annie up at 10:30 p.m. They had such a good time at the dance. We then drove Annie home.

Thank you BJ (a blogger) for planning such a nice gathering. And to many more good days...........

Friday, September 30, 2005

A good day. Barry's first new chemo

I'm posting this blog on Saturday, but everything actually happened yesterday. Got that?

Barry went to his first new chemo treatment in the morning. Was only there for an hr. A lot less time than his other chemo treatments. He will go every Friday morning. Should be starting the new pill drug next week if it arrives next week from the drug company.

I now have a total of THREE radiation treatments. Oct. 5th is THE END OF TREATMENTS for me.

I went to the high school football in the evening. Let me tell you that I went to the game, never actually watched it. Talked all night with friends about everything. About our health, our kids and about the homecoming dance on Saturday night. I am so looking forward to seeing Tim all dressed up along with Annie for the dance. They are going with a total of 7 couples and also can't wait to see them. There were so many nice comments of everyone loving my new hair. They say I'm so in style and love the new color. Will have to post another picture of me on the blog soon. Can't wait to be able to spike it!

Thursday, September 29, 2005

Approved by drug company!

Today is one of the good days. We had our building meeting today, usually held every other month. And at the end of the meeting I was recognized by the Executive V.P. Louise L. She started off by saying that she would like to recognize one of our workers. A person who always has a smile and who will be ending her treatment next Wednesday, Oct. 5. Can't remember every word she said but I was truly surprised. She is a one of a kind person, a truly caring boss who has seen me in some of my darkest moments. Her husband is also fighting this dreaded disease.
And then everyone applauded me as I got up and we hugged each other. What a special moment. Later in the afternoon I went to her office to thank her personally. She told me that of all things, that I inspire her. Can you believe that. Truly touched my heart. I explained to her that others have done the same for me including another woman at the bank called Linda E. Another breast cancer survivor.

When I went for my radiation today, I stopped to see our social worker Brenda. She motioned for me to come in to her office. She actually was on the phone with Barry. She had just got word from the maker of the drug thalidomide that we were approved for them to provide the drug to Barry! We are so grateful to Dr. Garrow, Brenda and Celgene (the maker of the drug) for giving Barry the opportunity to use this drug. We don't know if the drug will have positive outcome, but we need to try it. Barry's life is too precious not to have this opportunity.

I couldn't wait to go back to work and tell everyone the good news. After I told my dept., a new co-worker Cortney asked me some questions about my cancer and what chemo was all about. I eventually gave her one of my own calling cards that give my blog address. I told her that I have pictures of me receiving IV chemo. You see this is why I take pictures. If I can educate just one person that's great. Seeing something that one may only hear about is educating that person. Since I heard I had cancer I seem to want to tell everyone some part of my story. And when I have a chance, I try to tell smokers I know to please stop smoking. Often I tell them to come to a chemo treatment just to see the consequences. But I do realize, that I can't change people but I can still love them.

So as you can see, today is a bit brighter with this news.

This is the Amish home where Cousin Tim and I purchased fresh tomatoes a few weeks ago. I just love this area. Posted by Picasa

Amish young'uns. You've got to love them. This is what living in Western Pennsylvania is all about. Posted by Picasa

Wednesday, September 28, 2005

FIVE more boosts

And the countdown continues. Not that I haven't had any fun on my daily trips to radiation. Soon I won't have to go to work early and take shorter lunches. Wondering what I'll do with all my time...

Tuesday, September 27, 2005

SIX more boosts

And my personal journey will be done. It all started in March.

Barry was off tonight so we were able to see Tim play a winning soccer game.

Not much bloggin' for me tonight. Am a bit tired. Until tomorrow....

PS. Barry made the best american chop suey for dinner! Smelled and tasted so good.

Monday, September 26, 2005

Boost time for me now

Today I started with my boost radiations. I will be having a total of 8. So therefore, Oct. 5th will be my LAST ONE. Yeah. Already marked on my calendar.

Aileen: It was great seeing you today and meeting your hubby. Am glad the timing worked out that way. And as for the smile, how could I not smile when I see a good friend? I certainly have met a lot of good people these past 6 months.

Sunday, September 25, 2005

I love my Sundays

Another nice day with temps in 70s. Can't complain about that.

Nothing new to report from this neck of the woods. I cut the back lawn and then took a mini nap. After the nap I took Tim to Dutch Isle for some hotdogs. Went with the intention of having ice cream but ended up just having food. For dessert, I'm enjoying the cupcakes I made on Friday. Going to make another batch this week for my radiation technicians.

I booked airline tickets for my Christmas getaway to see family on the Cape. Usually Tim goes by himself, but this time I'm joining him. I've had this planned since last year when I felt as if I needed to be there with him.

We're doing fine here. Barry even brought up the subject of where to go on vacation next year. I told him that this was positive thinking. We had such a great time in Phoenix last year and Timba has also mentioned another bike trip. Time will tell, at least we're looking to the future.

Hopefully will hear news from Dr. Garrow tomorrow that our insurance company will cover thalidomide or that the drug company will. Praying for that.

Saturday, September 24, 2005

Barry's results are in..

Barry got a call yesterday from Dr. Garrow that he wanted to see both of us yesterday afternoon. Barry immediately called me. We went together at about 2:30 p.m. and were there for 2 hrs. Unknown to me, Barry actually has 2 tumors near the liver: one of them shrunk and the other grew in size. The largest tumor is 9 X 3 cm. and it was 6.3 X 3 cm. in April. The other tumor measures 3.5 X 3.6 cm. and it was 5.9 X 6.1 cm in April. Both tumors show dead cancer cells in the middle. The nodules near his lungs are about same size, small. Knowing this, our new plan of attack is to stop the flow of blood to the cancer by using the drug thalidomide which was used in the 50s but got banned later on due to birth defects. It is in pill form and is taken every day. It is now widely used as a cancer drug. We've been approved by the drug company to use it, but our insurance company has not authorized it. Next Monday, our doctor and social worker will work to appeal this decision with insurance company and also deal with the drug company for the supply. The monthly cost without insurance is $2,200.00. Dr. Garrow had done some research about Barry's rare lung cancer and has found a 52 year old man that did this treatment 4 years ago. He has actually talked to some people involved in that case. Barry has also decided to take a new chemo drug which will be given to him every Friday via IV, and that lasts only 1 hr. That'll be a breeze for him considering the other treatment was all day.
It was not the news we wanted to hear but are focused on the future right now. We continue to be strong and to walk forward. It does seem that God gives you what you can handle.

I did not post last night because I had a lot on my mind. In about 2 months Barry will be tested again. Tim knows what is happening and is handling like I expected him to. As I've said before, We Are Survivors, not complainers.

Tim was in a local homecoming parade this morning. Allowed me to see some friends. It was great to watch the parade with Jody and her parents. While I was waiting for Tim I finally met Linda, one of my new bloggers. One of her daughters always tells me she loves my Tim. So many good kids in this town. Truly a great place to live.

The three of us went to the Golden Corral restaurant for lunch. And boy was it good. Loved them smashed potatoes. It just opened this week. It was Barry's second time there this week. It's a place you can go for a good meal, not be rushed, and get in and out quickly. Geez, I should work there! Food was nice and fresh.

Thursday, September 22, 2005


These are just a few of my Radiation Angels. They have so many wonderful employees there. All very caring. Posted by Picasa

This is my pillow that I lay my head down on, with my hands over my head. They are reusable. Actually work like a foodsaver. Sucks the air right out, and to reuse: just open up the valve. Hard as a rock. Posted by Picasa

The machine is hard to describe. Some radiation is given at this angle, and then the machine tilts to go beneath me. Posted by Picasa

In the background, are lots of pillows for other cancer patients. Posted by Picasa

I wanted to show you what the machine looks like. This was taken after my treatment, I'm posing. Notice my "pillow" that was molded so that my position is always the same. Posted by Picasa

Another monitor view of me. Posted by Picasa

This is a monitor view as I am being prepared for radiation. When I am being treated, all leave the room except for me. Posted by Picasa
Barry had PET/CT scan this morning. Was there for a couple of hours. So that is out of the way. Then he treated himself to Golden Corral restaurant which just opened this week.

I brought my camera to my treatment today. A woman who gets radiation after me asked why I had camera. She couldn't understand why I would take pictures. I explained that this is part of my life. Told her that I also took pictures of my last chemo treatment. So many people only know these words, and have no knowledge of what it is or what the machine can look like. It is therapy for me and also a chance to educate others. These are not the best days of my life, but they are part of my life. I will take more pictures next week as I want a clearer picture of the "monster" machine.

Happy Anniversary, Mom and Dad!

Wednesday, September 21, 2005

Lots of emotions

This week Barry's been feeling pain beneath his right ribs, area that caused discomfort in the beginning. For some reason, he always seemed to have minimum pain the week he would be getting chemo. And this would be the third week. I called the cancer center to get word to Dr. Garrow. Since the doctor was at the hospital, I told the nurse his symptoms. The pain has been increasing each day for him.

When he went for his blood work today, he was given prescription for pain along with a steroid. By afternoon, the pain had subsided and he was going to hold off on the meds. He is scheduled for the PET scan at 9 a.m. tomorrow followed by the CT scan. It will take about 4 days for the results to be given to Dr. Garrow.

When I went for my 27th rad today, I was told that tomorrow would be my last rad that will cover the whole right breast area. I will not have radiation Friday. After my treatment I was given another CT scan so that the dosimetrist can properly plan where the "boost" will be given. This is essential. If the planning goes on schedule, I will have my first boost on Monday. These rads are direct hits on the scar/tumor area and last only seconds. I will know later how many days it will cover. Probably less than a week.

As I log off I ask that everyone who reads my blog to send positive thoughts and prayers our way. Tomorrow will probably be the start of a few anxious days. I have to believe that it's all in God's hands.

Tuesday, September 20, 2005

What is a dosimetrist? Answer to follow...

Sorry I didn't post yesterday.....Becky commented to me at soccer game this p.m.

After my daily dose of radiation today (I believe it was my 26th rad), I met with a dosimetrist and my radiation oncologist. Now you may say, what is a dosimetrist? Because that's what I said. Here is the definition:

___________________________


The medical dosimetrist is a member of the radiation oncology treatment and planning team. Dosimetrists have the expertise to measure and generate radiation dose distributions and calculations under the direct supervision of the radiation physicist and the radiation oncologist.

Dosimetrist
The main duties include:

performing computations to deliver a prescribed dose to a defined tumor volume
supervising and/or assisting in the preparation of beam modifying devices and treatment aids necessary to carry out the planned treatment
supervising the therapists in the implementation of the treatment plan
assisting the radiation physicist in quality assurance and radiation protection programs when necessary
assisting in brachytherapy implants, including calculation of doses
Dosimetrists may be involved in clinical research for the development and implementation of new techniques. They must have good communications skills to relay information between the oncologist, physics department, and the treating therapists. Some teaching of dosimetry to students is necessary. The dosimetrists must stay current on continuing change in the profession.

____________________________

Basically both of them marked up my breast like a road map with a permanent blue marker (which then marked up my bra..). And this is the area that will be "boosted" with radiation starting this Friday. I have to avoid soap and creams on this area, don't want the markings to disappear. Each day they will reinforce them. It is the area of my incision and where the cancer was removed. I'm not sure how many rads will be given to me, perhaps about 5 treatments. So, I'm on the home stretch.

I went to work quite pleased in knowing this. But at the same time I was excited for myself, my thoughts are with Barry. Hard to be truly excited for myself with the uncertainty of Barry's condition. Mixed emotions for sure. As always, the uncertainty/waiting is the worst part. I continue to look forward and have faith that it will all work out.

After work I was able to see Tim play soccer. He's grown so much this year: physically and emotionally. Like last night's game, he got a goal and an assist. I'm very proud of him.

Sunday, September 18, 2005

Beginning my 6th week of radiation

I had good intentions of getting up early today, but since it took me a couple of hours to get to sleep last night it didn't work. I had soda for dinner last night, and I had not been drinking that for a long time. And it must have had caffeine. After a couple of hours just laying in bed, I took my ativan to sleep. It worked and I rolled out of bed at about 11.

Tim and I cut the lawn.

Barry went to work and Tim and I went to neighborhood picnic afterwards. There must have been about 30 people there. Lots of tasty food. It was nice seeing everyone. But I think this will be my last time to bring Tim. He was out of place there, an odd age since the kids there were mostly elementary age. No other teenagers. Probably the last time he'll come with me. So many neighbors came up to me and asked how Barry and I were doing. At one point a neighbor I didn't even know came to me and said that we were in her prayers. It was right after the blessing of the meal. It just hit me and I tried to hide my tears. Believe me I am a positive person but also a very emotional person. It's been a long journey for me but Barry's journey is still going on. I focus on his health especially with his scans being done this week. What I've gone through is nothing compared to what he is going through. And he takes each day with such strength.

After a couple of hours we left.

As Tim did his homework, I scooted to the store for some odds and ends. Barry was out of bananas and that is one thing he likes to eat daily.

Was a gorgeous day here. And hopefully the week will be the same.

Saturday, September 17, 2005

I love the weekend

After picking up mums from the band fundraiser, we drove Sean home. We then took Tim to the barber for a much needed haircut. We had made a deal with him, he could have his school picture taken for the first time with long hair and then get it cut. And the timing is actually perfect. In two weeks he will be going to his first homecoming dance and he'll look great in those pictures. Boy, he's much more sociable that I was in school.

I was able to take a nice nap in the afternoon while Tim was at soccer practice.

We just got back from Red Lobster. Doesn't compare to the fresh seafood we have on Cape Cod, but you take what you can get. And now we're stuffed.

Tomorrow afternoon we'll be going to our neighborhood block party. Unfortunately Barry has to work and won't be able to come. Maybe next year.

Friday, September 16, 2005

5 weeks out of 7 are done

I have 4 minutes to post today's entries and then it's midnight. A long but enjoyable day.

Had a food day at work today in honor of Matt leaving our dept. and welcoming new people into it. I'm going to miss him. He's a good kid.

And after I got home from work, it was time to go to our usual Friday night football game. Took umbrella but never needed it. God was on our side. Nice and dry. Again, Friday nights are turning into a social time which is something I had never done. Dave, a man who works with Barry, was there. I also met the Cuff family. So many wonderful people. Afterwards we went to the Meyers home for a wienie roast and samoas on their outside pit. I had not planned on going, but with the help of my friends I did go and have a great time.

Tim is having Sean sleep over. It's actually his first time in the house. And as usual you never would know a friend was here. Good kids.

Well, it's midnight so I have to sign off.

Thursday, September 15, 2005

12 treatments to go...

Had another good night's sleep. Yeah.

I continue to be blessed by good friends. One of my friends, Michelle, moved out of state but is still thinking of me. She's mailing me some cream that they have given to her for her radiation treatment to try. Another friend, Joann, told me of sween cream which I have purchased. And today when I went for radiation, the nurse gave me a whole tube of xenederm which normally costs $72. Another patient had got it and was not going to use it. I also got a card in the mail signed by the whole Math Dept. at the local college. I met one of the professors at a game a week or so ago, and as usual introduced myself to her. I could tell she was going through chemo. Come to find out, I was once interviewed for a job in that dept. a year or so ago. Unfortunately, I didn't get it. But I continue to be positive and hope to some day work there. It's my small dream. We've emailed a couple of times since meeeting again, and then I got this beautiful card from everyone. How thoughtful of everyone to think of me. Thanks!

Wednesday, September 14, 2005

For the first time in a long time, slept straight through..

Yeah.
Welcome aboard Linda. You'll have to introduce yourself to me at Friday's football game.

The Shaffer family treated us to sloppy joes for dinner. And boy did that hit the spot. An unexpected treat. Thank you very much. JoAnn also gave me the name of some cream to use on my skin. Will be picking it up tomorrow to give it a try.

After dinner, Tim and I went to the mall and got some nice clothes for homecoming dance in October. He sure is a good looking kid! Can't wait to see all his friends dressed up, including his date Annie. All good kids.

Off to bed. Another long day.

Tuesday, September 13, 2005

14 Radiation treatments to go...

Figured I would reverse my count and make it a countdown. Something different.

An uneventful day. Really nothing new to report so will make it short.

Using the ointment on my breast for the first full day. What a stink. Hard to even get the smell off of your finger after applying it. Hopefully it will work.

The end. I told you it would be short entry today.

Monday, September 12, 2005

Radiation/Day 20

For the first time this year, I drove my scooter to work. Tomorrow I will definitely wear a sweatshirt. A bit cool in the morning. Had some hot chocolate when I got to work. But it sure did feel good.

Had my 20th treatment today and then met with doctor for weekly appointment. The doctor gave me sample ointment for the skin irritation to try. I checked with my insurance company and this ointment is not covered under our plan. Would cost about $72 for 2 oz. Hopefully if it works they will give me more samples. I also was given a prescription to help with the insomnia. Would like to use ambien, but again it's not covered under our plan.

Sunday, September 11, 2005

Sunday

Nothing much to report from this neck of the woods. Just a calm but nice day. Can't complain about that.

Will be seeing my doctor tomorrow for my weekly exam. I want to discuss the skin irritation on my breast, along with my lack of a good nights sleep when I am so tired during the day. Hard to figure that one out.

May ride my scooter to work tomorrow for the first time this year. Supposed to be nice.

Tim at his first JV Soccer game. Posted by Picasa

This is the effect of radiation so far. It is so itchy (and I don't scratch). Compared to last week, a larger area. It is spreading to cover the whole bosom. Lots of pimpley crap. Posted by Picasa

This is my best side! And the hair is so soft now. Not sure what color it will end up being. I like this color though. Posted by Picasa

Another picture of me that Tim took today. This was about the only picture he took that I didn't blink. Posted by Picasa

This is me after about 2 months of my last chemo. Pretty cool. Posted by Picasa

Saturday, September 10, 2005

Yeah. It's a Saturday

I did something this a.m. that I had not done in a few months. Can you guess?

I washed what little hair I have with SHAMPOO!

Made BLT's for lunch. And TimBa, I bought the tomatoes from our Amish family. You know which one. Where else can you ride up to someone's house and ask to buy veggies from their garden? Only in the Amish country! Just like banana splits without bananas, BLT's would not be good without tomatoes.

After lunch we cut the lawn.

And then the best time of the day came. Naptime. Thank goodness I am able to enjoy my weekend naps. The best sleep is then.

Barry and Tim scooted around a bit this p.m., and then I drove it to get some sangria. Another beautiful day here, with blue sky. Glad to be able to enjoy it.

Went out for Mexican food tonight. If you ask TimBa he would tell you it was miles away, but don't believe him. It's only about a 10 mile trip.

I am really impressed right now. I just read a comment posted by someone special, my father. This has never happened before. It just proves that all you people that just read my blog can actually POST on it. Very easy, just ask him! Thanks dad.
And yes, I truly miss having your fresh yellow tomatoes and summer squash. They don't grow summer squash out here for some reason.

Friday, September 09, 2005

4 weeks done

I went in to work late today, only worked 1/2 the day. I had little energy when I got in the morning. Once I called in, I hopped back into bed for a few hours. It's not that I slept much, but just dozing was good for me. The area on my chest is itching so much now. I have to ignore it and not scratch. Just put lots of aloe on it. Just like a sunburn with the annoying pimples.

We went to another football game in Mercer this evening. Tim was driven there by bus, and Bary and I ate at a local restaurant. Good food and good price. And then we went to the game. Never thought I would enjoy high school football but I am. It's a very social event, a chance to talk to so many nice friends. Something I had never done.

Well, TGIF. That's it for today.

Thursday, September 08, 2005

Radiation/Day 18

Radiation/Day 18: but who's counting? I certainly am.

Very thankful for a peaceful day at work today. That doesn't happen too often. People stop and ask me how I'm doing during the day, today I said that I'm running out of gas. Last night I was in bed by 9 p.m. Still not able to sleep straight through without waking up.

Tim is getting older every day. He's invited a girl to his first homecoming dance next month. One of his friends Annie. And he got his own cell phone today. He and I will now share minutes. This way he'll be able to keep in touch with me especially after all his social events/soccer games/band practices. BJ, the story you emailed me was so fitting about a parent worrying about their child. That's me already.

Sipping my sangria and hoping for a good night's sleep.

Wednesday, September 07, 2005

1/2 way done with radiation!

Day 17 complete out of 35 treatments. Yeah.

My blood work from yesterday was good. But I'm starting to lose my "umph", aka pooping out. Started feeling this way yesterday. I mentioned it to the nurse when she gave me test results. All part of radiation and working full time.

After Tim's soccer game we ate at Dutch Isle and split a banana split! (we were almost done eating it and noticed there was no banana)!! Didn't even want to think about preparing anything. I had heard 4 weeks was a turning point and it does appear to be accurate. I'm yawning most of the day, but last night I couldn't sleep. Can't figure that out. But I've already took a sleeping pill to see if that works. As tired as I'm feeling I have to think of Barry's strength. Perhaps down the road part time might work out for me.

Tuesday, September 06, 2005

Radiation/Day 16

At my weekly checkup with Dr. Ulewicz, he was able to examine the area on my breast that shows the signs of radiation. He said it's a common spot to get irritated as it's one of the spots that is radiated directly. He just said to load up on the aloe, can never overdo it. I also had a blood test/CBC. Didn't have the results complete for me while I was there. Tomorrow. I sort of feel that my counts are low as today I can't stop yawning, similar to when I was put on procrit awhile back.

A short blog today. A bit tired. Nothing new to report. Tomorrow will mark just abotu 1/2 way done on radiation.

Monday, September 05, 2005

Labor Day-A day I will not labor....

Got up late (again) this morning. A nice cool night for sleeping. Right now it's 71 degrees. Love this weather.

Cooked spare ribs on the grill for lunch. And picked the rhubarb that Dad always asks me if I have picked it. Now I can truly say yes to him.

Tim came home from his weekend with Ben and his family. Did a lot of dirt bike riding. They had so many trails to ride on. Had a great time. Also enjoyed mountain pies cooked over an open fire. He really enjoyed them.

I took another nice nap after Barry went to work. I'm back to being able to enjoy my naps.

For dinner Tim and I had burgers on the grill.

By 8 p.m. it was getting dark. Boy, the temps have changed so much this week. But I do enjoy the cooler temps and less humidity.

Maureen: good luck with your new job this week. You deserve the best.

Sunday, September 04, 2005

You meet the nicest people in grocery stores...

While shopping at WalMart a short while ago, I noticed a girl but of course I couldn't remember where I knew her from. I then remembered that she was one of my radiation technicians from the Cancer Center.

As I was leaving the store, she happened to be ahead of me and stopped. She came back to me and we spoke. I explained to her why I had not said hi before. Her name is Jennifer. She was with her husband. They live not far from the store. She asked how I was doing. I asked her if I could have someone take my picture as I lay down for one of my treatments. She is going to look into it for me. I told her that on my last chemo I had a girl friend take pictures of the treatment. So many people don't know what chemo and radiation is all about. And it helps to show them a picture to explain the process. And since she touched my heart, I gave Jennifer one of my blog calling cards that I created to share with others that touch me.

So once again, I've come into contact with someone special in a grocery store!


Barry's aches continued due to neulasta shot. But he did invite me to go to Dairy Queen for some ice cream. After ice cream it was my usual weekend naptime. Love my weekend naps now that I sleep better.

House is quiet without Tim. He'll be back tomorrow.

Saturday, September 03, 2005

Mel Fowler Jr. gets traded to Minnesota Vikings!

Just got a call from Mel Jr.'s parents that Mel Jr. got traded to Minnesota Vikings as starting CENTER! The news is already on their website. Their center got hurt/back injury. We are quite excited for him and his family. Since he was hired by the Browns they had not treated him very nice (in my opinion). This all happened this afternoon. And he is going to be playing with a few guys he had played with at Maryland University/the Terrapins. Even the head coach was a Terp, and grew up on Long Island where the Fowlers still live. Small world. The only drawback is that Tim and I won't be able to see him play personally any more. We went to Cleveland several times. Good things do come to good people. Mel Jr. is a type of person who never talks negative about anyone. Good luck Mel Jr.! We'll be watching for you on Sept. 11th opening game.

After getting out of bed late, I did manage to cut the lawn. Looks much better after getting a bit of rain this week.

Tim had his first soccer game as a freshman. They lost 2-0 but still played a good game. It's such a social event, great talking to everyone. All my food angels were there. A good time.

Tim left after the game with Ben and his family to go to their cabin for the weekend. They will be dirt biking, the first time Tim has rode his bike all summer. So he was quite excited.

While sitting up here this evening, I've noticed that the area of my incision for the breast surgery is, I have some blisters and couple have opened up. My first sign of radiation at it's best. Immediately put some fresh aloe on it. It was only a matter of time that something could happen. Strong stuff. Will show the doctor it on my weekly check up on Tuesday.

All is good here. Once again we congratulate Mel Jr.

Friday, September 02, 2005

3 weeks of radiation completed

Aileen: Barry saw you at the Cancer Center yesterday, but didn't realize it was you until afterwards. Different wig this time, through him off. Otherwise he would have said hi! And I continue to use the aloe that you kindly gave me at the bank.

We went to the first football game of the year tonight. Will be going to a lot this year since Tim plays in the band. It was fun seeing everyone and chatting with them. Finally my bosom buddy Jody got to meet Barry. And I returned the scarves/bandanas that she had given to me to wear. They truly came in handy.

Tomorrow is Tim's first soccer game in the evening. It's going to be held at the school. Looking forward to seeing the team play. They certainly have been practicing a lot. And as I remember from the past, the kids grow so fast from season to season.

Thursday, September 01, 2005

Radiation/Day 14 Me/Chemo #6 Barry

Here it is September already. Time flies when you're having fun.

Barry had his 6th chemo treatment today. He will be having PET and CT scans in 3 weeks, followed by another chemo treatment end of this month. Due to scheduling of the PET scan, his 3 week in between cycle is going to be extended by one week. Not convenient for Barry but out of our hands. After I had my 14th radiation treatment at the same cancer center, I brought him couple of Panera pastries for a treat. He ended his treatment in time that we could both leave together. How romantic is that..

Tomorrow will complete 3 out of 7 weeks of radiation. Hard to believe that. Honestly.

Well, off to watch some more of the Cleveland Browns preseason game. Have to keep looking to see if Mel Jr. gets to play. Go #67.

Wednesday, August 31, 2005

Radiation/Day 13

Internet was down last night. Boy did I feel lost without it.

Found out today at work that someone in my department is moving to another department. His name is Matt and for all those busy days at work, he was the other person usually answering the calls with me. I will truly miss him as he is one of the "good guys." I'm happy for him, sad for me. And I realize that management probably doesn't even realize that this is a loss to the department. Oh well. He's going to be working with a friend of mine called Leya (she left our dept. end of last year). Funny how things work out.

When I got home from picking Tim up from soccer, I found an aloe plant on my doorstep. There was no note. I was so pleased to get such a thoughtful gift. I could not figure out who left it there. A short while ago, my neighbor Eleanor B. called to tell me that she had left the plant for me. Just another angel in my life! I had spoken to her over the weekend and told her that Aileen had given me some aloe pieces and that I was using them. Just another kind gesture. Thanks.


Barry goes for his 6th chemo treatment tomorrow. I won't be going with him, but plan to visit with him after my 3 p.m. radiation treatment. Isn't that nice: one in chemo/the other in radiation. Who could have predicted such an event? He wanted to go solo and hope to sleep some while there. I'm going to bring him a special dessert when I see him.

Monday, August 29, 2005

Radiation/Day 11

When you put system down and a Monday together: you get a bad day on the job. No need to say anything else.

Went for my 11th treatment today. Got to meet with my doctor for the weekly checkup. All is going well. Next week, after my 15th treatment, I will have blood work to check to see if everything is actually AOK.

Tim goes back to school tomorrow. And I hope for a better day at work.

Sunday, August 28, 2005

Tim and I slept in camper last night for something different. Eileen, you said the rain was soothing as you slept in camper in April: last night it kept me awake! It would come down heavy at different times during the night. I think I'll be napping this afternoon...

Off to church. Checking out a new one to see if they play more upbeat music.

Church results: shorter mass and music a bit better. But not like the church we went to on Long Island. I never realized how modern that church was until we left and came here.

Before Barry went to work we made a trip to Dutch Isle for some ice cream. In front of the restaurant the town has one of those signs that displays the speed you are traveling. While we were sitting there a buggy flew by so fast. And we thought of TimBa. If only he was with us to videotape that, plus we wondered if the buggy's speed showed on the display! He certainly was going more than 35 mph. Where were you when we needed you?

I took a nice afternoon nap (continue not to have sweats). Tim rode his bike for about 3 miles.

After dinner, Tim and I did short walk.

All in all, a pretty nice weekend. But then, it was a pretty nice week!

I want to thank everyone for all the wonderful meals that were delivered to us. And to Michelle S. who co-ordinated the schedule. They were truly a blessing. I've called her and for now the angels can have a break. But she has told me that I can start it up at any moment. And I also want to thank everyone who has taken Tim to and from an event. I know this will continue but I am truly appreciative. I've learned to accept help along the way.

Here's to a new week. Tim is now a freshman, new classes, and new activities. He will be playing in the band at our first football game this Friday. Even though I'm not much of a school football fan I think I will enjoy just seeing him play each game.

Saturday, August 27, 2005

I've had my third night of sleep without experiencing any night sweats! My first night was when Tim had arrived. Perhaps he brought me good luck, or perhaps the medication is working. Either way I hope it continues. Sure does make my life easier.

Haven't done much today. After a busy work week I do enjoy my weekend. A time to relax from work and radiation. So far radiation is a piece of cake compared to chemo. Hope it continues to be that way for the remaining 5 weeks.

Tim had soccer practice again today. This past month has been a busy summer month for him. Started with band camp and practice, and then soccer camp. I think he's going to have a busy school year. He doesn't even have a study hall this year. Jammed pack with classes. But that's a good thing. I am confident he can continue to do well in school along with enjoying the sport of soccer.

PS. Hoppe: I did take a nice nap today!

After dinner we went for ice cream at Dairy Queen. Dutch Isle was closed at 6:30 p.m.. Hard to believe that. And we had our hearts set on that place. Soon it will be closed for the season.

Friday, August 26, 2005

A great week

It's Friday and as I look back at this week I say: what a great week! It's been a long 5 months but this week was one of the good weeks. We got to see Vinny and Darlene from LI and of course cousin Tim. Lots of good memories to keep close to our hearts. Have a safe trip home, Tim and as you may have said in the past "slice of heaven." (memory a bit gone, or similar words!). And as everyone knows, we always have room at the inn. And when you return, we'll even have more Amish for you to see. By the way, I think we satisfied your requirements: Beef Jerkey, Vodka, and Pizza.

Off to work but it's already a good day. I get to wear jeans today. That's a plus in itself.

And when I come home tonight, I will have 2 weeks of radiation done. It is going very fast in my opinion.

The house was too quiet when I came home from work today. No men in the house. Barry working, cousin Tim gone and Tim at soccer. Eventually Tim came home and we went out to McDonald's for quick bite. And then to Staples for some school supplies. School starts next Tuesday for Timster.

I cut the lawn while Tim washed my truck. Thought that was a good deal. And now Tim has a friend sleeping over.

Thursday, August 25, 2005

Enjoying Tim's company

Barry was able to show his cousin more of our country today. Tim pokes fun at our country living here, but deep down inside I think he wants to be Amish. But I don't think Amish live near the ocean, and that's a requirement for him.

I had my 9th radiation treatment.

The 2 Tims did some target practice out back with our Tim this afternoon. They seem to enjoy that.

We went to a Mexican restaurant for dinner which was about 10 miles away. To cousin Tim it felt like it was an hour away. But for us, it was just a short ride. And if I may say so, they had good sangria. This is a must for a Mexican restaurant.

And as I sit here typing my thoughts for the day, I realize that cousin Tim will be leaving tomorrow. And I realize that I don't have any pics of him and myself. That's what happens when you take the pictures. The time sure did go too quickly but am so thankful that he took the time to come visit us. It certainly did brighten Barry's spirits. Thank you.

The 2 Tims got a chance to play with the pellet gun. Posted by Picasa